Exploring the digital support needs of caregivers of people with serious mental illness

Siddiqui, Farheen; Varghese, Delvin; Singh, Pushpendra; Bayyavarapu, Sunita Bapuji; Lindsay, Stephen; Chandrasekara, Dharshani; Kulkarni, Prashant; Wu, Ling; Alshehri, Taghreed; Olivier, Patrick

doi:10.1145/3544548.3580674

Search citation statements

Order By: Relevance

Paper Sections

Select...

Citation Types

Supporting

Mentioning

Contrasting

Year Published

2024

Publication Types

Select...

Other2

Article1

Relationship

Self Cite0

Independent3

Authors

Journals

Cited by 3 publications

References 110 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

Patient Perspectives on AI-Driven Predictions of Schizophrenia Relapses: Understanding Concerns and Opportunities for Self-Care and Treatment

Yoo,

Woo,

Nguyen

et al. 2024

Proceedings of the CHI Conference on Human Factors in Computing Systems

View full text Add to dashboard Cite

Patient Perspectives on AI-Driven Predictions of Schizophrenia Relapses: Understanding Concerns and Opportunities for Self-Care and Treatment

Yoo,

Woo,

Nguyen

et al. 2024

Proceedings of the CHI Conference on Human Factors in Computing Systems

View full text Add to dashboard Cite

"Unrest and trauma stays with you!": Navigating mental health and professional service-seeking in Kashmir

Wani,

Joshi,

Nahvi

et al. 2024

Proceedings of the CHI Conference on Human Factors in Computing Systems

View full text Add to dashboard Cite

Emotion Work in Caregiving: The Role of Technology to Support Informal Caregivers of Persons Living With Dementia

Smriti,

Wang,

Huh-Yoo

2024

Proc. ACM Hum.-Comput. Interact.

View full text Add to dashboard Cite

The CSCW and HCI community has increasingly examined ways to support informal caregivers through technology, given the increasing burden and its consequences on caregivers' emotional and physical health. In this paper, we interviewed 12 informal caregivers of Persons Living With Dementia (PLWD) to understand their needs and current coping strategies for overcoming caregiving burden, specifically around emotion work. The caregivers associated different personal meanings with caregiving. Participants wanted technology to take over some of the utilitarian, mundane caregiving tasks. At the same time, they did not want technology to take over the tasks that fostered personal connections with PLWD. As the disease progressed, caregivers started to lose their perceived bond with PLWD, making it more challenging to juggle between rewarding, positive emotions with negative experiences. We discuss such complexity of emotion work using the notion of Invisible Work to understand when technology should or should not support the emotion work engaged in informal caregiving.

show abstract

Exploring the digital support needs of caregivers of people with serious mental illness

Cited by 3 publications

References 110 publications

Patient Perspectives on AI-Driven Predictions of Schizophrenia Relapses: Understanding Concerns and Opportunities for Self-Care and Treatment

Patient Perspectives on AI-Driven Predictions of Schizophrenia Relapses: Understanding Concerns and Opportunities for Self-Care and Treatment

"Unrest and trauma stays with you!": Navigating mental health and professional service-seeking in Kashmir

Emotion Work in Caregiving: The Role of Technology to Support Informal Caregivers of Persons Living With Dementia

Contact Info

Product

Resources

About