Exploring Preterm Mothers' Personal Narratives

Adkins, Cherie S.; Doheny, Kim K.

doi:10.1097/ans.0000000000000150

Cited by 7 publications

(11 citation statements)

References 40 publications

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“…Unlike parents of healthy newborns, parents of premature infants begin to develop their parental identity in and through their experience in the NICU. [23][24][25] The constant uncertainty present in the NICU environment and the process of accepting such uncertainty in a view of the future likely drives this identity development parallel to Mishel's description of patients living with chronic illness. 22 Those parents within our study whose infant had been discharged from the NICU relayed different struggles that they faced in their child's life after hospital discharge (e.g., feeding difficulties and developmental delays) and often described processing and managing the prognostic uncertainty associated with those struggles in a way that they had adapted while in the NICU.…”

Section: Discussionmentioning

confidence: 99%

Living with the Unknown: A Qualitative Study of Parental Experience of Prognostic Uncertainty in the Neonatal Intensive Care Unit

et al. 2020

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Objective This study aims to characterize the experience of prognostic uncertainty for neonatal intensive care unit (NICU) parents. Study Design We conducted a qualitative interview study of current and former NICU parents regarding their experience with prognostic uncertainty in the NICU. Interviews were transcribed and analyzed using a grounded theory methodology. Results Twenty-four parents were interviewed before achieving thematic saturation. Three phases of the parental experience of prognostic uncertainty emerged: shock, gray daze, and looking forward. These phases often, but not always, occurred sequentially. In shock, parents felt overwhelmed by uncertainty and were unable to visualize a future for their family. In gray daze, parents felt frustrated by the continued uncertainty. While accepting the possibility of a future for their family, they could not conceptualize a path by which to achieve it. In looking forward, parents accepted uncertainty as inevitable and incorporated it into their vision of the future. Conclusion While each parent experienced the prognostic uncertainty in the neonatal intensive care unit in their own way, we found three common experiential phases. By understanding how a parent experiences prognostic uncertainty in these phases, providers may become better able to communicate and form therapeutic relationships with parents.

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Section: Discussionmentioning

confidence: 99%

Living with the Unknown: A Qualitative Study of Parental Experience of Prognostic Uncertainty in the Neonatal Intensive Care Unit

et al. 2020

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“…조산은 임신 37주 전에 일어난 출산으로 [1], 조산아는 발달장애 및 학습능력장애, 행동장애 등의 동반으로 [2,3] [2]. 조산의 위험요인은 비정상적 장 기능, 28주 이전 조기 진통을 진단받은 시기, 사회적 지지 부족 [4], 조기 진통, 조기 양막파열, 건강하지 못한 생활습관, 의학적 위험요인, 생식기계 위험요인 등으로 다양하고 [5], 높은 산전 스트레스나 높 은 불안으로 위험도가 높아지며 [4], 예상하지 못한 상태에서 급박 하게 진행되므로 근거 중심 예방간호가 필요하다 [6].…”

Section: 연구 필요성unclassified

Visualization of unstructured personal narratives of perterm birth using text network analysis

Kim¹

2020

Korean J Women Health Nurs

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This study aimed to identify the components of preterm birth (PTB) through women's personal narratives and to visualize clinical symptom expressions (CSEs). Methods: The participants were 11 women who gave birth before 37 weeks of gestational age. Personal narratives were collected by interactive unstructured storytelling via individual interviews, from August 8 to December 4, 2019 after receiving approval of the Institutional Review Board. The textual data were converted to PDF and analyzed using the MAXQDA program (VERBI Software). Results: The participants' mean age was 34.6 (±2.98) years, and five participants had a spontaneous vaginal birth. The following nine components of PTB were identified: obstetric condition, emotional condition, physical condition, medical condition, hospital environment, life-related stress, pregnancy-related stress, spousal support, and informational support. The top three codes were preterm labor, personal characteristics, and premature rupture of membrane, and the codes found for more than half of the participants were short cervix, fear of PTB, concern about fetal well-being, sleep difficulty, insufficient spousal and informational support, and physical difficulties. The top six CSEs were stress, hydramnios, false labor, concern about fetal wellbeing, true labor pain, and uterine contraction. "Stress" was ranked first in terms of frequency and "uterine contraction" had individual attributes. Conclusion: The text network analysis of narratives from women who gave birth preterm yielded nine PTB components and six CSEs. These nine components should be included for developing a reliable and valid scale for PTB risk and stress. The CSEs can be applied for assessing preterm labor, as well as considered as strategies for students in women's health nursing practicum.

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“…The importance of basic hope should by no means be limited to its role as a factor helping the woman adapt to the experience of preterm birth because it also has a long-term effect on her future relations with the child. As a personal resource and the foundation of caring, positive bonds with the child, basic hope allows the woman to achieve mature motherhood despite the difficult context of preterm birth (Adkins and Doheny, 2017).…”

Section: Basic Hope Statisticsmentioning

confidence: 99%

Basic hope in preterm mothers

Mariańczyk¹,

Libera²,

Libera³

et al. 2020

Psychiatr Psychol Klin

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The study sought to determine the possibility of preterm mothers' basic hope changing between childbirth and 12-month follow-up, and the magnitude of potential changes. To this end, the levels of basic hope were measured at these two time points. Also investigated was whether changes in basic hope were associated with the anticipation of preterm birth, the childbirth method, planned pregnancy, and plural pregnancy. Basic hope is a relatively stable component of personality, but its level can vary over one's lifetime under the influence of different experiences, especially life-changing ones. Basic hope is a regulatory factor helping people constructively deal with difficult situations. Materials and methods: A sample of 62 preterm mothers were surveyed postpartum and at 12-month follow-up using socio-demographic and medical questionnaires, and the Basic Hope Inventory (BHI-12). Results: Both after childbirth and 12 months afterwards, the participants' results on basic hope were average, and did not differ significantly. However, the results' trend toward statistical significance indicated that at 12 months the level of basic hope was higher in the participants who did not consider the possibility of becoming preterm mothers. Conclusions: The level of basic hope does not significantly change in preterm mothers in the twelve months after childbirth.

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Exploring Preterm Mothers' Personal Narratives

Cited by 7 publications

References 40 publications

Living with the Unknown: A Qualitative Study of Parental Experience of Prognostic Uncertainty in the Neonatal Intensive Care Unit

Living with the Unknown: A Qualitative Study of Parental Experience of Prognostic Uncertainty in the Neonatal Intensive Care Unit

Visualization of unstructured personal narratives of perterm birth using text network analysis

Basic hope in preterm mothers

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