Exploring multi‐agency working in services to disabled children with complex healthcare needs and their families

Watson, Debby; Townsley, Ruth; Abbott, David

doi:10.1046/j.1365-2702.2002.00623.x

Cited by 56 publications

(52 citation statements)

References 12 publications

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“…The co-location of multidisciplinary teams in PCCs, which facilitates patients thanks to the concentration of different services in one facility with a single point of access, can improve the integration of patient care, ensuring a multi-perspective interpretation of patients’ needs, enabling professionals to share decisions on care and providing comprehensive and personalised care [20, 21]. Although multidisciplinary teams may also involve professionals from different organisations who work as a unique team without sharing the same practice, their co-location could represent a surplus value because it contributes to use time and resources more effectively, facilitate communication and information sharing, improve relationships between professionals and between professionals and parents [22]. …”

Section: Introductionmentioning

confidence: 99%

Is the co-location of GPs in primary care centres associated with a higher patient satisfaction? Evidence from a population survey in Italy

Bonciani

Barsanti

Murante

2017

BMC Health Serv Res

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BackgroundSeveral countries have co-located General Practitioners (GPs) in Primary Care Centres (PCCs) with other health and social care professionals in order to improve integrated care. It is not clear whether the co-location of a multidisciplinary team actually facilitates a positive patient experience concerning GP care. The aim of this study was to verify whether the co-location of GPs in PCCs is associated positively with patient satisfaction with their GP when patients have experience of a multidisciplinary team. We also investigated whether patients who frequently use health services, due to their complex needs, benefitted the most from the co-location of a multidisciplinary team.MethodsThe study used data from a population survey carried out in Tuscany (central Italy) at the beginning of 2015 to evaluate the patients’ experience and satisfaction with their GPs. Multilevel linear regression models were implemented to verify the relationship between patient satisfaction and co-location. This key explanatory variable was measured by considering both the list of GPs working in PCCs and the answers of surveyed patients who had experienced the co-location of their GP in a multidisciplinary team. We also explored the effect modification on patient satisfaction due to the use of hospitalisation, access to emergency departments and visits with specialists, by performing the multilevel modelling on two strata of patient data: frequent and non-frequent health service users.ResultsA sample of 2025 GP patients were included in the study, 757 of which were patients of GPs working in a PCC. Patient satisfaction with their GP was generally positive. Results showed that having a GP working within a PCC and the experience of the co-located multidisciplinary team were associated with a higher satisfaction (p < 0.01). For non-frequent users of health services on the other hand, the co-location of multidisciplinary team in PCCs was not significantly associated with patient satisfaction, whereas for frequent users, the strength of relationships identified in the overall model increased (p < 0.01).ConclusionThe co-location of GPs with other professionals and their joint working as experienced in PCCs seems to represent a greater benefit for patients, especially for those with complex needs who use primary care, hospitals, emergency care and specialized care frequently.

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Section: Introductionmentioning

confidence: 99%

Is the co-location of GPs in primary care centres associated with a higher patient satisfaction? Evidence from a population survey in Italy

Bonciani

Barsanti

Murante

2017

BMC Health Serv Res

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“…2002). This literature has highlighted limitations in service provision for this group, including problems with the availability, coordination and reliability of services (Kirk & Glenndinning 1999, Watson et al . 2002).…”

Section: Introductionmentioning

confidence: 99%

Families' experiences of caring for technology-dependent children: a temporal perspective

Heaton

Noyes

Sloper

et al. 2005

Health Soc Care Community

158

189

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In the present study, families' experiences of caring for a technology-dependent child were examined from a temporal perspective. This involved exploring the multiple 'technological', 'social' and 'natural' rhythms and routines around which the families' lives were variously structured. A purposive sample of 36 families with technology-dependent children who used one or more medical devices on a daily basis was recruited. Devices included feeding pumps, suction machines, dialysis machines and ventilators. Using mainly qualitative methods, children, parents and siblings were interviewed to establish what the care routines involved and how these impacted on family members. The authors found that the rhythms and routines of care varied across the sample, depending on the type and number of devices used, the individual child's needs, and who provided technical care during the day and/or at night at home and in other settings. While the children's health and quality of life benefited from the technology, the time demands of the care routines and lack of compatibility with other social and institutional timeframes had some negative implications for the children and their families, limiting their participation in school, employment and social life in general. The need to use and oversee the use of some medical technologies at night also meant that many parents suffered regular disruption to their sleep. In conclusion, the authors argue that the care of technology-dependent children at home places considerable time demands on families. Families have little or no access to suitably trained carers who can provide technical care required in the home or away from the home to give parents and the whole family a break from caring where required. More trained carers and short-term care provision, better coordination of services and improvements in the design of devices would all help to reduce the negative effects of the care routines on families.

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“…(iv) General involvement by policy-makers in research studies: Council for Science and Technology (2008), Moore et al (2011) and Rickinson, Sebba, and Edwards (2011) suggest that user engagement is crucial to maintaining dialogue and the continuous flow of ideas, ensuring that projects remain relevant and at the forefront of policy-makers' thinking. Networks of policy-makers, practitioners and researchers are also regarded as an effective way of increasing the demand for research (Gilchrist 2000;Kirst 2000;Watson et al 2002;Cooper and Levin 2010). This is because networks create ongoing social contact and dialogue, which help persuade policy-makers of the relevance of the evidence or issues, and so increase the chances that research might be used (Nutley, Walter, and Davies 2007).…”

Section: Factors Affecting the Success Of Approaches To Knowledge Adomentioning

confidence: 99%

Critique and complexity: presenting a more effective way to conceptualise the knowledge adoption process

Brown¹

2013

London Review of Education

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The process of 'knowledge adoption' is defined as the means through which policy-makers digest, accept then 'take on board' research findings. It is argued in Brown, however, that current models designed to explain knowledge adoption activity fail to fully account for the complexities that affect its operation. Within this paper, existing frameworks are explored and critiqued, and an alternative approach is presented. It is argued that this alternative conceptualisation provides a more effective explanation of the knowledge adoption process and significantly improves on extant work in this area.

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Exploring multi‐agency working in services to disabled children with complex healthcare needs and their families

Cited by 56 publications

References 12 publications

Is the co-location of GPs in primary care centres associated with a higher patient satisfaction? Evidence from a population survey in Italy

Is the co-location of GPs in primary care centres associated with a higher patient satisfaction? Evidence from a population survey in Italy

Families' experiences of caring for technology-dependent children: a temporal perspective

Critique and complexity: presenting a more effective way to conceptualise the knowledge adoption process

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