Experiences of recovery and posthospital care needs of working-age adults after physical trauma: a qualitative focus group study

Roodbeen, Ruud; Lugtenberg, Marjolein; Pöstges, Heide; Lansink, Koen W.W.; Theeuwes, Hilco P.; Jongh, Mariska A. C. de; Joosen, Margot C. W.

doi:10.1136/bmjopen-2021-053330

Cited by 5 publications

(3 citation statements)

References 36 publications

(42 reference statements)

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“…Furthermore, as also indicated by melanoma survivors [ 6 ], HCPs stressed the need of focusing on broader SSC i.e., including psychosocial care. This is consistent with other studies both within [ 30 – 32 ] and outside the field of (skin)cancer [ 33 ], in which the need for non-medical care was emphasised. Our study is the first to show that HCPs share this view.…”

Section: Discussionsupporting

confidence: 92%

Oncological healthcare providers’ perspectives on appropriate melanoma survivorship care: a qualitative focus group study

et al. 2023

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Background The increasing group of melanoma survivors reports multiple unmet needs regarding survivorship care (SSC). To optimise melanoma SSC, it is crucial to take into account the perspectives of oncological healthcare providers (HCPs) in addition to those of patients. The aim of this study is to gain an in-depth understanding of HCPs’ perspectives on appropriate melanoma SSC. Methods Four online focus groups were conducted with mixed samples of oncological HCPs (dermatologists, surgeons, oncologists, oncological nurse practitioners, support counsellors and general practitioners) (total n = 23). A topic guide was used to structure the discussions, focusing on perspectives on both SSC and survivorship care plans (SCPs). All focus groups were recorded, transcribed verbatim, and subjected to an elaborate thematic content analysis. Results Regarding SSC, HCPs considered the current offer minimal and stressed the need for broader personalised SSC from diagnosis onwards. Although hardly anyone was familiar with SCPs, they perceived various potential benefits of SCPs, such as an increase in the patients’ self-management and providing HCPs with an up-to-date overview of the patient’s situation. Perceived preconditions for successful implementation included adequate personalisation, integration in the electronic health record and ensuring adequate funding to activate and provide timely updates. Conclusions According to HCPs there is considerable room for improvement in terms of melanoma SSC. SCPs can assist in offering personalised and broader i.e., including psychosocial SSC. Aside from personalisation, efforts should be focused on SCPs' integration in clinical practice, and their long-term maintenance.

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Section: Discussionsupporting

confidence: 92%

Oncological healthcare providers’ perspectives on appropriate melanoma survivorship care: a qualitative focus group study

et al. 2023

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“…In the Netherlands, orthopaedic trauma rehabilitation care encompasses in-hospital care, outpatient clinics, and ultimately the patients' home environment. [9][10][11][12] The Dutch system uses a multidisciplinary approach to achieve optimal transitioning back to function, prioritizing effective communication between health care professionals. However, a national report on continuity of care highlighted concerns about health care sustainability, including rehabilitation care, and proposed a shift from institutional care to home-based care.…”

Section: The Netherlandsmentioning

confidence: 99%

Rehabilitation after musculoskeletal injury: European perspective

Kelly,

Donovan,

Dailiana

et al. 2024

OTA International

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Trauma is one of the main causes of death in younger people and ongoing disability worldwide. In Europe, while there is generally good organization of trauma reception and acute treatment, rehabilitation from major musculoskeletal injuries is less well defined and provided. This article documents the diverse approaches to rehabilitation after major injury in 6 European nations. The recognition of need is universal, but achieving a robust rehabilitation strategy is more elusive across the varying health care systems. Switzerland has the most robust service in the insured population. In the other countries, particularly where there is a reliance on public institutes, this provision is at best patchy. In the Netherlands, innovative patient-empowering strategies have gained traction with notable success, and in the United Kingdom, a recent randomized trial also showed this approach to be reproducible and robust. Overall, there is a clear need for learning across the national systems and implementation of a minimum set of standards.

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“…The Cross-Sectional and Longitudinal Interconnectedness of Physical, Psychological and Role Functioning Following Physical Trauma: A Network Analysis Surviving injury-induced physical trauma (hereafter: physical trauma) can have a longlasting impact on one's daily life. Even though most physical complaints improve during the first three months post-injury [1], trauma patients can still experience impaired functioning in the months thereafter, such as poor physical health, psychological complaints, and problems in daily life and work activities (i.e., role functioning [2]) [3][4][5][6][7][8][9]. Importantly, these limitations can be experienced independent of the Injury Severity Score (ISS) [3,[10][11][12] and type of injury [3], which begs the conclusion that there is more to trauma recovery than injury characteristics alone.…”

mentioning

confidence: 99%

The Cross-Sectional and Longitudinal Interconnectedness of Physical, Psychological, and Role Functioning following Physical Trauma: A Network Analysis

Enting,

de Jongh,

Joosen

et al. 2023

Preprint

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Objective. Surviving physical trauma can have a large impact on one’s daily life. Patients are at increased risk for poor physical health, psychological complaints, and problems in role functioning – which is often experienced simultaneously. The present study explores the interconnectedness of physical, psychological, and role functioning during the first two years post-injury, both cross-sectionally and longitudinally from a network perspective.Methods. 3785 trauma patients (Mage = 64.2 years, SDage = 18.9 years, 50.5% female) completed questionnaires on physical, psychological, and role functioning across six measurement occasions during the first two years post-injury. The Injury Severity Score (ISS) was retrieved from the local trauma registry. Mixed graphical network models and cross-lagged network models were estimated to examine which items of recovery played a central role and were mostly related to other items in cross-sectional and longitudinal networks respectively.Results. The cross-sectional networks showed especially strong interconnections between impairments of physical and role functioning and also within post-traumatic stress symptoms. The longitudinal networks extended these results by showing that pain, impaired mobility, limitations in self-care, anxiety/depressive symptoms, and several post-traumatic stress symptoms were strong predictors for impairments in functioning at later stages of recovery.Conclusion. Our findings showed that impairments in physical, psychological, and role functioning experienced by trauma patients are largely intertwined across the two years following injury. Monitoring physical impairments and psychological complaints early in recovery can help to more promptly provide the best fitting aftercare for trauma patients, which can improve recovery on the long-term.

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Experiences of recovery and posthospital care needs of working-age adults after physical trauma: a qualitative focus group study

Cited by 5 publications

References 36 publications

Oncological healthcare providers’ perspectives on appropriate melanoma survivorship care: a qualitative focus group study

Oncological healthcare providers’ perspectives on appropriate melanoma survivorship care: a qualitative focus group study

Rehabilitation after musculoskeletal injury: European perspective

The Cross-Sectional and Longitudinal Interconnectedness of Physical, Psychological, and Role Functioning following Physical Trauma: A Network Analysis

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