Exploring the Psychosocial Impact of Wheelchair and Contextual Factors on Quality of Life of People with Neuromuscular Disorders

Pousada, Thais; Groba, Betania; Rivero, Laura Nieto; Loureiro, Javier Pereira; Villoria, Emiliano Díez; Sierra, Alejandro Pazos

doi:10.1080/10400435.2015.1045996

Cited by 17 publications

(10 citation statements)

References 33 publications

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“…Additionally, we demonstrated the high importance of the use and need of assistive devices for people with severe difficulties in capacity. Other investigations described the psychosocial benefits and a positive impact on the quality of life using assistive devices for severe disabilities, which is in line with our findings [ 17 , 18 ].…”

Section: Discussionsupporting

confidence: 93%

Which Environmental Factors Have the Highest Impact on the Performance of People Experiencing Difficulties in Capacity?

Loidl

Oberhauser

Ballert

et al. 2016

IJERPH

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Disability is understood by the World Health Organization (WHO) as the outcome of the interaction between a health condition and personal and environmental factors. Comprehensive data about environmental factors is therefore essential to understand and influence disability. We aimed to identify which environmental factors have the highest impact on the performance of people with mild, moderate and severe difficulties in capacity, who are at risk of experiencing disability to different extents, using data from a pilot study of the WHO Model Disability Survey in Cambodia and random forest regression. Hindering or facilitating aspects of places to socialize in community activities, transportation and natural environment as well as use and need of personal assistance and use of medication on a regular basis were the most important environmental factors across groups. Hindering or facilitating aspects of the general environment were the most relevant in persons experiencing mild levels of difficulties in capacity, while social support, attitudes of others and use of medication on a regular basis were highly relevant for the performance of persons experiencing moderate to higher levels of difficulties in capacity. Additionally, we corroborate the high importance of the use and need of assistive devices for people with severe difficulties in capacity.

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Section: Discussionsupporting

confidence: 93%

Which Environmental Factors Have the Highest Impact on the Performance of People Experiencing Difficulties in Capacity?

Loidl

Oberhauser

Ballert

et al. 2016

IJERPH

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“…The sample was composed of 417 adults who had been administered the Spanish version of the PIADS scale in other independent studies (Pousada et al, 2015 ; Jiménez-Arberas et al, 2019 ; Jiménez-Arberas and Díez, 2021 ). In all cases, a convenience sampling was used, and the scale had been applied as a way of assessing the perceived psychosocial impact related to the use of the person's main assistive technology.…”

Section: Methodsmentioning

confidence: 99%

Psychometric Properties of the Spanish Version of Psychosocial Impact of Assistive Devices Scale in a Large Sample of People With Neuromuscular, Neurological, or Hearing Disabilities

2021

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Assistive technology (AT) is any device, software, or equipment designed for and used by individuals with disabilities to engage in everyday activities and achieve independence. However, the usefulness of those technology-based or supported treatments is a complex issue that has led to the development of various conceptual models for assistive technology outcomes research and practice as well as different assessment tools that help to explore the effect of technology on people's lives. One of those instruments is the Psychosocial Impact of Assistive Device Scale (PIADS), a 26-item questionnaire that measures the psychosocial impact of interventions, using assistive devices in three quality-of-life domains: competence, adaptability, and self-esteem. PIADS scale has been translated and adapted to several languages, and it has been successfully used to measure AT outcomes in different disability profiles to predict abandonment or even as a relevant determinant of future adoption of eHealth. Quinteiro (2010) adapted PIADS to Spanish for the first time, although no studies have yet been published to systematically study its psychometric properties. Therefore, the purpose of this study was to evaluate measurement properties of the Spanish version of PIADS scale by means of a dataset obtained from its application to a large sample (n = 417) of people with neuromuscular, neurological, or hearing disabilities that used different assistive devices. The results will provide valuable indicators about the measurement quality of the Spanish PIADS scale and will help to promote the use of reliable and valid AT outcome assessment tools for research and clinical purposes.

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“…[22] Originally, the Hoffer classification was used to assess de-ambulation in people with myelomelingocele, but at present, it is applicable to different pathologies with a motor component, among them NMD. [23]…”

Section: Methodsmentioning

confidence: 99%

Assistive technology based on client-centered for occupational performance in neuromuscular conditions

Pousada

Loureiro²,

Groba³

et al. 2019

Medicine

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Knowledge of the patient's own perception of functioning and dependence, and of environmental factors, is of significant value. The main goals of this study are (1) to obtain a general profile of the occupational performance of persons with neuromuscular disorders (NMD) and their needs related to that performance and (2) to determine the support resources (assistive technologies [AT], adjustment, and/or caregiver) required to improve or maintain their level of independence. This cross-sectional study involved 24 persons with NMD. The functional independence measure (FIM), the checklist of a home's accessibility level, and a specific questionnaire were administered. The sample included 14 women (58.3%) and 10 men (41.7%). A mean of 61.7 (standard deviation = 17.2) was obtained for FIM motor, over 91, indicating a moderate level of dependence. The AT most frequently used was a wheelchair (70.8%). Architectural barriers were detected in the majority of users’ homes (87.5%). Concise assessment of the independence needs of people with NMD, according to their occupational performance, and prescription of resources to meet those needs are required. This procedure should be implemented in healthcare programs, including care to a caregiver.

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Exploring the Psychosocial Impact of Wheelchair and Contextual Factors on Quality of Life of People with Neuromuscular Disorders

Cited by 17 publications

References 33 publications

Which Environmental Factors Have the Highest Impact on the Performance of People Experiencing Difficulties in Capacity?

Which Environmental Factors Have the Highest Impact on the Performance of People Experiencing Difficulties in Capacity?

Psychometric Properties of the Spanish Version of Psychosocial Impact of Assistive Devices Scale in a Large Sample of People With Neuromuscular, Neurological, or Hearing Disabilities

Assistive technology based on client-centered for occupational performance in neuromuscular conditions

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