Exploring what motivates and sustains support group engagement amongst young people with allergies: A qualitative study

Jones, Christina; Sommereux, Lou; Smith, Helen

doi:10.1111/cea.13193

Cited by 15 publications

(7 citation statements)

References 20 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Illness comprehension by adolescents, particularly as they get older, may be an important target for intervention aimed at improving their psychological well‐being. Recently, Jones et al found that joining a support group improved self‐efficacy and confidence in allergy management in adolescents. The BIPQ can help identify adolescents showing psychological difficulties, with a particular focus on young women who seem to be more vulnerable, and guide clinicians to provide the right support for them.…”

Section: Discussionmentioning

confidence: 99%

Illness perception of adolescents with allergic conditions under specialist care

James

Caballero

2019

Pediatric Allergy Immunology

View full text Add to dashboard Cite

Background: Our understanding of how adolescents perceive and cope with their allergic condition/s is limited. This study used the Brief Illness Perception Questionnaire (BIPQ) in a group of adolescents with allergies and correlates the findings with demographic and clinical conditions. Methods:In this retrospective questionnaire-based study, we analysed 100 valid questionnaires from adolescents (11-18 years) attending our service after receiving management and treatment for their allergic condition/s. Results:The overall BIPQ score was 4.8 (IQR 3.6-5.6). The highest item-related scores were for "timeline" (illness duration) followed by "concern." The lowest scores were found for "coherence/understanding," demonstrating that adolescents do not perceive that they have a sound understanding of their condition/s. We found a significant difference in the overall BIPQ scores between the genders and in the emotional representation score, with females showing a highest score. Older adolescents reported a more chronic perception of the allergic disease/s. Conclusion:Our results suggest that a better understanding and support of the allergic condition/s in adolescents, particularly in females, are likely an important target for intervention intended to improve their quality of life. BIPQ can be used as adjunct to routine allergy clinic appointments for further exploration of the wider impact of allergies on adolescents' lives. K E Y W O R D S adolescent, allergy, BIPQ, brief Illness perception questionnaire, illness perception, quality of life How to cite this article: James P, Caballero MR. Illness perception of adolescents with allergic conditions under specialist care.

show abstract

Section: Discussionmentioning

confidence: 99%

Illness perception of adolescents with allergic conditions under specialist care

James

Caballero

2019

Pediatric Allergy Immunology

View full text Add to dashboard Cite

show abstract

“…There is a need for healthcare professionals to be aware of the lack of understanding of the condition by patients, especially of the seriousness of the condition, the impact anaphylaxis has on psychological distress and the importance of social support from others. Jones et al have found that joining a support group improved self‐efficacy and confidence in allergy management in adolescents. Such support should be encouraged for adults with anaphylaxis.…”

Section: Discussionmentioning

confidence: 99%

“It's not an illness, it's just bad luck”: The impact of anaphylaxis on quality of life in adults

Knibb

Huissoon

Baretto

et al. 2019

Clin Experimental Allergy

View full text Add to dashboard Cite

Background An increasing number of adults are being diagnosed with anaphylaxis, but its impact on health‐related quality of life (HRQol) is not known. Objective The aim of this study was to explore the impact of anaphylaxis on HRQoL of newly diagnosed adults. Methods Interviews were conducted with 13 adults (aged 40‐71; five males) with anaphylaxis (meeting WAO diagnostic criteria) to drugs, food, venom or spontaneous anaphylaxis, recruited using purposive sampling from allergy clinics in Birmingham, UK. Data were transcribed verbatim and analysed using thematic analysis. Results Four themes were generated from the analysis: the journey from fear to frustration; the need to maintain a healthy identity; control over uncertainty; and the supportive role of others. Participants described their first experiences of anaphylaxis as frightening. Managing the condition was associated with frustration and anxiety, in part due to uncertainty regarding when anaphylaxis might occur. Participants did not consider their allergy as an illness and wanted to retain an identity as a healthy person. They felt a strong need to have control over their anaphylaxis so that it did not take over their lives. The support from others was extremely important, but a lack of understanding of anaphylaxis sometimes hindered that support. Conclusions and Clinical Relevance Anaphylaxis has an adverse impact on the HRQoL of adults irrespective of the cause. More information about anaphylaxis and its management from healthcare professionals may help patients gain a sense of control over their condition and reduce the worry and anxiety associated with it.

show abstract

“…There is a limit to the support available from healthcare professionals. Jones et al explored what motivates young people with allergies to engage with support groups using in‐depth, semi‐structured interviews. They reported very positive findings with reported improved self‐esteem and confidence and improved adherence to self‐management behaviours.…”

Section: Clinical Allergymentioning

confidence: 99%

Developments in the field of clinical allergy in 2018 through the eyes of Clinical and Experimental Allergy, Part II

Roberts

Almqvist

Boyle

et al. 2019

Clin Experimental Allergy

View full text Add to dashboard Cite

show abstract

Exploring what motivates and sustains support group engagement amongst young people with allergies: A qualitative study

Cited by 15 publications

References 20 publications

Illness perception of adolescents with allergic conditions under specialist care

Illness perception of adolescents with allergic conditions under specialist care

“It's not an illness, it's just bad luck”: The impact of anaphylaxis on quality of life in adults

Developments in the field of clinical allergy in 2018 through the eyes of Clinical and Experimental Allergy, Part II

Contact Info

Product

Resources

About