Exploring Early Adopter Baby Boomers' Approach to Managing Their Health and Healthcare

Seale, Deborah E.; LeRouge, Cynthia; Ohs, Jennifer E.; Tao, Donghua; Lach, Helen W.; Jupka, Keri; Wray, Ricardo J.

doi:10.4018/ijehmc.2019010106

Cited by 3 publications

(6 citation statements)

References 64 publications

(16 reference statements)

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“…They use OHS frequently, but only for information-seeking and not for diagnosis, treatment or disease management. Another study from the US [13] showed that intergenerational interactions in which older adults were mentored by college students resulted in a significant drop in technophobia and major improvements in OHS literacy, self-efficacy and interest in technology.…”

Section: Introductionmentioning

confidence: 99%

Obstacles to using online health services among adults age 50 and up and the role of family support in overcoming them

Mizrachi

Shahrabani

Nachmani

et al. 2020

Isr J Health Policy Res

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Background: Using Online Health Services (OHS) could benefit older adults greatly and could also reduce the burden on the health system. Yet invisible obstacles or barriers appear to impede mass adoption of these services among this population group. The aim of the current research is to provide a qualitative picture of these invisible obstacles and to profile their main features, with special attention to the role of family members in supporting OHS use among this population group. Methods: This qualitative study entailed a series of in-depth, semi-structured, open phone interviews conducted with 31 individuals age 50 and up in Israel, who constituted a sample of OHS users and non-users among older adults. Results: Four major themes and primary observations emerge from our data: 1. While older adults are aware of OHS to some extent, they often do not fully understand the specific benefits of using these services; 2. Older adults need to acquire much more experience with OHS use. OHS user interfaces still have a long way to go for older adults to feel comfortable using them. People age 50 and up seem to be less concerned about privacy and security issues than about seemingly more trivial issues such as recovering forgotten passwords; 3. Family members can play key roles in helping older adults adopt OHS by providing technical support as well as encouragement; 4. Older adults have worthwhile recommendations for innovations and policy improvements that would facilitate wider adoption of OHS. Conclusions: The results of the current study reveal important nuances regarding the importance of awareness, user interface and experience for OHS use among older adults, as well as the critical role of family members in OHS adoption. Based on these findings, we recommend the following: expanding advertising on media channels to emphasize the benefits of OHS use; improving HMO websites to make them more user-friendly for older people; developing HMO-run community OHS guidance programs geared to older people to reduce the gap between required skills and user competencies, thus enabling older people to benefit from OHS use.

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Section: Introductionmentioning

confidence: 99%

Obstacles to using online health services among adults age 50 and up and the role of family support in overcoming them

Mizrachi

Shahrabani

Nachmani

et al. 2020

Isr J Health Policy Res

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“…Our findings make unique contributions to PHIM descriptions, with the introduction of health finance management as a major PHIM goal for health care consumers. To date, research has been limited to health care consumers’ ability to understand and use insurance information effectively [ 52 , 53 ], their management of out-of-pocket expenses [ 11 , 24 , 54 ], and their desire to talk to their health care providers about health care costs [ 11 , 55 ].…”

Section: Discussionmentioning

confidence: 99%

“…They were able to engage the services of professional organizers, and managing financial PHI (including insurance) was emphasized in PHIM work. Our approach purposefully removed economic constraints to better understand the challenges that remain around patient engagement [ 11 , 13 ] and PHIM work for older adults. Therefore, caution should be exercised when transferring our findings to uninsured and low-resource groups.…”

Section: Discussionmentioning

confidence: 99%

“…To date, research has been limited to health care consumers' ability to understand and use insurance information effectively [52,53], their management of out-of-pocket expenses [11,24,54], and their desire to talk to their health care providers about health care costs [11,55].…”

Section: Comparison With Prior Workmentioning

confidence: 99%

“…For instance, individuals need to choose the most optimal storage location for PHI so that it is easily accessible in an emergency [9]. In addition, research has shown that older adults are less likely to use consumer health informatics technology to manage their health and health care [10][11][12][13]. Hence, we continue to face numerous unanswered questions regarding PHIM.…”

Section: Introductionmentioning

confidence: 99%

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A Description of Personal Health Information Management Work With a Spotlight on the Practices of Older Adults: Qualitative e-Delphi Study With Professional Organizers

