Exploring links between the concepts of Quality of Life and resilience

Lawford, J. B.; Eiser, Christine

doi:10.1080/13638490210124024

Cited by 55 publications

(37 citation statements)

References 45 publications

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“…Conducting gender-specific analysis of patient outcomes improves the comprehensiveness of evaluations (Lawford and Eiser, 2001). Most studies of HRQoL in cancer patients have focused on Western populations, and generalizing the findings of these studies to Chinese populations is problematic due to cultural differences.…”

Section: Introductionmentioning

confidence: 99%

The effect of gender on health-related quality of life and related factors in post-lobectomy lung-cancer patients

Chang

Lin

Hsu

et al. 2015

European Journal of Oncology Nursing

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Section: Introductionmentioning

confidence: 99%

The effect of gender on health-related quality of life and related factors in post-lobectomy lung-cancer patients

Chang

Lin

Hsu

et al. 2015

European Journal of Oncology Nursing

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“…QoL measures focus on daily life experiences and outcomes during childhood and adolescence and facilitate the development of interventions to support families and promote resilience, or positive adaptation, in long-term survivors with chronic disorders 9. A limited number of multidimensional patient self-report instruments have been validated to explore the child's perspective on health and well-being in paediatric cardiac populations, including the impact of a CHD on current lifestyle, past experience and future expectations 2 10–12.…”

Section: Introductionmentioning

confidence: 99%

Patient-reported quality of life outcomes for children with serious congenital heart defects

Knowles

Day

Wade

et al. 2014

Archives of Disease in Childhood

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ObjectiveTo compare patient-reported, health-related quality of life (QoL) for children with serious congenital heart defects (CHDs) and unaffected classmates and to investigate the demographic and clinical factors influencing QoL.DesignRetrospective cohort study.SettingUK National Health Service.PatientsUK-wide cohort of children with serious CHDs aged 10–14 years requiring cardiac intervention in the first year of life in one of 17 UK paediatric cardiac surgical centres operating during 1992–1995. A comparison group of classmates of similar age and sex was recruited.Main outcome measuresChild self-report of health-related QoL scores (Pediatric Quality of Life Inventory, PedsQL) and parental report of schooling and social activities.ResultsQuestionnaires were completed by 477 children with CHDs (56% boys; mean age 12.1 (SD 1.0) years) and 464 classmates (55%; 12.0 (SD 1.1) years). Children with CHDs rated QoL significantly lower than classmates (CHDs: median 78.3 (IQR 65.0–88.6); classmates: 88.0 (80.2–94.6)) and scored lower on physical (CHDs: 84.4; classmates: 93.8; difference 9.4 (7.8 to 10.9)) and psychosocial functioning subscales (CHDs: 76.7, classmates: 85.0; difference 8.3 (6.0 to 10.6)). Cardiac interventions, school absence, regular medications and non-cardiac comorbidities were independently associated with reduced QoL. Participation in sport positively influenced QoL and was associated with higher psychosocial functioning scores.ConclusionsChildren with serious CHDs experience lower QoL than unaffected classmates. This appears related to the burden of clinical intervention rather than underlying cardiac diagnosis. Participation in sports activities is positively associated with increased emotional well-being. Child self-report measures of QoL would be a valuable addition to clinical outcome audit in this age group.

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“…If children or adolescents present more protective factors, they will assess their quality of life as the highest. The protective factor may mediate the relationship between the characteristics and skills of children and adolescents and therefore their quality of life (Gaspar, 2010;Lawford & Eiser, 2001).…”

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confidence: 99%

Health-related quality of life in portuguese children and adolescents

Matos¹,

Gaspar²,

Simões³

2012

Psicol. Reflex. Crit.

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The KIDSCREEN is a European cross-cultural and standardized instrument that assesses ten quality of life dimensions in children, adolescents and their parents. This instrument is used to validate evidences to support general inferences on quality-of-life measures obtained by the Portuguese version of KIDSCREEN-10 for children and adolescents, in the context of a survey research carried on in Portugal. The present study focuses only on the KIDSCREEN children and adolescents' versions. A sample of 8072 Portuguese children and adolescents attending the 5 th grade (19.3%), 6 th grade (19.2%), 7 th grade (20.3%), 8 th (21.6%) and 10 th grade (19.7%) in Portuguese schools were inquired, with a mean age of 13.2; SD 2.06, randomly distributed regarding gender. The Portuguese version of KIDSCREEN-10 instrument showed a good Internal Consistency of .78. Chosen fit indexes indicate good fit to the data. Specifically in the final solution the RMSEA was lower than .03 and the upper limit of 90% confidence interval was lower than .05, and CFI was higher than .95. Results indicated that the current 10-item structure is invariant across age groups, nationality and socio-economic level. The KIDSCREEN-10 questionnaire is a reliable instrument to estimate the perception of quality of life in children and adolescents. Psychometric guidelines are presented for the Portuguese population aged 10 to 16 years old. Keywords: Assessment, health-related quality of life, children and adolescents. ResumoO KIDSCREEN é um instrumento europeu transcultural e padronizado que avalia dez dimensões da qualidade de vida de crianças, adolescentes e seus pais. Este instrumento é usado para validar evidências a fim de apoiar inferências gerais sobre medidas de qualidade de vida obtidas pela versão portuguesa do KIDSCREEN-10 para crianças e adolescentes, no contexto de uma pesquisa de investigação feita em Portugal. O presente estudo centra-se apenas na versão KIDSCREEN para adolescentes e crianças. Uma amostra de 8.072 crianças e adolescentes portugueses frequentando a 5ª série (19,3%), 6ª série (19,2%), 7ª série (20,3%), 8ª série (21,6%) e 10ª série (19,7%) em escolas do país foram intrevistadas, com uma idade média de 13,2; DP 2,06, distribuídos aleatoriamente em relação ao sexo. A versão portuguesa do instrumento KIDSCREEN-10 mostrou uma boa consistência interna de 0,78. Os índices de ajuste escolhidos indicam bom ajuste aos dados. Especificamente na solução final o RMSEA foi inferior a 0,03, o limite superior do intervalo de confiança de 90% foi inferior a 0,05 e CFI foi superior a 0,95. Resultados indicaram que a estrutura atual do item 10 é invariável entre grupos de idade, nacionalidade e nível socio-econômico. O questionário KIDSCREEN-10 é um instrumento confiável para estimar a percepção da qualidade de vida em crianças e adolescentes. Orientações psicométricas são apresentadas para a população portuguesa entre 10 e 16 anos de idade. Palavras-chave: Avaliação, qualidade de vida relacionada à saúde, crianças e adolescentes.Children and ...

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Exploring links between the concepts of Quality of Life and resilience

Cited by 55 publications

References 45 publications

The effect of gender on health-related quality of life and related factors in post-lobectomy lung-cancer patients

The effect of gender on health-related quality of life and related factors in post-lobectomy lung-cancer patients

Patient-reported quality of life outcomes for children with serious congenital heart defects

Health-related quality of life in portuguese children and adolescents

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