Exploring the lived experiences of women with congenital heart disease during pregnancy: A phenomenological study

Obieat, Hanan D. AL; Khalaf, Inaam; Al-Ammouri, Iyad; Obeidat, Hala; Bawadi, Hala; Momany, Maan Sh. Al; Harb, Eman

doi:10.1016/j.midw.2023.103630

Cited by 2 publications

(5 citation statements)

References 26 publications

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“…Following a diagnosis, they desire to parent[ 6 - 11 ] but lack autonomy and control over pregnancy decisions[ 7 , 12 ]. When experiencing cardiac symptoms during and after pregnancy, they feel helpless, isolated, frightened, and vulnerable[ 7 , 10 , 11 , 13 - 15 ], wondering about their safety and their children’s health and care[ 6 - 8 , 10 - 12 , 16 ]. With complex diagnoses, people struggle to comprehend their illness fully and precisely[ 6 , 8 , 9 , 16 ], rely heavily on medical institutions and personnel[ 6 , 11 , 16 ], and demand more social support[ 7 , 11 , 16 , 17 ].…”

Section: Introductionmentioning

confidence: 99%

“…Compared to their healthy peers, women with heart disease during and after pregnancy had a reduced QoL[ 20 - 22 ], as well as physical discomfort and mental health problems[ 14 , 15 , 20 - 23 ]. These issues result in decreased adherence and bad healthcare practices[ 10 , 21 , 23 ]. Existing research focuses on the clinical and physiological outcomes of these pregnancies[ 21 , 24 ].…”

Section: Introductionmentioning

confidence: 99%

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Postpartum quality of life and mental health in women with heart disease: Integrated clinical communication and treatment

Liu,

Wang,

2024

World J Psychiatry

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BACKGROUND Postpartum quality of life (QoL) in women with heart disease has been neglected. AIM To improve clinical communication and treatment, we integrated medical data and subjective characteristics to study postpartum QoL concerns. METHODS The study assessed QoL 6 wk after birth using the 12-Item Short-Form Health Survey. The Edinburgh Postnatal Depression Scale, Cardiac Anxiety Questionnaire, European Heart Failure Self-Care Behavior Scale, and a self-designed questionnaire based on earlier research were also used to assess patient characteristics. Patient data were collected. Prediction models were created using multiple linear regression. RESULTS This retrospective study examined postpartum QoL in 105 cardiac patients. Postpartum QoL scores were lower (90.69 ± 13.82) than those of women without heart disease, with physical component scores (41.09 ± 9.91) lower than mental component scores (49.60 ± 14.87). Postpartum depression (33.3%), moderate anxiety (37.14%), pregnancy concerns (57.14%), offspring heart problems (57.14%), and life expectancy worries (48.6%) were all prevalent. No previous cardiac surgery, multiparity, higher sadness and cardiac anxiety, and fear of unfavorable pregnancy outcomes were strongly related to lower QoL (R2 = 0.525). CONCLUSION Postpartum QoL is linked to physical and mental health in women with heart disease. Our study emphasizes the need for healthcare workers to recognize the unique characteristics of these women while developing and implementing comprehensive management approaches during their maternity care.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Postpartum quality of life and mental health in women with heart disease: Integrated clinical communication and treatment

Liu,

Wang,

2024

World J Psychiatry

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“…In addition, these women suffer notable psychological stress. Following a diagnosis, they desire to parent [6][7][8][9][10][11] but lack autonomy and control over pregnancy decisions [7,12]. When experiencing cardiac symptoms during and after pregnancy, they feel helpless, isolated, frightened, and vulnerable [7,10,11,[13][14][15], wondering about their safety and their children's health and care [6-8, 10-12, 16].…”

Section: Introductionmentioning

confidence: 99%

“…Following a diagnosis, they desire to parent [6][7][8][9][10][11] but lack autonomy and control over pregnancy decisions [7,12]. When experiencing cardiac symptoms during and after pregnancy, they feel helpless, isolated, frightened, and vulnerable [7,10,11,[13][14][15], wondering about their safety and their children's health and care [6-8, 10-12, 16]. With complex diagnoses, people struggle to comprehend their illness fully and precisely [6,8,9,16], rely heavily on medical institutions and personnel [6,11,16], and demand more social support [7,11,16,17].…”

Section: Introductionmentioning

confidence: 99%

“…Compared to their healthy peers, women with heart disease during and after pregnancy had a reduced QoL [20][21][22], as well as physical discomfort and mental health problems [14,15,[20][21][22][23]. These issues result in decreased adherence and bad healthcare practices [10,21,23]. Existing research chie y focuses on the clinical and physiological outcomes of these pregnancies [21,24].…”

Section: Introductionmentioning

confidence: 99%

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Study on the influencing factors of postpartum quality of life in women with heart disease

Liu¹,

Wang

2023

Preprint

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Background: Heart disease women's quality of life (QoL) has been neglected. To improve clinical communication and treatment, we integrated medical data and subjective characteristics to study postpartum QoL concerns. Methods: The study assessed QoL six weeks after birth using the 12-Item Short-Form Health Survey (SF-12). The Edinburgh Postnatal Depression Scale (EPDS), Cardiac Anxiety Questionnaire (CAQ), European Heart Failure Self-Care Behavior Scale (EHFScBS), and a self-designed questionnaire based on earlier research were also used to assess patient characteristics. Patient system data were collected. Prediction models were created using multiple linear regression. Results: This retrospective study examined 105 postpartum cardiac patients' QoL. Postpartum QoL scores were lower (90.69 ± 13.82) than those of general women, with physical component scores (41.09 ± 9.91) lower than mental component scores (49.60 ± 14.87). Postpartum depression (33.3%), moderate anxiety (37.14%), pregnancy concerns (57.14%), offspring heart problems (57.14%), and life expectancy worries (48.6%) were all prevalent. No previous cardiac surgery, multiparity, higher sadness and cardiac anxiety, and fear of unfavorable pregnancy outcomes were strongly related to lower QoL (R2 value = 0.525). Conclusions: Heart disease patients' postpartum QoL is linked to their physical and mental health. Our study emphasizes the need for healthcare workers to recognize and address the unique characteristics of these women while developing and implementing comprehensive management approaches during their maternity care journey.

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Exploring the lived experiences of women with congenital heart disease during pregnancy: A phenomenological study

Cited by 2 publications

References 26 publications

Postpartum quality of life and mental health in women with heart disease: Integrated clinical communication and treatment

Postpartum quality of life and mental health in women with heart disease: Integrated clinical communication and treatment

Study on the influencing factors of postpartum quality of life in women with heart disease

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