Exploring assets of people with memory problems and dementia in public space: A qualitative study

Sturge, Jodi; Klaassens, Mirjam; Jones, Charlotte; Elf, Marie; Weitkamp, Gerd; Meijering, Louise

doi:10.1016/j.wss.2021.100063

Cited by 9 publications

(18 citation statements)

References 90 publications

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“…It is important to feel connected with close friends without feeling stigmatised [ 67 , 79 , 102 , 122 ]. Some participants had good contact with existing networks [ 75 , 95 , 113 ]. Others tried to find new contacts [ 97 ], which could be complicated after moving into a new neighbourhood [ 96 , 100 ].…”

Section: Resultsmentioning

confidence: 99%

“…Fourteen studies describe relationships in the wider community. Six studies describe how neighbours provided practical support, such as the management of household waste, looking after pets and gardens, or simply having brief social encounters [ 75 , 79 , 97 , 99 , 108 , 113 ]. In three studies participants informed their neighbours about the illness which provided an understanding and a sense of security [ 113 , 117 , 121 ].…”

Section: Resultsmentioning

confidence: 99%

“…Six studies describe how neighbours provided practical support, such as the management of household waste, looking after pets and gardens, or simply having brief social encounters [ 75 , 79 , 97 , 99 , 108 , 113 ]. In three studies participants informed their neighbours about the illness which provided an understanding and a sense of security [ 113 , 117 , 121 ]. Six studies describe the neighbourhood as a site for spontaneous encounters, especially if participants lived there for a long time [ 75 , 88 , 96 , 97 , 113 , 123 ].…”

Section: Resultsmentioning

confidence: 99%

“…In three studies participants informed their neighbours about the illness which provided an understanding and a sense of security [ 113 , 117 , 121 ]. Six studies describe the neighbourhood as a site for spontaneous encounters, especially if participants lived there for a long time [ 75 , 88 , 96 , 97 , 113 , 123 ]. For example, they referred to encounters with staff in shops or being greeted by passers-by.…”

Section: Resultsmentioning

confidence: 99%

“…This provided a sense of independence and being connected to, and part of society, which in turn prevented feelings of loneliness. In 14 studies, challenges with routine activities outside, such as the effort it takes to prepare for going outside, activities that are experienced as ‘too busy’, dealing with money outside, keeping an overview of the actions that make up an activity, and not getting lost are mentioned [ 69 , 75 , 81 , 86 , 88 , 93 , 94 , 96 , 101 , 112 , 113 , 116 , 117 , 122 ]. In one study participants mentioned the JAM (‘just a minute’) card as useful, to show when they need ‘just a minute’ [ 94 ].…”

Section: Resultsmentioning

confidence: 99%

See 4 more Smart Citations

Everyday Experiences of People Living with Mild Cognitive Impairment or Dementia: A Scoping Review

Huizenga

Scheffelaar

Fruijtier

et al. 2022

IJERPH

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Increasing attention has been paid to the ‘voice’ of people living with mild cognitive impairment (MCI) or dementia, but there is a lack of clarity about how everyday life is perceived from this insider’s perspective. This study aimed to explore the everyday life experiences, challenges and facilitators of individuals with MCI and dementia living at home. A scoping review of qualitative studies, guided by the Joanna Briggs Institute Reviewers Manual, was conducted. Eight databases were searched, resulting in 6345 records, of which 58 papers published between 2011 and 2021 were included. Analysis was carried out by descriptive content analysis. Findings were categorized into seven spheres of everyday life: experiences related to the condition, self, relationships, activities, environment, health and social care and public opinions. The results show many disruptions and losses in everyday life and how people try to accommodate these changes. In all areas of everyday life, people show a deep desire to have reciprocal relationships, stay engaged through participation in activities and have a sense of belonging in the community. However, more research is needed on the factors that promote and impede the sense of reciprocity and belonging.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

See 3 more Smart Citations

Everyday Experiences of People Living with Mild Cognitive Impairment or Dementia: A Scoping Review

Huizenga

Scheffelaar

Fruijtier

et al. 2022

IJERPH

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show abstract

Making space at the table: Engaging participation of people with dementia in community development

Phinney,

Macnaughton,

Wiersma

et al. 2023

Int J Geriat Psychiatry

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ObjectivesThe Building Capacity Project is an asset‐based community development initiative that aims to reduce stigma and promote social inclusion for people with dementia. Using a community‐based participatory approach, we conducted research to examine the relational patterns and participatory practices within and across project sites in two different regions of Canada (Vancouver and Thunder Bay).MethodsFive focus groups and five individual interviews were conducted with team members and community partners (n = 29) and analysed for themes.ResultsThe overarching theme of Making Space at the Table explains how the participation of people with dementia has served both as a value and a practice shaping the relational work throughout the project. Three sub‐themes include: Maintaining a common foundation; Creating communication pathways; and Fostering personal connections.ConclusionsTogether, these findings show how community development can support the meaningful participation of people with dementia in their communities through processes of collaboration that focus on individual and collective strengths, that allow time for the work to unfold, and for building relationships that foster trust and respect for diversity.

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Reorienting vitality for ageing cities

Poruthiyil

Purandare

2023

Cities

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Exploring assets of people with memory problems and dementia in public space: A qualitative study

Cited by 9 publications

References 90 publications

Everyday Experiences of People Living with Mild Cognitive Impairment or Dementia: A Scoping Review

Everyday Experiences of People Living with Mild Cognitive Impairment or Dementia: A Scoping Review

Making space at the table: Engaging participation of people with dementia in community development

Reorienting vitality for ageing cities

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