Exploring information provision in reconstructive breast surgery: A qualitative study

Potter, Shelley; Mills, Nicola; Cawthorn, Simon; Wilson, Sandra; Blazeby, Jane M

doi:10.1016/j.breast.2015.09.003

Cited by 18 publications

(39 citation statements)

References 39 publications

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“…This means that patients undergoing autologous reconstruction are not required to recognize the signs of potential problems or know when to seek help – a key finding in the present study. The differences in satisfaction with information between breast surgeons (largely performing implant‐based reconstruction in the UK) and plastic surgeons performing free‐flap procedures has been reported previously. These rich, clinically meaningful data suggest that qualitative approaches may be a more appropriate method for exploring this difficult and sensitive issue, and better quantitative methods will be needed for use in future studies.…”

Section: Discussionmentioning

confidence: 88%

Experiences of implant loss after immediate implant-based breast reconstruction: qualitative study

et al. 2020

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Background: Immediate implant-based breast reconstruction (IBBR) is the most commonly performed reconstructive procedure in the UK, but almost one in ten women experience implant loss and reconstructive failure after this technique. Little is known about how implant loss impacts on patients' quality of life. The first phase of the Loss of implant Breast Reconstruction (LiBRA) study aimed to use qualitative methods to explore women's experiences of implant loss and develop recommendations to improve care.Methods: Semistructured interviews were conducted with a purposive sample of women who experienced implant loss after immediate IBBR, performed for malignancy or risk reduction across six centres. Interviews explored decision-making regarding IBBR, and experiences of implant loss and support received. Thematic analysis was used to explore the qualitative interview data. Sampling, data collection and analysis were undertaken concurrently and iteratively until data saturation was achieved.Results: Twenty-four women were interviewed; 19 had surgery for malignancy and five for risk reduction. The median time between implant loss and interview was 42 (range 22-74) months. Ten women had undergone secondary reconstruction, two were awaiting surgery, and 12 had declined further reconstruction. Three key themes were identified: the need for accurate information about the risks and benefits of IBBR; the need for more information about 'early-warning' signs of postoperative problems, to empower women to seek help; and better support following implant loss.Conclusion: Implant loss is a devastating event for many women. Better preoperative information and support, along with holistic patient-centred care when complications occur, may significantly improve the experience and outcome of care.

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Section: Discussionmentioning

confidence: 88%

Experiences of implant loss after immediate implant-based breast reconstruction: qualitative study

et al. 2020

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“…(45) - complementary comments on proposed treatments by physicians; the process of recovery and its time frame; the probability of disease relapse and its spread to other parts of the body and the chance of survival. (9,24,30,32,4,45,47,67,70) Psychosocial management: A significant percentage of breast cancer patients are searching information about managing the effects of cancer on family and social life including the management of side effects; psychological support for overcoming disease; required personal and family care and the probability of losing job. (9,46,47,65) Care providers: Information about care providers such as the best physicians or hospitals is an important information category which is sought by patients.…”

Section: ) Information Seeking Experiencementioning

confidence: 99%

“…The most commonly used interpersonal sources are physicians, nurses and other health professionals (1,3,4,6,22,38,54) . Also, other breast cancer patients, face-to-face or online support groups, family members, spouses or partners, friends and colleagues are other interpersonal sources of information for such patients (3,4,6,10,13,22,24,28,39,42,43,44,47,48,53,54) .…”

Section: ) Information Sourcesmentioning

confidence: 99%

“…All of these studies have shown that the majority of breast cancer patients tend to have information about their disease. (4,9,24,37,57,59,65,66) Breast cancer patients compared to those with other types of cancer are more likely to seek information actively. (37,59,62) It has also been reported that a significant percentage of breast cancer patients don't want to receive detailed information and are merely inclined to have the information they need.…”

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confidence: 99%

“…(32) Personal history, perceived need to information, ethnicity, education and marital status are among the determinants but age, religion, employment and income have not shown to have relationship with patients' preference for seeking information. (24,37,39,65,72) 2) Cancer knowledge of patients: Although a study from Malaysia has reported the studied patients' knowledge as poor (40) , the majority of studies have reported that a significant percentage of breast cancer patients have an acceptable degree of knowledge about the disease. Also, a considerable percentage of patients think that they have knowledge about their disease.…”

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confidence: 99%

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Health Information Seeking Behavior of Breast Cancer Patients: A Qualitative Study

Ravangard

Chaman‐Ara

Bahrami

et al. 2020

Preprint

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Background: Breast cancer is the most common cancer of women worldwide. This study was aimed to review systematically the current literature on the health information seeking behavior of breast cancer patients and to conduct the qualitative analysis of findings. Methods: We searched PubMed, Web of Science, Science Direct, CINHAL, Embase, Google Scholar, Cochrane database of systematic review, PSYCINO, SID and Magiran databases. A total of 60 articles included in the study. Findings of all studies were extracted, the content analysis was conducted and a series of themes and categories were identified Results: 13 themes were identified in the published studies. The related findings of all themes are presented and discussed. Conclusion: We summarized and classified all the findings of studies on the health information seeking behavior of breast cancer patients. Our classification can be used for the comprehensive examination of the breast cancer patients’ health information seeking behavior to develop improvement policies.

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Factors Associated With State-Specific Medicaid Expansion and Receipt of Autologous Breast Reconstruction Among Patients Undergoing Mastectomy

et al. 2021

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Key Points Question What is the association between the Patient Protection and Affordable Care Act’s state-specific Medicaid expansion and the use of autologous breast reconstruction? Findings In this national cross-sectional study of 45 850 patients who underwent mastectomy and 9215 patients who received autologous breast reconstruction, although the proportion of patients undergoing autologous breast reconstruction increased from 18.1% to 23.0% over the study period, Medicaid expansion was associated with significantly decreased odds of undergoing reconstruction for African American, Hispanic, Asian, and Native American patients. Meaning Medicaid expansion was associated with decreased odds of autologous reconstruction for African American, Hispanic, and other patients with minority race/ethnicity.

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Exploring information provision in reconstructive breast surgery: A qualitative study

Cited by 18 publications

References 39 publications

Experiences of implant loss after immediate implant-based breast reconstruction: qualitative study

Experiences of implant loss after immediate implant-based breast reconstruction: qualitative study

Health Information Seeking Behavior of Breast Cancer Patients: A Qualitative Study

Factors Associated With State-Specific Medicaid Expansion and Receipt of Autologous Breast Reconstruction Among Patients Undergoing Mastectomy

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