Experiences of Iranian Women with Prenatal Diagnosis of Fetal Abnormalities: A Qualitative Study

Abstract

Women are more likely to be diagnosed with congenital anomalies due to advances in new technologies in medical science. Following prenatal diagnosis of fetal abnormalities, women may be forced to make decisions about whether to continue a pregnancy with fetal abnormalities. This can be a dilemma for the women. The aim of the study was to explore women’s experiences of prenatal diagnosis of fetal abnormalities. A qualitative study was conducted in a referral women’s hospital in Tehran, Iran in 2018. Participants were a purposeful sample of 15 women with prenatal diagnosis of fetal abnormalities. Data were collected by individual, in-depth interviews. The conventional content analysis approach was used to analyze the data. Two main themes “emotional suffering” and “decision-making challenge” were extracted from the participants’ experiences. Emotional suffering consisted of subthemes “commiseration,” “self-blame,” “sense of guilt,” and “projection.” Decision-making challenge included subthemes “lack of support,” “stereotypical beliefs,” and “uncertainty.” The women’s experiences of prenatal diagnosis of fetal abnormalities were associated with emotional suffering and challenges in decision-making to continue or terminate the pregnancy. Strategies need to be employed to improve women’s autonomy in decision-making. Healthcare professionals should be trained in communication skills to provide appropriate counseling to support women with diagnosis of fetal anomalies.

What is Known About Critical Congenital Heart Disease Diagnosis and Management Experiences from the Perspectives of Family and Healthcare Providers? A Systematic Integrative Literature Review

“…The parental experience of decision-making following a diagnosis of a fetal abnormality is complex and challenging [6][7][8][9]. Scholars and clinicians acknowledge that receiving an unexpected diagnosis of congenital heart disease is significant, usually resulting in parental grief and adaptation [8][9][10].…”