Exploring caregiver burden experienced by family caregivers of patients with End-Stage Renal Disease in Nigeria

Oyegbile, Yemisi Okikiade; Brysiewicz, Petra

doi:10.1016/j.ijans.2017.11.005

Cited by 32 publications

(58 citation statements)

References 32 publications

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“…Family caregiving burden and poor outcomes are thought to be components of a vicious cycle (Jafari et al, 2018). Driven by feelings of commitment toward their ill loved one and their desire for competence, family caregivers often sacrifice several essentials, such as comfort, sleep, socialization and finances (Salehitali et al, 2018; Alnazly & Samara, 2014; Oyegbile & Brysiewicz, 2017). This sacrifice is linked with high burden among caregivers as manifested by worsening of their psychological and physical well‐being, social life, financial status and quality of life (Jafari et al, 2018; Oyegbile & Brysiewicz, 2017; Salehitali et al, 2018).…”

Section: Discussionmentioning

confidence: 99%

“…Driven by feelings of commitment toward their ill loved one and their desire for competence, family caregivers often sacrifice several essentials, such as comfort, sleep, socialization and finances (Salehitali et al, 2018; Alnazly & Samara, 2014; Oyegbile & Brysiewicz, 2017). This sacrifice is linked with high burden among caregivers as manifested by worsening of their psychological and physical well‐being, social life, financial status and quality of life (Jafari et al, 2018; Oyegbile & Brysiewicz, 2017; Salehitali et al, 2018). Secondary to higher burden, caregivers' abilities to continue supporting their ill family member decline, which in turn adversely affects patients' health, as can be seen through increased rates of patients' hospitalizations and emergency department visits as well as reports of high depression and anxiety and poor quality of life (Adelman et al, 2014; Kuzuya et al, 2011).…”

Section: Discussionmentioning

confidence: 99%

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Functional health literacy and caregiving burden among family caregivers of patients with end‐stage renal disease

Abed

Khalifeh

Khalil

et al. 2020

Research in Nursing & Health

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Family caregivers of patients with end‐stage renal disease (ESRD) experience significant caregiver‐related burden, yet the contribution of their functional health literacy (FHL) to caregiving burden has not been elucidated. We investigated the magnitude of FHL and caregiving burden and their association in a descriptive, correlational cross‐sectional study of family caregivers of Jordanian patients with ESRD (N = 88). The short versions of the FHL for Adults and the Zarit Burden Interview were used for assessment of caregivers. Demographic and clinical information of patients and their family caregivers were self‐reported. Of family caregivers, 41% had limited FHL and 38% experienced high caregiver burden. FHL and history of comorbidity in family caregivers predicted caregiving burden independent of demographic and clinical factors. Consideration of FHL in support interventions for family caregivers may minimize some of the high perceived caregiving burden, but clinical trials of such interventions are needed to confirm this conclusion.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Functional health literacy and caregiving burden among family caregivers of patients with end‐stage renal disease

Abed

Khalifeh

Khalil

et al. 2020

Research in Nursing & Health

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“…In developed countries, many studies have been conducted among the older adults and their caregivers to examine prevalence and health effects of caregivers’ burden as well as coping and support strategies ( Herrera, Lee, Nanyonjo, Laufman, & Torres-Vigil, 2009 ; Schulz & Martire, 2004 ). Previous studies in the sub-Saharan ( Dotchin et al, 2014 and Mugisha et al, 2013 ) as well Nigerian studies on caregiving have focused on specific illness conditions especially mental illness ( Adeosun, 2013 and Jack‐Ide, Uys, & Middleton, 2013 ) and ( Yusuf, Nuhu, & Akinbiyi, 2009 ) older adults with hip fracture ( Diameta et al, 2018 ), cancer ( Akpan-Idiok & Anarado, 2014 ), and patients with End-Stage Renal Disease ( Oyegbile & Brysiewicz, 2017 ). Similarly, Faronbi (2018) and Faronbi and Olaogun (2017) quantitatively examined the burden of caregiving for older adults chronic illness.…”

