Exploring the Most Visible German Websites on Melanoma Immunotherapy: A Web-Based Analysis

Brütting, Julia; Steeb, Theresa; Reinhardt, Lydia; Berking, Carola; Meier, Friedegund

doi:10.2196/10676

Cited by 20 publications

(32 citation statements)

References 32 publications

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“…Recent studies across multiple specialties have utilized the PEMAT to evaluate online information regarding a wide variety of topics such as diabetes care, cardiovascular disease, and melanoma . Those studies showed that online patient education materials are often inaccurate or far too complicated to understand.…”

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confidence: 99%

Understandability and actionability of audiovisual patient education materials on sinusitis

Rubel

Alwani

Nwosu

et al. 2020

Int Forum Allergy Rhinol

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Background: Acute and chronic rhinosinusitis are debilitating diseases that affect from 5% to 16% of the population. YouTube is the second most commonly used search engine and is o en utilized by patients to garner health information regarding various disease processes and their respective management options. An evaluation of these information resources for quality and reliability is warranted, especially in an era in which patients are increasingly turning to audiovisual (A/V) media to educate themselves regarding their ailments. Methods:The YouTube video database was searched using the term "sinusitis" from its inception through to November 2018. The first 50 videos populated under the relevancebased ranking option were collected and parsed by time and language. Of the 50 videos, 10 were eliminated either for length (ࣘ1 minute or ࣙ20 minutes), language (any language other than English), and/or for later being removed by YouTube for copyright violations. The videos were then assessed using the Patient Education Materials Assessment Tool-Audio/Visual (PEMAT-A/V) by 2 independent reviewers for understandability and actionability. Results:A total of 40 videos were examined using the PEMAT-A/V tool. The average understandability score was 57.7%, whereas the average actionability score was 46.3%. Eleven videos (28%) had actionability scores of 0%. Videos most commonly addressed disease management options (38%). The second largest category was case presentations regarding surgical techniques (30%). There were only 6 videos focused primarily on education about the definition and common traits of sinusitis (15%). Conclusion:Our results show a paucity of high-quality online A/V educational material pertaining to sinusitis, with a majority of videos being neither understandable nor actionable. As patients increasingly turn to internet video databases like YouTube for medical information, it is critical that physicians and institutions create A/V material that is accurate, understandable, and actionable. C 2020 ARS-AAOA, LLC.

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Understandability and actionability of audiovisual patient education materials on sinusitis

Rubel

Alwani

Nwosu

et al. 2020

Int Forum Allergy Rhinol

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“…German YouTube TM videos as a source of information on cutaneous melanoma: a critical appraisal Editor YouTube TM is an openly accessible video-sharing platform that is increasingly used by melanoma patients to acquire disease-related information. Dissemination of medical information through such a platform may offer valuable opportunities, but also challenges as the quality of unfiltered information posted may be of low scientific quality, 1 or even be misleading. Additionally, the credibility of the providers cannot be verified.…”

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“…T. Steeb, 1,* L. Reinhardt, 2,3 C. G€ orgmayr, 4 H. Weingarten, 4 A. Doppler, 4 J. Br€ utting, 2,3 F. Meier, 2,3 C. Berking, 1 German Skin Cancer Council…”

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confidence: 99%

“…To date, there are only limited postmarketing data available on its effectiveness and tolerance. 1 A retrospective, real-life multicenter study conducted in France and Belgium evaluated guselkumab tolerance and effectiveness at Month 4 (M4) in the treatment of cutaneous psoriasis, and to describe patient characteristics at baseline and after 4 months of treatment. Collected data included socio-demographic characteristics, psoriasis history (age at beginning, clinical type, associated psoriatic arthritis, previous treatments), comorbidities, psoriasis severity at beginning of treatment (PASI, PGA, DLQI) as well as about tolerance.…”

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German YouTube™ videos as a source of information on cutaneous melanoma: a critical appraisal

Steeb

Reinhardt

Görgmayr³

et al. 2020

Acad Dermatol Venereol

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LCH due to acute liver failure, presented with extensive diffuse crusted papulovesicles, which were most prominent on the scalp and trunk (Fig. 1i). Some patients presented with papules and nodules, with spontaneous resolution, leaving atrophic hypopigmented macules (Fig. 1j). Battistella et al ., 3 reported that resolution leaving hypopigmentation favoured limited disease, but this was not true in our cohort. Four children with MS-LCH had external otitis, 24 had liver and spleen involvement and lung and bone marrow involvement were present in 17 patients. No differences were observed in histologic features between SS-LCH and MS-LCH. Children with MS-LCH were treated with prednisolone in combination with chemotherapy. Patients with skin-limited disease were followed up carefully; however, no systemic treatment was used in this group and all are now in complete remission. Our data suggest earlier age of onset and isolated lesion favoured SS-LCH, while petechiae, external otitis and mucosal lesions favoured MS-LCH. Furthermore, groin involvement prone to indicate the MS-LCH. The partial retrospective design of single institution and predominant recruitment from the department of dermatology is limitations.

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“…Zudem besteht eine Herausforderung darin, geeignete IHA unter den umfangreichen Online-Angeboten zum Melanom ausfi ndig zu machen. In der Regel variieren diese hinsichtlich Qualität und Präzision [10][11][12]…”

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Sources of information and support for melanoma patients: differences between patients' and clinicians' preferences

Brütting

Bergmann

Schadendorf

et al. 2019

J Deutsche Derma Gesell

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Exploring the Most Visible German Websites on Melanoma Immunotherapy: A Web-Based Analysis

Abstract: Background: Patients diagnosed with melanoma frequently search the internet for treatment

Cited by 20 publications

References 32 publications

Understandability and actionability of audiovisual patient education materials on sinusitis

Understandability and actionability of audiovisual patient education materials on sinusitis

German YouTube™ videos as a source of information on cutaneous melanoma: a critical appraisal

Sources of information and support for melanoma patients: differences between patients' and clinicians' preferences

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