Experiences of people with severe aphasia and spouses attending an Interdisciplinary Community Aphasia Group

Attard, Michelle; Loupis, Yasmine; Togher, Leanne; Rose, Miranda

doi:10.1080/09638288.2018.1526336

Cited by 13 publications

(7 citation statements)

References 46 publications

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“…There are also studies that failed to detect significant change on a range of mood, well-being and identity measures following group intervention [18]. More positively, personal accounts from those who received group therapy suggest that groups can promote feelings of well-being [19] and lead to positive changes in self-identity [20].…”

Section: Introductionmentioning

confidence: 99%

A randomised trial of social support group intervention for people with aphasia: A Novel application of virtual reality

et al. 2020

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About a third of strokes cause aphasia, or language loss, with profound consequences for the person's social participation and quality of life. These problems may be mitigated by group social support. But this intervention is not available to all individuals. This study investigated whether it is feasible to deliver group social support to people with aphasia via a multiuser , virtual reality platform. It also explored the indicative effects of intervention and the costs. Intervention aimed to promote wellbeing and communicative success. It enabled participants to form new social connections and share experiences of living with aphasia. It comprised 14 sessions delivered over 6 months and was led by community based coordinators and volunteers. Feasibility measures comprised: recruitment and retention rates, compliance with intervention and assessment of treatment fidelity. Effects of intervention were explored using a waitlist randomised controlled design, with outcome measures of wellbeing, communication, social connectedness and quality of life. Two intervention groups were randomised to an immediate condition and two were randomised to a delayed condition. The main analysis explored scores on the measures between two time points, between which those in the immediate condition had received intervention, but those in the delayed group had not (yet). A comprehensive approach to economic data collection ensured that all costs of treatment delivery were recorded. Feasibility findings showed that the recruitment target was met (N = 34) and 85.3% (29/34) of participants completed intervention. All groups ran the 14 sessions as planned, and participants attended a mean of 11.4 sessions (s.d. 2.8), which was 81.6% of the intended dose. Fidelity checking showed minimal drift from the manualised intervention. No significant change was observed on any of the outcome measures, although the study was not powered to detect these. Costs varied across the four groups, from £7,483-£12,562 British Pounds Sterling ($10,972-$18,419 US dollars), depending on travel costs, the relative contributions of volunteers and the number of hardware loans that were needed. The results suggest that a larger trial of remote group support,

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Section: Introductionmentioning

confidence: 99%

A randomised trial of social support group intervention for people with aphasia: A Novel application of virtual reality

et al. 2020

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“…The research team devised a semi‐structured interview guide (Table 2) that was informed by the literature on lived experience of people with aphasia after stroke (Attard et al., 2020; Baker et al., 2021; Beeke et al., 2015; Berg et al., 2017). The interview guide asked the participants for their experiences of attending group‐based programme(s), their thoughts and feelings during interactions with the facilitators and group members, and their satisfaction with their participation.…”

Section: Methodsmentioning

confidence: 99%

“…A qualitative study of four people with chronic, severe post-stroke aphasia found that these people perceived the community-based group sessions as helpful in providing them with a sense of support and motivation (Attard et al, 2020).…”

Section: Introductionmentioning

confidence: 99%

“…An observational study involving 10 people with severe non‐fluent post‐stroke aphasia showed that they often initiated more communication during group sessions than during individual sessions and used more vocalizations and facial expressions to communicate and maintain social connections with group members (Fama et al., 2016). A qualitative study of four people with chronic, severe post‐stroke aphasia found that these people perceived the community‐based group sessions as helpful in providing them with a sense of support and motivation (Attard et al., 2020).…”

Section: Introductionmentioning

confidence: 99%

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Experiences of participating in group‐based rehabilitation programmes: A qualitative study of community‐dwelling adults with post‐stroke aphasia

Chau

2023

Intl J Lang & Comm Disor

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Background: People with post-stroke aphasia tend to have smaller social networks, a higher risk of depression and poorer health-related quality of life than those who do not have aphasia after stroke. Stroke-specific or general rehabilitation programmes offered by community-based organizations are commonly group-based and involve discussions among group members with or without stroke. Research has shown that people with post-stroke aphasia may be unable to participate fully in verbal sharing of experiences and exchange of thoughts. Aims:To explore the experiences of people with post-stroke aphasia in relation to participating in group-based rehabilitation programmes organized by community-based organizations. Methods & Procedures:A qualitative design was adopted, including individual, semi-structured interviews with 20 adults with post-stroke aphasia recruited from community-based rehabilitation centres and support groups. The participants had a mean age of 68.86 ± 13.54 years and a mean post-stroke duration of 9.24 ± 7.72 years. They had participated in at least one group-based rehabilitation programme organized by community-based organizations in the past year. The participants were asked about their experiences of attending group-based programme(s), thoughts and feelings while interacting with the facilitators and group members, and satisfaction with their participation. The interview data were thematically analysed.Outcomes & Results: Three themes were identified: (1) hurdles to active and fulfilling participation including the dominance of verbal sharing, short duration of the programme, being a minority in the group and accumulated negative experiences; (2) strategies adopted to improve participation including accepting a reduced speaking ability, having support from caregivers, and trying mobile apps to vocalize and supplement meanings; and (3) a preference for certainThis is an open access article under the terms of the Creative Commons Attribution-NonCommercial-NoDerivs License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non-commercial and no modifications or adaptations are made.

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“…O processo de cuidar é marcado por cansaço, estresse e esgotamento, o que coloca a família cuidadora na posição de necessitar, ela própria, de cuidado e de atenção (12) . É na fase de reabilitação que os familiares, cuidadores e o paciente experimentam totalmente o impacto do AVC, pois as mudanças ocasionadas no estilo de vida dos indivíduos afásicos refletem na vida dos seus cuidadores (16) .…”

Section: Introductionunclassified

O impacto na qualidade de vida de cuidadores inseridos em um ambiente de terapia grupal para afásicos

Lima

Silveira

Lima

2021

Audiol., Commun. Res.

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RESUMO Objetivo o presente estudo comparou a qualidade de vida e percepções de cuidadores de sujeitos afásicos inseridos em um contexto de terapia grupal para afásicos. Métodos trata-se de um estudo transversal, observacional e quantitativo, realizado com 13 cuidadores de indivíduos afásicos que receberam atendimento grupal e 13 cuidadores de sujeitos afásicos que não receberam atendimento fonoaudiólogo grupal. Para coleta dos dados, foram realizadas entrevistas individuais com os cuidadores e utilizou-se o Questionário de Sobrecarga do Cuidador (Burden Interview – Zarit). Resultados constatou-se que 45,2% dos cuidadores referiram sobrecarga de moderada a severa. No entanto, a sobrecarga avaliada por meio do questionário foi de leve a moderada e sem diferença significativa entre o grupo com e sem terapia fonoaudiológica. Conclusão existe importante impacto na qualidade de vida de cuidadores de pacientes com afasia. Novos estudos são necessários para aprofundamento do papel da terapia fonoaudiológica em grupo na qualidade de vida de cuidadores.

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Experiences of people with severe aphasia and spouses attending an Interdisciplinary Community Aphasia Group

Cited by 13 publications

References 46 publications

A randomised trial of social support group intervention for people with aphasia: A Novel application of virtual reality

A randomised trial of social support group intervention for people with aphasia: A Novel application of virtual reality

Experiences of participating in group‐based rehabilitation programmes: A qualitative study of community‐dwelling adults with post‐stroke aphasia

O impacto na qualidade de vida de cuidadores inseridos em um ambiente de terapia grupal para afásicos

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