Seale¹,

LeRouge²,

Kolotylo-Kulkarni³

2023

J Med Internet Res

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Background Personal health information (PHI) is created on behalf of and by health care consumers to support their care and wellness. Available tools designed to support PHI management (PHIM) remain insufficient. A comprehensive understanding of PHIM work is required, particularly for older adults, to offer more effective PHIM tools and support. Objective The primary objective of this study was to use the Patient Work System model to provide a holistic description of PHIM work from the perspective of professional organizers with experience assisting health care consumers, including older adults, in managing their PHI. A secondary objective was to examine how factors associated with 4 Patient Work System components (person, tasks, tools and technologies, and context) interact to support or compromise PHIM work performance. Methods A modified e‐Delphi methodology was used to complete 3 web-based rounds of open-ended questions and obtain consensus among a panel of 16 experts in professional organizing. Data were collected between April and December 2017. The Patient Work System model was used as a coding schema and guided the interpretation of findings during the analysis. Results The PHIM work of adults who sought assistance focused on the tasks of acquiring, organizing, and storing 3 classifications of PHI (medical, financial, and reference) and then processing, reconciling, and storing the medical and financial classifications to tend to their health, health care, and health finances. We also found that the complexities of PHI and PHIM-related work often exceeded the abilities and willingness of those who sought assistance. A total of 6 factors contributed to the complexity of PHIM work. The misalignment of these factors was found to increase the PHIM workload, particularly for older adults. The life changes that often accompanied aging, coupled with obscure and fragmented health care provider- and insurer-generated PHI, created the need for much PHIM work. Acquiring and integrating obscure and fragmented PHI, detecting and reconciling PHI discrepancies, and protecting PHI held by health care consumers were among the most burdensome tasks, especially for older adults. Consequently, personal stakeholders (paid and unpaid) were called upon or voluntarily stepped in to assist with PHIM work. Conclusions Streamlining and automating 2 of the most common and burdensome PHIM undertakings could drastically reduce health care consumers’ PHIM workload: developing and maintaining accurate current and past health summaries and tracking medical bills and insurance claims to reconcile discrepancies. Other improvements that hold promise are the simplification and standardization of commonly used financial and medical PHI; standardization and automation of commonly used PHI acquisition interfaces; and provision of secure, Health Insurance Portability and Accountability Act (HIPAA)–certified PHI tools and technologies that control multiperson access for PHI stored by health care consumers in electronic and paper formats.

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A Description of Personal Health Information Management Work With a Spotlight on the Practices of Older Adults: Qualitative e-Delphi Study With Professional Organizers (Preprint)

Seale¹,

LeRouge²,

Kolotylo-Kulkarni³

2022

Preprint

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BACKGROUND Personal health information (PHI) is created on behalf of and by health consumers to support their care and wellness. Being able to manage PHI effectively is particularly important for older adults with declining health and increasing healthcare needs. Available tools designed to support PHI management (PHIM) remain insufficient. To offer more effective PHIM tools and support, a comprehensive understanding of PHIM work is needed. OBJECTIVE The study’s primary objective is to use the Patient Work System model to provide a holistic description of PHIM work from the perspective of key informants with experience assisting health consumers – including older adults – with managing their PHI. A secondary objective is to examine how factors associated with four Patient Work System components (person, tasks, tools/technologies, and context) interact to support or compromise PHIM work performance. METHODS A modified e‐Delphi methodology is used to complete three online rounds of open-ended questions and obtain consensus among the panel of 16 experts. Data were collected from April to December 2017. The Patient Work System model is used as a coding schema and guide the interpretation of findings during analysis. RESULTS The PHIM work of adults who sought assistance focused on the tasks of acquiring, organizing and storing three classifications of PHI (clinical, financial, and reference), then processing, reconciling and storing the clinical and financial classifications to tend to their health, healthcare, and health finances. However, the complexities of PHI and PHIM-related work often exceeded the abilities and willingness of those who sought assistance. Six factors were found to contribute to the complexity of PHIM work for older adults. Misalignment of these factors was found to increase the PHIM workload, particularly for older adults. The life changes that often accompanied aging coupled with obscure and fragmented provider-payer generated PHI created the need for much PHIM work. Acquiring and integrating obscure and fragmented PHI, detecting and reconciling PHI discrepancies, and protecting PHI held by health consumers were among the most burdensome tasks, particularly for older adults. As a result, personal stakeholders (paid and unpaid) were called upon or voluntarily stepped in to assist with PHIM work. CONCLUSIONS Streamlining and automating two of the most common and burdensome PHIM undertakings could drastically reduce health consumers’ PHIM workload: a) developing and maintaining accurate current and past health summaries, and b) tracking medical bills and insurance claims to reconcile discrepancies. Other improvements that hold promise are simplification and standardization of commonly used financial and clinical PHI, standardization and automation of commonly used PHI acquisition interfaces, and provision of secure, HIPAA-certified PHI tools and technologies that control multi-person access for PHI stored by health consumers in electronic and paper formats.

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Exploring Early Adopter Baby Boomers' Approach to Managing Their Health and Healthcare

Cited by 3 publications

References 64 publications

Obstacles to using online health services among adults age 50 and up and the role of family support in overcoming them

Obstacles to using online health services among adults age 50 and up and the role of family support in overcoming them

A Description of Personal Health Information Management Work With a Spotlight on the Practices of Older Adults: Qualitative e-Delphi Study With Professional Organizers

A Description of Personal Health Information Management Work With a Spotlight on the Practices of Older Adults: Qualitative e-Delphi Study With Professional Organizers (Preprint)

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