Exploring the influence of Internet‐based caregiver support on experiences of isolation for older spouse caregivers in rural areas: a qualitative interview study

Blusi, Madeleine; Kristiansen, Lisbeth; Jong, Mats

doi:10.1111/opn.12074

Cited by 32 publications

(46 citation statements)

References 26 publications

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“…Six studies (43%) included qualitative outcomes. Blusi et al (), Blusi, Kristiansen, and Jong () used interviews in which they asked to participants to speak freely about their experiences of using internet‐based caregiver support. Lundberg () asked questions related to the caregivers’ appreciation of life.…”

Section: Resultsmentioning

confidence: 99%

“…Alves et al () in their intervention provided information in their sessions'; thanks to a professional expert on the theme of each session. Blusi et al (), Blusi et al () in their intervention provided information and educational software in order to ameliorate caregivers’ skills. The intervention of Danzl et al (), with the Kentucky Appalachian Rural Rehabilitation Network, aimed to disseminate information to caregivers of stroke survivors through verbal, visual and written methods.…”

Section: Resultsmentioning

confidence: 99%

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Supporting family caregiver engagement in the care of old persons living in hard to reach communities: A scoping review

Morelli

Barello

Mayan

et al. 2019

Health Soc Care Community

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Today, 8.5% of the world's population is 65 and over, and this statistic will reach 17% by 2050 (He et al., U.S. Census Bureau, international population reports, P95/16‐1, An ageing world: 2015, U.S., 2016). They are the people who, with increasing age, will find themselves more closely interfacing with the national health system, which in many countries shows strong imbalances between rural and urban areas. In this context, a fundamental role is played by the relatives who find themselves becoming informal caregivers to compensate for lack of services. To date, however, little has been done to help these people. In this article, we want to identify the nature and extent of research evidence that had its objective to help informal caregivers in rural, hard to reach areas (Grant & Booth, Health Information & Libraries Journal, 2009, 26, 91). Following the approach set out by Arksey and O’Malley (International Journal of Social Research Methodology, 2005, 8, 19), we conducted a scoping review in May 2018 and closed the review with an update in September 2018. We identified 14 studies published from 2012, the European Year of Active Ageing, promoted by the European Commission, which had three domains of implementation: emotional support to decrease the emotional burden of caregivers, educational support to increase their skills, and organisational support to improve the mobility of caregivers and carereceivers. Although informal caregivers play a fundamental role in many countries, the studies that have been involved in alleviating their caring burden are few; nevertheless, they provide interesting indications. This lack of attention confirms how this portion of the population is still neglected by scientific research and risks having unequal access to health and social care. Future research is needed, not only to create and improve services to caregivers in rural, hard to reach areas, but also to evaluate and focus on the participation and the engagement of caregivers in the co‐design of these services.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Supporting family caregiver engagement in the care of old persons living in hard to reach communities: A scoping review

Morelli

Barello

Mayan

et al. 2019

Health Soc Care Community

View full text Add to dashboard Cite

show abstract

“…Finally, there may be a lack of resources to create and maintain formal in-person support groups in rural areas, particularly for individuals with MCI, which is a less commonly applied diagnosis than AD. Connecting with support groups via the Internet have been shown to reduce rural-dwelling caregiver’s feelings of isolation (Blusi, Kristiansen, & Jong, 2015), and should be considered as an option to improve social connections and build support systems where in-person support groups may not be possible or desirable. The Alzheimer’s Association also offers online message boards and chat rooms (Alzheimer’s Association, 2016) that allows for anonymity and accessibility for those with privacy or travel concerns.…”

Section: Discussionmentioning

confidence: 99%

Perceived Social Determinants of Health Among Older, Rural-Dwelling Adults with Early-Stage Cognitive Impairment

et al. 2017

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Limited access to resources and delayed detection of subtle cognitive changes may negatively impact the long-term cognitive health of rural-dwelling adults. This study explored perceived social determinants of health among older, rural-dwelling adults with early-stage cognitive impairment. Semi-structured interviews were conducted with older, rural-dwelling adults with early-stage cognitive impairment and their care partners. Thematic content analysis was performed. Participants (n = 9) were 73.7 ± 6.0 years of age with 14.2 ± 3.1 years of education; care partners (n = 10) were 70.9 ± 7.4 years of age with 15.6 ± 2.3 years of education. Data analysis revealed six themes: Staying active, Eating well, Living with cognitive changes, Living rural, Connecting with neighbors and community, and Relying on children. Dyads’ depictions of perceived social determinants of health focused on the adoption of a healthy lifestyle, description of relationships, and advantages of living in a rural area. Emergent themes may be used to promote adoption of self-management and prevention behaviors, particularly lifestyle changes.

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“…One reason for including a control group in this study was to investigate if the highly positive outcome of previously published articles about e-health caregiver support may have other origins than the e-health service itself [10,15,16]. With the research in this article we wanted to inquire more deeply into usage patterns to find possible explanations.…”

Section: Discussionmentioning

confidence: 99%

“…A full description of the original study design and previous clinical results have been previously reported [10,15,16]. This study refers to long-term follow up after 1.5 years.…”

Section: Methodsmentioning

confidence: 99%

Older People Using e-Health Services—Exploring Frequency of Use and Associations with Perceived Benefits for Spouse Caregivers

2016

Self Cite

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ICT, information-and communication technologies, and e-health services are essential for meeting future care demands. Greater knowledge regarding the implementation of e-health services in long-term care for older people is needed. The purpose of the study was to explore older people's use of e-health services and associations between frequency of use and perceived benefits. In the longitudinal comparative intervention study (n = 65), intervention group participants (n = 42) used an e-health service for 1.5 years. A control group (n = 23) used similar services provided in a traditional manner. Data was collected through questionnaires and analyzed using linear and logistic regressions. Although general use of the Internet was similar in both groups, the e-health group perceived significantly higher benefits. The component information-and education programs, developed specifically for the e-health service, had the highest association with benefits. Conclusion: e-health services targeted at supporting older people who care for a spouse at home can provide benefits which most likely will not be obtained without participation in an organized e-service. Care professionals play an essential role in encouraging spouse caregivers to become e-service users.

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Exploring the influence of Internet‐based caregiver support on experiences of isolation for older spouse caregivers in rural areas: a qualitative interview study

Abstract: Internet-based services ought to be an option for caregiver support in rural areas as it may reduce feelings of isolation for older spouse caregivers.

Cited by 32 publications

References 26 publications

Supporting family caregiver engagement in the care of old persons living in hard to reach communities: A scoping review

Supporting family caregiver engagement in the care of old persons living in hard to reach communities: A scoping review

Perceived Social Determinants of Health Among Older, Rural-Dwelling Adults with Early-Stage Cognitive Impairment

Older People Using e-Health Services—Exploring Frequency of Use and Associations with Perceived Benefits for Spouse Caregivers

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