Exploring Perspectives of Individuals with Intellectual Disabilities and Histories of Challenging Behaviors about Family Relationships: An Emergent Topic in a Grounded Theory Focus Group Study

Brown, Julie F.; Hamilton-Mason, Johnnie; Maramaldi, Peter; Barnhill, L. Jarrett

doi:10.1080/19315864.2016.1181813

Cited by 3 publications

(4 citation statements)

References 39 publications

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“…The current paper emerged from a broader qualitative constructivist grounded theory (CTG) study that used focus groups to explore consumers' perceptions about their relationships [9]. The original study included 30 individuals diagnosed with ID (moderate or mild), at least one mental health diagnosis, and histories of CBs (e.g., aggression, self-injury, sexual offending, and arson) who participated in five, 90-minute focus groups.…”

Section: Context Of Analysismentioning

confidence: 99%

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2018

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Section: Context Of Analysismentioning

confidence: 99%

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2018

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“…Regardless of the severity of intellectual disability, the degree of health and well-being of family members can be affected with time. There is evidence from studies that have counteracted these findings and have shown how family carers have been strengthened and become more supported, confident, and competent in protecting the care recipients, thereby continuing with their caring tasks for much longer [ 11 , 12 ]. A study conducted by the first author [ 13 ] generated findings to identify the general and future care support needs for adult persons with mild to moderate intellectual disability and how family carers would be expected to take care of them.…”

Section: Introductionmentioning

confidence: 99%

“…Furthermore, as family carers grow older, caregiving can be more difficult [ 8 , 15 ]. The literature also points to the need to understand family relationships, dynamics, and harmony with persons with moderate or mild ID, histories of challenging behaviours, and their family members [ 12 ]. This refers to an examination of the dynamics, harmony, and processes inherent in sustaining positive family relationships (e.g., reciprocity, flexibility, accommodation, trusting, and expressing affection) versus relationship barriers (e.g., victimizing and behavioural dyscontrol) that can severe family relationships in each household.…”

Section: Introductionmentioning

confidence: 99%

Qualitative Protocol of Chinese Parents and Siblings Experiences of Managing Challenging Behaviours of Adult Persons with Intellectual Disability in Hong Kong and Northern China

Low,

Kwong,

Wang

et al. 2024

IJERPH

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Background: While the literature has highlighted the immense challenges in caring for family members, it is still unclear what the needs of family carers of persons with intellectual disability and challenging behaviours are and what has worked for them. This study aims to examine 60 parents’ and siblings’ experiences in managing the challenging behaviours of their adult family member with intellectual disability whilst living at home. Methods: A qualitative grounded theory approach using semi-structured interviews will be adopted. Purposive sampling will be used to recruit family carers who live with adult persons with intellectual disability and use one community service in Hong Kong. Three special schools for persons with intellectual disability from northern China will be approached. Results: This study will aim to provide an in-depth understanding of the experiences of family carers and compare the different circumstances they face when managing the challenging behaviours of their adult relatives with intellectual disability in their family home. Conclusions: Although this study targets adults with intellectual disability, the findings will provide a point of reference for adolescents and younger persons who exhibit demanding and challenging behaviours and live with their families. Recommendations can guide the development of appropriate strategies to strengthen services for family carers.

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“…Brown et al [1] conducted a constructivist grounded theory qualitative study that examined perspectives of individuals with dual-diagnosis and histories of challenging behaviors (CB) about their family relationships. The original study included thirty individuals diagnosed with a.…”

Section: Introductionmentioning

confidence: 99%

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Global Journal of Intellectual & Developmental Disabilitiesinsights, but their abilities to articulate them may be lacking, is different than a perspective that individuals with ID lack insight and cannot understand abstract concepts.Misattributing communication challenges and executive functioning difficulties that influence the transfer of personal perspectives as a lack of globalized intrinsic capacity may fuel power differentials on a micro-level and marginalization of this population on a macro-level. It possible that break-downs within bi-directional communication patterns contribute this populations' vulnerability to mental health problems, as well as, CBs. A better understanding of positive and negative communication transactions may lead support staff and mental health practitioners to provide communication scaffolding to individuals with ID to help maximize the demonstration of cognitive strengths and reduce CBs.

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Exploring Perspectives of Individuals with Intellectual Disabilities and Histories of Challenging Behaviors about Family Relationships: An Emergent Topic in a Grounded Theory Focus Group Study

Cited by 3 publications

References 39 publications

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Qualitative Protocol of Chinese Parents and Siblings Experiences of Managing Challenging Behaviours of Adult Persons with Intellectual Disability in Hong Kong and Northern China

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