Exploring the meaning of home for family caregivers of people with dementia

Soilemezi, Dia; Drahota, Amy; Crossland, John; Stores, Rebecca; Costall, Alan

doi:10.1016/j.jenvp.2017.03.007

Cited by 24 publications

(25 citation statements)

References 58 publications

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“…Wiles et al 2012;Gillsjö et al 2011;Soilemezi et al 2017;Ward et al 2017;Keady et al 2012;Keady et al 2014;Nygård, 2004 Comfort/safety inside home Comfort/safety outside home Being able to stay in familiar environments. Importance of facilitating daily activities and chores to promote independence and activity inside the home and in the neighborhood.…”

Section: Methodsmentioning

confidence: 99%

“…Importance of facilitating daily activities and chores to promote independence and activity inside the home and in the neighborhood. Tanner et al 2008;Torrington, 2009;Werthon & Monk, 2008;Soilemezi et al 2017;Mitchell & Burton, 2010;Keady et al 2012;Ward et al 2017;Keady et al 2014 Physical wellbeing Physical activity as a source of doing things together as a couple and to promote healthy aging, cognitive function and physical wellbeing.…”

Section: Methodsmentioning

confidence: 99%

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Living Life and Doing Things Together: Collaborative Research With Couples Where One Partner Has a Diagnosis of Dementia

et al. 2018

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The aim of this study is to identify relevant content for a self-management guide by using the outcomes of previous research in combination with knowledge and experiences from couples where one partner has a diagnosis of dementia. The study was carried out in three phases: 1) Literature search of previous research related to wellbeing and couplehood in dementia; 2) Interviews with couples with dementia based on the findings of the literature search; 3) Further authentication of the findings within expert groups of people with dementia and carers. For analysis of data we used a hybrid approach of thematic analysis with combined deductive and inductive approaches. The findings of this study indicated that the four main themes "Home and Neighborhood", "Meaningful activities and Relationships", "Approach and Empowerment" and "Couplehood" with related sub themes could be appropriate targets for a self-management guide for couples where one partner has a diagnosis of dementia.

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Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Living Life and Doing Things Together: Collaborative Research With Couples Where One Partner Has a Diagnosis of Dementia

et al. 2018

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“…Indeed, the number of single-householders living with a dementia diagnosis in Sweden is rapidly expanding (Wattmo, Londos, & Minthon, 2014). Communities need to be aware of this growing demographic, while local and national governments should ensure that people with dementia living in diverse social and material contexts are equally well supported to remain involved and active in their neighbourhood (Soilemezi, Drahota, Crossland, Stores, & Costall, 2017). These recent changes imply the need for research that helps us to understand what enables people with dementia both to remain at home and stay engaged with their neighbourhoods.…”

Section: Introductionmentioning

confidence: 99%

‘Overjoyed that I can go outside’: Using walking interviews to learn about the lived experience and meaning of neighbourhood for people living with dementia

et al. 2018

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This study explores the relationships between people living with dementia and their neighbourhood as they venture out from home on a regular and often routine basis. Here, we report findings from the Swedish fieldsite of an international 5-year project: Neighbourhoods: our people, our places. The aims of this study were to investigate the lived experience of the neighbourhood for people with dementia and through this to better understand the meaning that neighbourhood held for the participants. In this study, we focus on the walking interviews which were conducted with 14 community-dwelling people with dementia (11 men and 3 women) and were analysed using an interpretative phenomenological method. Four themes were revealed from these interviews: life narratives embedded within neighbourhood; the support of selfhood and wellbeing through movement; the neighbourhood as an immediate social context; and restorative connections to nature. These themes were distilled into the 'essence' of what neighbourhood meant for the people we interviewed: A walkable area of subjective significance and social opportunity in which to move freely and feel rejuvenated. We have found that the neighbourhood for community-dwelling people with dementia holds a sense of attachment and offers the potential for freedom of movement. Our research indicates that a dementia diagnosis doesn't necessarily reduce this freedom of movement. The implications for practice and policy are considered: future research should explore and pay closer attention to the diverse living conditions of people living with dementia, and not least the particular challenges faced by people living alone with dementia.

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“…The process is comprehensively iterative where it requires the researcher to moving back and forth between the entire set of data (Vaismoradi, Jones, Turunen & Snelgrove, 2016;Braun & Clarke, 2006). The codes were checked backed against each transcript to ensure it relates to the original text in a systematic way (Soilemezi, Drahota, Crossland, Stores & Costall, 2017). The codes were grouped to reveal a similar theme and the themes were revised when necessary.…”

Section: Data Collection and Analysismentioning

confidence: 99%

Achieving Data Saturation: Evidence from a Qualitative Study of Job Satisfaction

Majid¹,

Othman²,

Mohamad³

et al. 2018

Soc. & Manage. Res. J.

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The concept of saturation is deemed necessary in qualitative research;however, existing literature discussing the point of saturation is relativelyscant. Previous qualitative studies tend to describe the point of saturationbut fail to demonstrate how the saturation occurred. This article providesevidence on how qualitative research might report the point of datasaturation. The original study consists of a mixed method approach todevelop and validate an instrument for measuring offshore cateringemployees’ job satisfaction. Notably, this paper reports a part of thequalitative portion of a mixed-method study. Using the data from a studyinvolving 13 in-depth, semi-structured interviews, this study documentsthe degree of data saturation over the course of thematic analysis anddemonstrates how data saturation was operationalised. Although the studyreported 13 interviews, the saturation occurred within 12 interviews. Thestudy findings are not extensively discussed; however, adequate informationabout the study background, data collection and sample characteristics areincluded. The technique presented in this paper provides practical guidancefor qualitative researchers in reporting point of saturation. However, itis recommended that the evidence of data saturation occurred after 12interviews should be applied with caution due to several factors

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Exploring the meaning of home for family caregivers of people with dementia

Cited by 24 publications

References 58 publications

Living Life and Doing Things Together: Collaborative Research With Couples Where One Partner Has a Diagnosis of Dementia

Living Life and Doing Things Together: Collaborative Research With Couples Where One Partner Has a Diagnosis of Dementia

‘Overjoyed that I can go outside’: Using walking interviews to learn about the lived experience and meaning of neighbourhood for people living with dementia

Achieving Data Saturation: Evidence from a Qualitative Study of Job Satisfaction

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