Exploring telemonitoring and self-management by patients with chronic obstructive pulmonary disease: A qualitative study embedded in a randomized controlled trial

Fairbrother, Peter; Pinnock, Hilary; Hanley, James A.; McCloughan, Lucy; Sheikh, Aziz; Pagliari, Claudia; McKinstry, Brian

doi:10.1016/j.pec.2013.04.003

Cited by 93 publications

(151 citation statements)

References 28 publications

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“…This varied depending on the social environment the stroke survivor inhabited and other factors, such as age One study investigated patients' and carers' problems after stroke to inform the development of a community stroke support service. 97 Stroke patients' problems were diverse, complex, and changed over time; initially practical, and, later, psychological Peoples 2011 (p. 168) 67 The major psychological support valued by the informants included giving them reassurance and a sense of security, offering verbal encouragement, listening to their worries, showing a caring attitude and respecting them as individuals (Lui, 1999) (32) Reed 2012 (p. 558) 68 The majority of studies talked about the long-term (multiple year) nature of recovery and issues with coming to terms psychologically with the losses suffered through stroke…”

Section: Environment Vulnerabilitymentioning

confidence: 99%

A rapid synthesis of the evidence on interventions supporting self-management for people with long-term conditions: PRISMS – Practical systematic RevIew of Self-Management Support for long-term conditions

Taylor

Pinnock

Epiphaniou

et al. 2014

Health Services and Delivery Research

Self Cite

336

451

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BackgroundDespite robust evidence concerning self-management for some long-term conditions (LTCs), others lack research explicitly on self-management and, consequently, some patient groups may be overlooked.AimTo undertake a rapid, systematic overview of the evidence on self-management support for LTCs to inform health-care commissioners and providers about what works, for whom, and in what contexts.MethodsSelf-management is ‘the tasks . . . individuals must undertake to live with one or more chronic conditions . . . [including] . . . having the confidence to deal with medical management, role management and emotional management of their conditions’. We convened an expert workshop and identified characteristics of LTCs potentially of relevance to self-management and 14 diverse exemplar LTCs (stroke, asthma, type 2 diabetes mellitus, depression, chronic obstructive pulmonary disease, chronic kidney disease, dementia, epilepsy, hypertension, inflammatory arthropathies, irritable bowel syndrome, low back pain, progressive neurological disorders and type 1 diabetes mellitus). For each LTC we conducted systematic overviews of systematic reviews of randomised controlled trials (RCTs) of self-management support interventions (‘quantitative meta-reviews’); and systematic overviews of systematic reviews of qualitative studies of patients’ experiences relating to self-management (‘qualitative meta-reviews’). We also conducted an original systematic review of implementation studies of self-management support in the LTCs. We synthesised all our data considering the different characteristics of LTCs. In parallel, we developed a taxonomy of the potential components of self-management support.ResultsWe included 30 qualitative systematic reviews (including 515 unique studies), 102 quantitative systematic reviews (including 969 RCTs), and 61 studies in the implementation systematic review. Effective self-management support interventions are multifaceted, should be tailored to the individual, their culture and beliefs, a specific LTC and position on the disease trajectory, and underpinned by a collaborative/communicative relationship between the patient and health-care professional (HCP) within the context of a health-care organisation that actively promotes self-management. Self-management support is a complex intervention and although many components were described and trialled in the studies no single component stood out as more important than any other. Core components include (1) provision of education about the LTC, recognising the importance of understanding patients’ pre-existing knowledge and beliefs about their LTC; (2) psychological strategies to support adjustment to life with a LTC; (3) strategies specifically to support adherence to treatments; (4) practical support tailored to the specific LTC, including support around activities of daily living for disabling conditions, action plans in conditions subject to marked exacerbations, intensive disease-specific training to enable self-management of specific clinical tasks; and (5) social support as appropriate. Implementation requires a whole-systems approach which intervenes at the level of the patient, the HCP and the organisation. The health-care organisation is responsible for providing the means (both training and time/material resources) to enable HCPs to implement, and patients to benefit from, self-management support, regularly evaluating self-management processes and clinical outcomes. More widely there is a societal need to address public understanding of LTCs. The lack of public story for many conditions impacted on patient help-seeking behaviour and public perceptions of need.ConclusionsSupporting self-management is inseparable from the high-quality care for LTCs. Commissioners and health-care providers should promote a culture of actively supporting self-management as a normal, expected, monitored and rewarded aspect of care. Further research is needed to understand how health service managers and staff can achieve this culture change in their health-care organisations.Study registrationThis study is registered as PROSPERO CRD42012002898.FundingThe National Institute for Health Research Health Services and Delivery Research programme.

