Exploring experiences of physical activity among people with Alzheimer's disease and their spouse carers: a qualitative study

Malthouse, R.; Fox, Fiona

doi:10.1016/j.physio.2013.10.002

Cited by 49 publications

(104 citation statements)

References 13 publications

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“…Few previous studies have explored the views of people with cognitive impairment and their relatives about exercise and falls prevention [32], but our findings are similar to those reported for populations without cognitive impairment [4, 18, 20, 22, 39, 40]. Dickenson et.…”

Section: Discussionsupporting

confidence: 88%

“…Helping older adults engage in any intervention whilst minimising damage to their positive perception of self is an important but difficult challenge. Family members and relatives play an essential role in supporting rehabilitation and falls prevention interventions in those with cognitive impairments, and their views should be heard when considering the acceptability of services [4, 32]. …”

Section: Introductionmentioning

confidence: 99%

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Attitudes of older people with mild dementia and mild cognitive impairment and their relatives about falls risk and prevention: A qualitative study

et al. 2017

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ObjectiveTo explore the perceptions of older people with mild dementia and mild cognitive impairment, and their family carers, about falling, falls risk and the acceptability of falls prevention interventions.DesignQualitative study involving thematic analysis of semi-structured interviews with patient and relative dyads.Participants and setting20 patient/ relative dyads recruited from Memory Assessment Services and Falls Prevention Services in the United Kingdom.ResultsThe findings are presented under four key themes: attitudes to falls, attitudes to falls prevention interventions, barriers and facilitators, and the role of relatives. Participants’ attitudes to falls interventions were varied and sometimes conflicting. Some worried about falls, but many resisted identifying themselves as potential ‘fallers’, even despite having fallen, and rejected the idea of needing the help that structured interventions signify. Participants preferred to focus on coping in the present rather than anticipating, and preparing for, an uncertain future. Falls prevention interventions were acknowledged to be valuable in principle and if required in the future but often felt to be not necessary or appropriate at present.ConclusionsThis study of how persons with cognitive impairment, and their relatives, view falls risk and prevention mirror findings relating to the wider population of older persons without dementia. Participants did not generally see falls prevention interventions as currently relevant to themselves. The challenge for clinicians is how to present interventions with understanding and respect for the older person’s identity. They must identify and address goals that patients and relatives value. Simplistic or paternalistic approaches will likely fail. Individualised interventions which focus on maintaining independence and preserving quality of life are more likely to be acceptable by supporting a positive self-image for patients and their relatives.

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Section: Discussionsupporting

confidence: 88%

Section: Introductionmentioning

confidence: 99%

Attitudes of older people with mild dementia and mild cognitive impairment and their relatives about falls risk and prevention: A qualitative study

et al. 2017

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“…This is in accord with findings indicating that the social aspect of an exercise group for both people with dementia and their carers is particularly important (Carone et al, 2016, Guzmán-García et al, 2013, Ovenden et al, 2016 and research suggesting people with Alzheimer's disease felt more comfortable participating in activities with others who understood their problems and whom they felt they could identify with (Malthouse and Fox, 2014). Furthermore, this theme resonates powerfully with the theme "we're all thrown in the same boat …" identified in a qualitative analysis of peer support in dementia care (Keyes, Clarke, Wilkinson, Alexjuk, Wilcockson, Robinson, Reynolds, et al, 2016 For the participant above and many others, meeting other carers at the session provided some relief from the well documented feelings of loneliness experienced by people with dementia and their carers (Adelman, Tmanova, Delgado, Dion and Lachs et al, 2014).…”

Section: "In the Same Boat"supporting

confidence: 86%

“…Several of these have been shown to be beneficial, including walking, dance and football (Malthouse and Fox, 2014, Guzmán-García, Mukaetova-Ladinska and James et al, 2013, Carone, Tischler and Dening et al, 2016. Swimming offers a non-weight bearing activity which can improve physical fitness and reduce strain on joints compared to landbased exercise.…”

Section: Introductionmentioning

confidence: 99%

Swimming for dementia: An exploratory qualitative study: Innovative practice

et al. 2018

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Swimming is a non-weight bearing form of exercise that can be enjoyable and promote physical fitness. This qualitative study investigated a local group established as part of a national dementia swimming initiative. Semi-structured interviews with people with dementia (N=4), carers or companions (N=4) and the organisers and facilitators of the group (N=6) were analysed using thematic analysis. This revealed four main themes: (1) the pleasure of swimming and its benefits as a form of exercise and for building confidence and empowering participants; (2) the importance of insight and empathy in creating a safe and secure experience; (3) the burden impact of dementia; and (4) how participants valued being part of a group 'all in the same boat'. 'Dementia friendly swimming' appears to be a valuable form of exercise but it requires considerable preparation and support to make it happen. KeywordsSwimming, dementia, dementia friendly, exercise, people with dementia Exercise interventions for people living with dementia have attracted increasing interest. Several of these have been shown to be beneficial, including walking, dance and football (Malthouse and Fox, 2014, Guzmán-García, Mukaetova-Ladinska and James et al., 2013, Carone, Tischler and Dening et al., 2016. Swimming offers a non-weight bearing activity which can improve physical fitness and reduce strain on joints compared to landbased exercise. For many people, including those with dementia, swimming will be also be a familiar activity associated with happy memories and thus it may be a very suitable form of exercise (Henwood, Neville, Baguley, Clifton and Beattie et al., 2015). There has been limited research around swimming and dementia, with just one recent controlled trial (Henwood, Neville, Baguley and BeattieHenwood et al., 2017). This study investigated a 12-week programme for residents of care homes and reported modest effects in slowing muscle weakness and behavioural and psychological symptoms.

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“…To reduce care needs in this group, there has been a focus on physical activity and in a physiotherapy study, researchers from Bath interviewed patients with Alzheimer's disease and their spouse carers to guide the development of a suitable activity intervention. 2 They identified three themes. 'Self' included all internal factors, which were largely positive and motivated individuals to be physically active and maintain freedom.…”

mentioning

confidence: 99%

Substance misuse, dementia, worklessness, and seaside towns

Rashid

2014

Br J Gen Pract

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Exploring experiences of physical activity among people with Alzheimer's disease and their spouse carers: a qualitative study

Cited by 49 publications

References 13 publications

Attitudes of older people with mild dementia and mild cognitive impairment and their relatives about falls risk and prevention: A qualitative study

Attitudes of older people with mild dementia and mild cognitive impairment and their relatives about falls risk and prevention: A qualitative study

Swimming for dementia: An exploratory qualitative study: Innovative practice

Substance misuse, dementia, worklessness, and seaside towns

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