Exploring Parents’ Use of Strategies To Promote Social Participation of School-Age Children With Acquired Brain Injuries

Bedell, Gary; Cohn, Ellen S.; Dumas, Helene M.

doi:10.5014/ajot.59.3.273

Cited by 77 publications

(75 citation statements)

References 40 publications

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“…Some of these strategies directly related to the sensory factors of the activity or environment, whereas others were intended to reduce behavioral responses associated with the sensory factors through preparation, routine, and increasing the child's perception of control. Bedell, Cohn, and Dumas (2005) reported similar findings in a study of parents with children who had acquired brain injuries. Although several of the strategies were similar, the concept of anticipatory planning or preparation was central to both studies.…”

Section: Discussionsupporting

confidence: 71%

Caregivers’ Perspectives on the Sensory Environment and Participation in Daily Activities of Children With Autism Spectrum Disorder

Pfeiffer

Coster

Snethen

et al. 2017

The American Journal of Occupational Therapy

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The purpose of this phenomenological study was to obtain caregivers’ perspectives on the impact of the sensory environment on participation in daily activities of their young children with autism spectrum disorders (ASD). Interviews were completed with 34 caregivers of children with ASD ages 3–7 yr. Results strongly suggest that parents and caregivers were pivotal in enabling participation for their children through the implementation of specific strategies and a parental decision-making process. The decision-making process considered amount of effort necessary to support participation and whether participation in a given activity was perceived as essential or nonessential. Strategies enabled participation and reduced the effort required to support the child’s participation. Strategies either directly related to the sensory factors of the environment or focused on reducing behavioral responses associated with sensory factors. In this study, we identified important considerations to enhance participation in the home and community environments for children with ASD.

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Section: Discussionsupporting

confidence: 71%

Caregivers’ Perspectives on the Sensory Environment and Participation in Daily Activities of Children With Autism Spectrum Disorder

Pfeiffer

Coster

Snethen

et al. 2017

The American Journal of Occupational Therapy

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show abstract

“…Even in the case of drug studies, an over-reliance on RCTs is counter to the goals of the initial EBP guidelines by Guyatt and colleagues (Guyatt et al, 2000). A narrow definition of "evidence" also excludes potentially useful information from qualitative studies, which have made an important contribution in areas such as the study of long-term psychosocial outcomes from TBI (e.g., Bedell, Cohn, & Dumas, 2005).…”

Section: Group Intervention Studiesmentioning

confidence: 99%

Group Intervention Studies in the Cognitive Rehabilitation of Individuals with Traumatic Brain Injury: Challenges Faced by Researchers

Kennedy

Turkstra

2006

Neuropsychol Rev

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There are many factors to consider in designing and interpreting group studies. These include both analytic considerations, such as the selection of valid and reliable outcome measures, and subjective considerations, such as the selection of outcomes that are perceived to be important to participants and researchers. In this paper, we review key issues to consider in the design of group studies in neurorehabilitation, using problem-solving studies in traumatic brain injury as an example.

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“…Previous studies have shown that during daily routines, caregivers implement strategies matched to child characteristics for children with acquired brain injury (Bedell, Cohn, & Dumas, 2005), attention deficit hyperactivity disorder (Segal, 2000), and developmental delays (Bernheimer & Weisner, 2007).…”

mentioning

confidence: 99%

Development and Pilot of the Caregiver Strategies Inventory

Kirby

Little

Schultz

et al. 2016

The American Journal of Occupational Therapy

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MeSH TERMSadaptation, psychological autism spectrum disorder caregivers perceptionChildren with autism spectrum disorder often demonstrate unusual behavioral responses to sensory stimuli (i.e., sensory features). To manage everyday activities, caregivers may implement strategies to address these features during family routines. However, investigation of specific strategies used by caregivers is limited by the lack of empirically developed measures. In this study, we describe the development and pilot results of the Caregiver Strategies Inventory (CSI), a supplement to the Sensory Experiences Questionnaire Version 3.0 (SEQ 3.0; Baranek, 2009) that measures caregivers' strategies in response to their children's sensory features. Three conceptually derived and empirically grounded strategy types were tested: cognitive-behavioral, sensory-perceptual, and avoidance.Results indicated that the CSI demonstrated good internal consistency and that strategy use was related to child age and cognition. Moreover, parent feedback after completing the CSI supported its utility and social validity. The CSI may be used alongside the SEQ 3.0 to facilitate a family-centered approach to assessment and intervention planning.

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Exploring Parents’ Use of Strategies To Promote Social Participation of School-Age Children With Acquired Brain Injuries

Abstract: Understanding how families use and integrate strategies within the context of their daily lives and what factors influence strategy use may provide practitioners with insights needed to support families in promoting their children's social participation.

Cited by 77 publications

References 40 publications

Caregivers’ Perspectives on the Sensory Environment and Participation in Daily Activities of Children With Autism Spectrum Disorder

Caregivers’ Perspectives on the Sensory Environment and Participation in Daily Activities of Children With Autism Spectrum Disorder

Group Intervention Studies in the Cognitive Rehabilitation of Individuals with Traumatic Brain Injury: Challenges Faced by Researchers

Development and Pilot of the Caregiver Strategies Inventory

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