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Section: Environment Vulnerabilitymentioning

confidence: 99%

A rapid synthesis of the evidence on interventions supporting self-management for people with long-term conditions: PRISMS – Practical systematic RevIew of Self-Management Support for long-term conditions

Taylor

Pinnock

Epiphaniou

et al. 2014

Health Services and Delivery Research

Self Cite

336

451

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“…There has been a substantial increase in the body of literature to suggest the effects of self-management interventions on rehabilitation and recovery across a variety of chronic conditions such as stroke (Jones et al, 2009), lymphoedema (McGowan et al, 2013), chronic obstructive pulmonary disease (Fairbrother et al, 2013;Bourbeau et al, 2013) and vascular risk reduction (Sol et al, 2005;Sol et al, 2008;Mead et al, 2010;Maitland and Chalmers, 2010).…”

Section: Introductionmentioning

confidence: 99%

The effectiveness and experience of self-management following acute coronary syndrome: A review of the literature

Guo

Harris

2016

International Journal of Nursing Studies

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Please cite this article as: GUO, P., HARRIS, R.,The effectiveness and experience of self-management following acute coronary syndrome: a review of the literature, International Journal of Nursing Studies (2016), http://dx.doi.org/10. 1016/j.ijnurstu.2016.05.008 This is a PDF file of an unedited manuscript that has been accepted for publication. As a service to our customers we are providing this early version of the manuscript. The manuscript will undergo copyediting, typesetting, and review of the resulting proof before it is published in its final form. Please note that during the production process errors may be discovered which could affect the content, and all legal disclaimers that apply to the journal pertain. Conflicts of interestNone. Funding statementNo external funding.Page 3  Evidence has suggested the effects of self-management interventions on rehabilitation and recovery across a variety of chronic conditions. However, to date less is known about the extent of the literature on self-management for individuals following an acute cardiac event. Despite widespread use of the term 'self-management' and growing interest in the concept, defining how self-management is manifested in terms of observable behaviours remains challenging in the field of health and social care. What this paper adds? Evidence showed varying effects of the self-management interventions among people following acute coronary syndrome when compared with usual care.Most studies in this review were conducted in western countries and quantitative studies were UK centric. Therefore, more research is needed to explore self-management among people following acute coronary syndrome within different health care contexts.

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“…eHealth terminology and functions Different terms were used for the eHealth application: Telerehabilitation [24], Telecare [25,26], Telemonitoring [27], Telemedicine consultation [28], Video Telehealth [29], Video Teleconsultation [30], Internetintervention [31], eVisit [32], mobile health [33] and digital communication [34]. These various applications served different functions: supporting exercise [24,25,33] (video)consultation [26,28,30,34], supporting self-management [26,27,31], triage [29], and primary care [32].…”

Section: General Characteristicsmentioning

confidence: 99%

“…These various applications served different functions: supporting exercise [24,25,33] (video)consultation [26,28,30,34], supporting self-management [26,27,31], triage [29], and primary care [32].…”

Section: General Characteristicsmentioning

confidence: 99%

“…Study participants were patients [24,28,[30][31][32][33], healthcare professionals [26]or a mix of patients and healthcare professionals [25,27,29,34]. Eight studies involved an intervention targeting patients with a chronic health problem [24][25][26][27]30,31,33,34] Study design and quality Eight studies had a quantitative design, of which two studies were randomised controlled trials (RCTs).…”

Section: Study Participantsmentioning

confidence: 99%

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eHealth Apps Replacing or Complementing Health Care Contacts: Scoping Review on Adverse Effects (Preprint)

Stevens¹,

Sande²,

Beijer³

et al. 2018

Preprint

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Background:The use of eHealth has increased tremendously in recent years. eHealth is generally considered to have a positive effect on healthcare quality and to be a promising alternative for face-to-face healthcare contacts. Surprisingly little is known about possible adverse effects of eHealth applications. Objective:We conducted a scoping review on empirical research into adverse effects of eHealth applications that aim to deliver healthcare on a distance. We investigated if adverse effects were reported and the nature and quality of research into these possible adverse effects. Methods:For this scoping review, we followed the five steps of Arksey and O'Malley's scoping review methodology. We examined the literature between December 2012 and August 2017 in the following databases: PubMed, CINAHL, Web of Science and the Cochrane Library. Each paper was independently screened by at least two authors; differences were resolved through consensus development. Study characteristics were extracted. The methodological quality of the studies was assessed using the Critical Appraisal Skills Programme (CASP) lists. Results related to the research question were described and categorized. Results:Our search identified 79 papers that were potentially relevant; 11 studies met our inclusion criteria after screening. These studies differed in many ways and the majority was characterized by small research populations and low study quality. Despite the shortage of solid research, we found some indications of possible adverse effects Conclusions:There is a lack of high-quality empirical research on adverse effects of eHealth applications replacing or complementing face-to-face care. While the development of eHealth applications is ongoing, the knowledge with regard to possible adverse effects is limited. The available research focuses often on efficacy, added value, implementation issues, use and satisfaction, whereas adverse effects are underexposed. A better understanding of possible adverse effects might be a starting point to improve the positive impact of eHealth-based health care delivery.

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Exploring telemonitoring and self-management by patients with chronic obstructive pulmonary disease: A qualitative study embedded in a randomized controlled trial

Cited by 93 publications

References 28 publications

A rapid synthesis of the evidence on interventions supporting self-management for people with long-term conditions: PRISMS – Practical systematic RevIew of Self-Management Support for long-term conditions

A rapid synthesis of the evidence on interventions supporting self-management for people with long-term conditions: PRISMS – Practical systematic RevIew of Self-Management Support for long-term conditions

The effectiveness and experience of self-management following acute coronary syndrome: A review of the literature

eHealth Apps Replacing or Complementing Health Care Contacts: Scoping Review on Adverse Effects (Preprint)

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