Experimental Evaluation of the Effectiveness of Group Intervention for Dementia Caregivers

Haley, William E.; Brown, Sam; Levine, Ellen G.

doi:10.1093/geront/27.3.376

Cited by 138 publications

(69 citation statements)

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“…For example, Brodaty and Gresham reported reduced carer psychological morbidity and a delay in time to patient institutionalization, but their programme included a 10-day residential training phase and regular subsequent follow-up contact between carers and professionals. Our present ®ndings are consistent with those reported for other similar brief education-based programmes, with disappointing outcomes reported by Haley et al (1987), by Herbert et al (1994) and by Zarit et al (1987). A reanalysis of the latter study (Whitlatch et al, 1991) suggested a positive impact, but the validity of the reanalysis has been questioned (Herbert et al, 1994).…”

Section: Discussionsupporting

confidence: 91%

Dementia carer education and patient behaviour disturbance

Coen

O'Boyle

Coakley

et al. 1999

Int. J. Geriat. Psychiatry

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Objective To evaluate the impact of a dementia Carer Education Programme on carer quality of life (QoL), burden, and well‐being. Design Single group before–after intervention study. The group was subdivided by perceived status post‐programme for intragroup analysis. Setting Hospital memory clinic. Participants Convenience sample of 32 dementia carers. Intervention Eight weekly 2 h education and support sessions run by a psychogeriatric clinical team. Measures Pre‐programme and 6 months post‐programme data were obtained. Measures included individually perceived QoL, burden, well‐being, managing problem behaviour, appraisal of social support, knowledge of dementia, and perception of the programme. Patients were characterized in terms of cognition, behaviour disturbance and functional status. Results Twelve carers reported their situation post‐programme as ‘better’, 12 as ‘worse’, and four as ‘no change’. There were no significant baseline differences. For ‘better/no change’ carers the only significant change over time was increased knowledge about dementia. For ‘worse’ carers knowledge also increased, but there was evidence of poorer QoL, increased burden, a poorer appraisal of social support, and increased patient behaviour disturbance. Only patient behaviour disturbance significantly discriminated ‘no change/better’ from ‘worse’ carers (F=4.08, p=0.055). Conclusions The programme increased carers' knowledge about dementia, but had no significant impact on QoL, burden, or well‐being. Increased patient behaviour disturbance appeared to be a major factor when the carer's situation worsened over time. Despite high carer satisfaction the efficacy of a group‐based education approach to the management of behaviour disturbance in dementia appears limited. More intensive or individually tailored interventions may be necessary alternatives. Copyright © 1999 John Wiley & Sons, Ltd.

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Section: Discussionsupporting

confidence: 91%

Dementia carer education and patient behaviour disturbance

Coen

O'Boyle

Coakley

et al. 1999

Int. J. Geriat. Psychiatry

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“…For all outcome variables, caregivers of patients with moderate dementia achieved higher effects from support groups, compared to those taking care of patients with mild dementia. According to Haley, Brown, and Levine (1987), a caregiver of a more seriously diseased family member is more prone to continuously participate in a support group compared to those caring for a family member with milder disease. Since a higher severity of patient disease demands more knowledge about caring and creates a higher need for assistance, caregivers are more motivated to stay in a support group and therefore achieve a better result.…”

Section: Impact Of Intervention and Participant Characteristicsmentioning

confidence: 99%

Caregiver support groups in patients with dementia: a meta‐analysis

Chien

Chu

Guo

et al. 2011

Int J Geriat Psychiatry

222

165

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Support groups benefit caregivers and findings of this meta-analysis serve as immediate guidance for group facilitators. Future research should include additional outcome variables with our defined factors on effectiveness collected as demographic characteristic data for comparison. A more comprehensive understanding of the effectiveness of support groups is indicated to enhance outcomes for caregivers and patients.

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“…Research results have consistently indicated that variables within the caregiver or caregiving process, such as diminished social and recreational activities, as against variables specific to the recipient of care, such as difficult behavior, prove to be reliable predictors of the burdens caregivers will experience (Argyle, Jestice, and Brook, 1985;Colerick and George, 1986;Deimling and Bass, 1986;Kinney and Stephens, 1989). Help in the form of community programs for caregivers, such as support groups and psychogeriatric day care, has yielded inconsistent results for dealing with caregiver stress (Gilleard, 1987;Glosser and Wexler, 1985;Haley, Brown, and Levine, 1987b). The findings indicate that a caregiver may well continue to experience stress even after a dementia patient is institutionalized (Colerick and George, 1986;Coppel et al, 1985;Gilleard, 1987).…”

Section: Introductionmentioning

confidence: 99%

Caregiver religiosity and well-being in dealing with Alzheimer's dementia

Burgener

1994

J Relig Health

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To examine the relationship among religious participation, stress, and well-being, 84 caregivers of Alzheimer's patients and 81 control subjects completed the Religiosity Scale, Life-3, and Medical Outcomes Study well-being measures. Caregivers only completed the Relative's Stress Scale. No differences were found between groups in religious practices, although caregivers indicated higher levels of clergy-visiting than the others and control subjects indicated a greater met need for contact with the church or synagogue. In contrast, control subjects show higher levels of well-being, social functioning, and mental health than caregivers. In care-givers, significant relationships were found among several religiosity variables, stress, and well-being.

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Experimental Evaluation of the Effectiveness of Group Intervention for Dementia Caregivers

Cited by 138 publications

References 0 publications

Dementia carer education and patient behaviour disturbance

Dementia carer education and patient behaviour disturbance

Caregiver support groups in patients with dementia: a meta‐analysis

Caregiver religiosity and well-being in dealing with Alzheimer's dementia

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