Experiences of support garments following bowel stoma formation: analysis of free-text responses in a cross-sectional survey

Hubbard, Gill; Taylor, Claire; Munro, Julie; Dames, Nicola; Goodman, William; Oliphant, Raymond; Beeken, Rebecca J

doi:10.1136/bmjgast-2019-000291

Cited by 8 publications

(13 citation statements)

References 36 publications

(50 reference statements)

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“…This is the first study to investigate the experiences and meaning of support garments for people living with a urostomy and adds to recently reported evidence about use of support garments in adjusting to stoma-formation surgery (Hubbard et al 2019). These findings add further insights to the main survey views of support garments which reveal how support garments enable people to cope with the disruptions that stomas impose in their day-to-day lives (Hubbard et al, 2019).…”

Section: Discussionmentioning

confidence: 57%

Experiences of wearing support garments by people living with a urostomy

et al. 2019

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Background: support garments are commonly worn by people with a urostomy but there are no published data about their experiences of doing so. Aims: to identify the views of people living with a urostomy on the role of support garments. Methods: a cross-sectional survey of the stoma population's experiences of support garments was conducted in 2018. Recruitment was by social media. The free-text responses provided by a sub-sample of 58 people out of 103 respondents with a urostomy, were analysed. Findings: thematic analysis revealed four themes: physical self-management; psychosocial self-management; lifestyle; and healthcare advice and support. There were mixed feelings about the value of support garments. Many cited a sense of reassurance and confidence and being able to be more sociable and active; others reported discomfort and uncertainty about their value. Conclusion: these findings add new understanding of experiences of support garments and provide novel theoretical insights about life with a urostomy.

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Section: Discussionmentioning

confidence: 57%

Experiences of wearing support garments by people living with a urostomy

et al. 2019

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“…Wearing a support garment can contribute to a feeling of safety, looking normal (Hubbard et al, 2019 ; Johnson et al, 2015 ) and conceal the parastomal bulge (Hubbard et al, 2019 ; Krogsgaard et al, 2017a ). Physical symptoms such as pain (Krogsgaard et al, 2017b ), a bearing-down or falling out sensation (Hubbard et al, 2019 ; Krogsgaard et al, 2017a ) can be relieved. A garment might prevent or contain a leakage of the stoma (Hubbard et al, 2019 ).…”

Section: Introductionmentioning

confidence: 99%

“…Physical symptoms such as pain (Krogsgaard et al, 2017b ), a bearing-down or falling out sensation (Hubbard et al, 2019 ; Krogsgaard et al, 2017a ) can be relieved. A garment might prevent or contain a leakage of the stoma (Hubbard et al, 2019 ). Some patients wear the garment to reduce the risk of developing a parastomal bulge or prevent enlargement of a bulge (Hubbard et al, 2019 ) although this is not supported by evidence (Krogsgaard, 2020 ).…”

Section: Introductionmentioning

confidence: 99%

“…A garment might prevent or contain a leakage of the stoma (Hubbard et al, 2019 ). Some patients wear the garment to reduce the risk of developing a parastomal bulge or prevent enlargement of a bulge (Hubbard et al, 2019 ) although this is not supported by evidence (Krogsgaard, 2020 ).…”

Section: Introductionmentioning

confidence: 99%

“…A garment is an adjustable belt or pants which are either a standard manufactured product or a bespoke garment custom made for the individual. Garments are available in different lengths, depths, colours and designs and may or may not be constructed with a hole that allows the pouch to be pulled through and worn outside the garment (Hubbard et al, 2019 ; Readding, 2014 ). Individual assessment is essential to ensure the best fit of the garment so as to manage symptoms from a parastomal bulge (Hubbard et al, 2019 ; Readding, 2014 ).…”

Section: Introductionmentioning

confidence: 99%

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Assessment of a support garment in parastomal bulging from a patient perspective: a qualitative study

Borglit

Krogsgaard

Theisen

et al. 2022

International Journal of Qualitative Studies on Health and Well

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Aim To investigate patients’ experiences of the assessment of support garments in relation to a parastomal bulge. Methods We conducted a qualitative study with semi-structured interviews preceded by field observations. The 11 in-dept interviews were analysed using interpretative phenomenological analysis. Results In the assessment process patients lacked information from professionals on the advantages, disadvantages as well as criteria for choosing between garments. Garments had to fit patients’ needs and personal preferences; being comfortable, flexible and user-friendly. The garment created new possibilities and challenges; well-assessed garments reduced symptoms while poorly assessed worsened or induced symptoms and ended up unworn. When comorbidities were not accounted for, garments were unmanageable to patients. Patients needed guidance on how to apply and use the garment. Lack of hands-on-guidance left patients confused and helpless with unworn garments. Re-assessment of a garment before it could be worn was time consuming, stressful and required patients’ physical and mental resources. Conclusion Exploring patients’ expectations, symptoms, needs and comorbidity was vital for patients’ subsequent use and benefit of garments. Tailor-made information, hands-on-guidance and professional assistance are important in the assessment process. Interventions to support a patient centred, individual and systematic approach is warranted.

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Physical activity after colorectal cancer surgery—a cross sectional study of patients with a long-term stoma

Krogsgaard

Andersen

Danielsen

et al. 2021

Support Care Cancer

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Physical activity is recommended to cancer survivors by the World Health Organisation (WHO) and is associated with improved survival after colorectal cancer. It remains unclear whether having a stoma is a barrier for an active lifestyle. We examined the level of physical activity and explored factors impacting physical activity in survivors with a stoma. MethodsA total of 1265 (65%) patients in the Danish Stoma Database completed a multidimensional survey.Physical activity of moderate-and vigorous-intensity was assessed using two validated questions. Based on WHO guidelines, physical activity was categorised into 'Meeting' or 'Not Meeting' recommendations.Multivariate regression analysis, adjusting for potential confounders, provided odds ratio (OR) and 95% confidence intervals (CI) for factors' association with 'Not Meeting' guideline recommendations. ResultsIn total, 571 patients with colorectal cancer reported on physical activity at a median of 4.3 years (interquartile range 3.1-5.8) after stoma surgery. Two hundred ninety-three patients (51%) were 'Meeting recommendations' and 63% of them were 'Highly active'. Two hundred seventy-eight were 'Not meeting' recommendations (49%).Of the factors analysed, patients without support garment were more likely (OR 1.72 [95% CI 1.16; 2.54] not to meet guideline recommendations. We found no association between stoma type, surgical procedure, parastomal bulging and 'problematic stoma' and level of physical activity, respectively. ConclusionIn this large sample of survivors with a stoma half of patients met or exceeded guideline recommendations.Of patients not meeting recommendations some could potentially meet the recommendations by modest increases in either moderate or vigorous activity.

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Experiences of support garments following bowel stoma formation: analysis of free-text responses in a cross-sectional survey

Cited by 8 publications

References 36 publications

Experiences of wearing support garments by people living with a urostomy

Experiences of wearing support garments by people living with a urostomy

Assessment of a support garment in parastomal bulging from a patient perspective: a qualitative study

Physical activity after colorectal cancer surgery—a cross sectional study of patients with a long-term stoma

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