Experiences of Stress among Mothers of Preschoolers with Atopic Dermatitis

Kwen, Hwayoung; Shin, Sung Rae

doi:10.4094/chnr.2018.24.2.166

Cited by 4 publications

(13 citation statements)

References 1 publication

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“…A dominant belief was that eczema is misunderstood or dismissed as trivial by health professionals, friends, family and wider society as ‘just a bit of dry skin’ 16–18,21–23,25–27,31,43–49,51 . Some studies highlighted how parents felt that family and friends normalized sleep loss as being a normal part of parenting, failing to recognize chronic sleep loss as related to eczema.…”

Section: Resultsmentioning

confidence: 99%

“…A common belief among families was that dietary avoidance might represent a potential 'cure'; many described having tried this and described frustration with healthcare professionals' perceived lack of interest in exploring dietary causes. 14,18,[21][22][23]26,28,31,32,41,[50][51][52]…”

Section: Synthesis Of Findingsmentioning

confidence: 99%

“…A sense of blame, guilt and worry were common, especially parental feelings of inadequacy in their ability to prevent the eczema, envy of other parents with perceived 'normal' children and fears and concerns about the impact on their child's self-esteem and social interactions. [16][17][18]21,23,[26][27][28]33,36,38,41,42,44,45,[47][48][49][50][51] Eczema not viewed as a long-term condition Desire to seek an underlying cause and potential 'cure' for eczema 'The condition of my AE child is getting worse. I try my best to relieve his suffering.…”

Section: Perceived Impact On Physical and Emotional Wellbeingmentioning

confidence: 99%

“…Participants commonly reported changing behaviours and modifying everyday routines in response to eczema symptoms, in a desire to avoid potential irritants and adhere to treatment regimes. [14][15][16][17][18][19][20]23,34,37,51 Studies highlighted participants' experiences of restricting social activities, work activities or career choices to prevent flare-ups. In contrast, a desire to live an 'ordinary' life and not let eczema impact on routines or behaviours was evident in some studies.…”

Section: Perceived Impact On Everyday Routines/family Lifementioning

confidence: 99%

“…As well as restricting or giving up certain activities, a common impact among parents was dealing with the extra burden on daily life of caring for a child with eczema. [14][15][16][17][18][19][20]23,34 Many parents described carrying out extra tasks to manage their child's eczema, e.g. applying topical treatments, extra washing and cleaning, buying particular clothing.…”

Section: Perceived Impact On Everyday Routines/family Lifementioning

confidence: 99%

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Views and experiences of managing eczema: systematic review and thematic synthesis of qualitative studies*

et al. 2020

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Summary Background The number of qualitative studies on eczema has increased rapidly in recent years. Systematically reviewing these can provide greater understandings of people’s perceptions of eczema and eczema treatments. Objectives We sought to systematically review and thematically synthesize qualitative studies exploring views and experiences of people with eczema and parents/carers of children with eczema. Methods We searched MEDLINE, EMBASE, PsycINFO and CINAHL from the earliest date available to February 2019. We selected papers focusing on views and experiences of eczema and eczema treatments, and barriers/facilitators to eczema self‐management. We excluded papers focusing on health service provision models or health professionals’ views. Results We synthesized 39 papers (reporting 32 studies) from 13 countries. We developed four analytical themes: (1) Eczema not viewed as a long‐term condition; (2) Significant psychosocial impact not acknowledged by others; (3) Hesitancy (patient/carer uncertainty) about eczema treatments; and (4) Insufficient information and advice. Our findings suggest that people with eczema and their carers experience frustration at having to manage a condition that is often seen by others as mundane but has significant psychosocial impact and is difficult to manage due to concerns about, and burden of, treatment. This frustration can be exacerbated by experiences of conflicting and/or insufficient information and advice from health professionals, family and others. Conclusions Effective self‐management of eczema could be supported by addressing beliefs and concerns about treatments; seeking positive ways to promote a ‘control not cure’ message; acknowledging psychosocial impacts of eczema and treatment burden; and providing clear consistent advice or signposting towards reliable information.

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Section: Resultsmentioning

confidence: 99%

Section: Synthesis Of Findingsmentioning

confidence: 99%

Section: Perceived Impact On Physical and Emotional Wellbeingmentioning

confidence: 99%

Section: Perceived Impact On Everyday Routines/family Lifementioning

confidence: 99%

Section: Perceived Impact On Everyday Routines/family Lifementioning

confidence: 99%

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Views and experiences of managing eczema: systematic review and thematic synthesis of qualitative studies*

et al. 2020

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How has the COVID‐19 pandemic affected eczema self‐management and help seeking? A qualitative interview study with young people and parents/carers of children with eczema

Steele

Howells

Santer

et al. 2021

Skin Health and Disease

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Background Eczema can have a considerable impact on quality of life. Treatments can improve this, but management is complex. Barriers to eczema self‐management may be impacted upon by environmental context, such as the COVID‐19 pandemic. Objectives To explore experiences of eczema, self‐management, and accessing healthcare and advice during the COVID‐19 pandemic among young people with eczema and parents/carers of children with eczema. Methods Qualitative semi‐structured interviews were carried out with 36 participants recruited from general practices as part of randomised controlled trials of online eczema resources. Results Changes to everyday life— Periods of staying at home due to the pandemic alter the burden of eczema, with reports of an improved routine and application of topical treatments for many, but difficulties with handwashing for others. Parents/carers reported improved eczema control due to closures of educational settings. Young people reported higher stress that may have triggered eczema flare‐ups. Changes to access to advice and treatment— There was a reluctance to seek medical appointments in a non‐emergency situation. Participants reported a lack of trust in the outcome of telephone consultations because health professionals were unable to see or feel the skin. Delays or difficulties when obtaining appointments and treatments caused frustration. Access to an online eczema resource was reported to have extra value in the context of the pandemic. Conclusion Changes to lifestyle and access to healthcare during the pandemic have affected eczema and self‐management. Healthcare settings may want to consider providing extra reassurance around remote consultations.

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