Experiences of women with physical disabilities accessing prenatal care in low‐ and middle‐income countries

Abstract

Introduction Women with physical disabilities experience barriers to accessing patient‐centered and accommodative care during the prenatal and childbirth periods. While there is a growing body of work in high‐income countries to address these needs, there is little research detailing specific challenges in low‐ and middle‐income countries (LMICs) where a woman's’ burden— and need—is greatest. Methods We conducted an integrative review to synthesize the experiences of women with physical disabilities accessing prenatal care and childbirth services in LMICs. Five databases were searched for systematic reviews, retrospective cohort studies, cross‐sectional studies, narrative literature reviews, as well as other evidence types. We used Ediom's EvidenceEngine™, a machine‐assisted search engine that uses artificial intelligence to conduct this search using pertinent keywords to identify original research published between January 2009 ‐ September 2018. These results were augmented by hand searching of reference lists. Forty articles were identified using this method and 11 retained after duplicates were removed and inclusion and exclusion criteria applied. Results Four types of experiences are described in these 11 studies: (1) limited physical and material resources; (2) health care worker knowledge, attitudes, and skills; (3) pregnant people's knowledge; and (4) public stigma and ignorance. Discussion People with physical disabilities face specific challenges during pregnancy and childbirth. Importantly, these findings offer targets for enhanced clinical training for nurses, midwives, traditional birth attendants and public health workers, as well as opportunities for the improved delivery of prenatal care and childbirth services to these vulnerable women.

Unmet needs, limited access: A qualitative study of postpartum health care experiences of people with disabilities

“…Qualitative studies conducted in numerous countries, including the United States, Canada, Ireland, Nepal, and Cameroon, have documented care‐related challenges experienced by people with disabilities in pregnancy (Heideveld‐Gerritsen et al, 2021; Kazembe et al, 2022; Malouf, McLeish, et al, 2017); barriers to prenatal care experienced by people with disabilities include fragmented care, unmet physical accessibility and communication needs, and negative provider attitudes (Saeed et al, 2022;). Few studies have focused on postpartum care specifically.…”