Section: Introductionmentioning

confidence: 99%

Caring for the seniors with chronic illness: The lived experience of caregivers of older adults

Faronbi

Ayamolowo

et al. 2019

Archives of Gerontology and Geriatrics

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Background Caregivers of the elderly with chronic illnesses are exposed to the burden associated with their caregiving activities. This study described the lived experience of caregivers of older adults in Nigeria. Methods A qualitative design guided by interpretive phenomenology informed the design of the research, whereby 15 in-depth interviews were conducted with caregivers of older adults with chronic illnesses. The interview sessions were audiotaped and transcribed verbatim and analysed using constant comparison analysis method. Results Fifteen caregivers, from different parts of Osun State, Nigeria, took part in the in-depth interviews. The caregivers were aged between 19 and 70 years, ten were women, five of them had secondary education, seven were self-employed and six were in a spousal relationship. The study uncovered four interrelated themes with explanatory subthemes—commitment to preservation of life ( man aging challenges associated with daily routine, problem with mobility, bathing and grooming, feeding, and problem with hygiene ) (ii) denial ( refusal to accept that burden exists) , other things suffer ( disruption of family process, suffering from poor health and social isolation ), (iv) reciprocity of care ( pride in caregiving, caregiving as a necessity and not by choice, and law of karma ). Conclusion This study provides insight into the burden of care of older adults with chronic illness. Caregivers’ commitment to preserving life makes them provide assistance whose performance even run contrary to their own wellbeing. Intervention programme should be designed to support the caregivers thereby improving their wellbeing.

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“…Family caregivers are individuals who take responsibility for meeting the major physical, emotional, nancial, and social needs of the patient from hospitalization to providing care at home. The breadth of care required for a patient with ESKD causes the caregiver to be more vulnerable to emotional, physical, and psychological consequences, which are essentially greater in countries with more limited resources (3). The complications in caring for a patient receiving hemodialysis aggravate depression and reduce the quality of life of the caregiver (4).…”

Section: Introductionmentioning

confidence: 99%

Caregiver Burden in Caregivers of Patients Receiving Hemodialysis: A Qualitative Study

Hejazi¹,

Hosseini²,

Ebadi³

et al. 2020

Preprint

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Background Living with End Stage Kidney Disease and hemodialysis place too much burden on patients and their caregivers. The concept of caregiver burden describes a set of diverse caregiver experiences in providing care and requires a complex and multifaceted definition. Limited studies have looked at caregivers of patients receiving hemodialysis and the concept of caregiver burden from their perspective. This study aims to develop the concept of caregiver burden among family caregivers of patients receiving hemodialysis.Method This study was conducted using directed qualitative content analysis method. Twenty one family caregivers, patients, dialysis nurses, physicians, and social workers in teaching hospitals of Tehran and the Iranian Kidney Foundation, Tehran, Iran were enrolled using maximum variation purposive sampling method. Sampling was continued until data saturation was reached. The data collection method was in-depth and semi-structured interviews. In order to analyze the data, the directed qualitative content analysis method was conducted based on the method proposed by Elo and Kyngas which was modified by Assaroudi et al.Results A total of 1162 codes, 63 subcategories, 18 generic categories, and 5 main categories were extracted. The concept of caregiver burden in family caregivers of patients receiving hemodialysis and its dimensions based on the dimensions of the Structural Model of Caregiver Burden Model were approved and another dimension titled a time-dependent burden added to it. Conclusions The caregiver burden experienced by caregivers of patients receiving hemodialysis has physical, psychological, emotional, spiritual, financial, social, and time-dependent dimensions.

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Exploring caregiver burden experienced by family caregivers of patients with End-Stage Renal Disease in Nigeria

Cited by 32 publications

References 32 publications

Functional health literacy and caregiving burden among family caregivers of patients with end‐stage renal disease

Functional health literacy and caregiving burden among family caregivers of patients with end‐stage renal disease

Caring for the seniors with chronic illness: The lived experience of caregivers of older adults

Caregiver Burden in Caregivers of Patients Receiving Hemodialysis: A Qualitative Study

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