Experiences of fathers regarding the diagnosis of their child with autism spectrum disorder: A narrative review of the international research

Brown, Michael; Marsh, Lynne; McCann, Edward

doi:10.1111/jocn.15781

Cited by 5 publications

(6 citation statements)

References 45 publications

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“…Similar to previous reviews by Brown et al (2021), Esper et al (2021), and Marsh et al (2020), fathers in our review who were met with optimism from HCPs and had adequate resources felt empowered and motivated. According to Hill et al (2013), good communication between patients and physicians resulted in marked improvements in health outcomes and patient satisfaction.…”

Section: Discussionsupporting

confidence: 86%

“…According to Hill et al (2013), good communication between patients and physicians resulted in marked improvements in health outcomes and patient satisfaction. Comparable with a review by Brown et al (2021), some fathers in our review felt that they were excluded from care plan discussions, had their inputs dismissed, and their needs were overlooked due to gender stereotypes. This is concerning as fathers of children with NDD have been shown to have unique experiences and needs regarding treatment and support from mothers (Papageorgiou & Kalyva, 2010); and parental experiences with first-line HCPs are positively associated with levels of confidence and trust in future relationships between parents and service providers (Boshoff et al, 2019).…”

Section: Discussionmentioning

confidence: 85%

“…In total, 13 reviews exploring only fathers' experiences of caring for children with NDD in the last 10 years (2012–2021) were found. However, of these studies, the majority were narrative reviews (Bonsall, 2014; Brown et al, 2021; Davys et al, 2016; Khanlou et al, 2015), quantitative reviews (Flippin & Crais, 2011; Perzolli et al, 2021), scoping reviews (Bogossian et al, 2019; Boyd et al, 2019), and mixed‐methods reviews (Marsh et al, 2020; Rankin et al, 2019). Only two were qualitative reviews (Esper et al, 2021; Lashewicz et al, 2017).…”

Section: Introductionmentioning

confidence: 99%

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Experiences of fathers caring for children with neurodevelopmental disorders: A meta‐synthesis

Shorey

Pereira

2022

Family Process

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Parents raising children with neurodevelopmental disorders (NDD) experience greater family, health, and psychosocial dysfunction due to the compounding nature of children's NDD and disease manifestations. Furthermore, the experiences of fathers and mothers are significantly different, and there is a paucity of consolidated evidence on fathers' experiences. A systematic review and meta-synthesis were conducted using Sandelowski and Barroso's approach. Six electronic databases were searched for relevant articles published between November 2011 and November 2021. Thirty-eight studies were included in this review. An overarching theme "Out of the Shadows, and Into the Sunshine" emerged along with four main themes: (a) "The Illness Is All the Time": An Overwhelming Experience, (b) "Navigating health care and Education Systems," (c) "Strong Alone, Stronger Together," and (d) "My Child Is Different Not Less: A Different Perspective." This meta-synthesis analyzed the facilitators and barriers married fathers of children with NDD faced and suggested a paradigm shift where these fathers are becoming more actively involved in the care of their children. There is a need for family clinicians and therapists and health care, education, and workforce policymakers to collaborate to tackle the current and potential unique barriers faced by fathers of children with NDD.

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Section: Discussionsupporting

confidence: 86%

Section: Discussionmentioning

confidence: 85%

Section: Introductionmentioning

confidence: 99%

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Experiences of fathers caring for children with neurodevelopmental disorders: A meta‐synthesis

Shorey

Pereira

2022

Family Process

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“…Parents identified several benefits of receiving their child's autism diagnosis and raising an autistic child, included becoming more patient and less judgemental. Similarly, Brown et al's ( 21 ) narrative review of father's experiences revealed an ongoing period of adjustment to their child's autism diagnosis, leading to acceptance of the child and gratefulness for the knowledge and experiences gained. This period of adjustment was framed positively as leading to a stronger parental bond with their child.…”

Section: Introductionmentioning

confidence: 98%

Factors associated with parental resolution of a child's autism diagnosis: A systematic review

Naicker

Bury²,

Hedley³

2023

Front. Psychiatry

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BackgroundReceiving a child's autism diagnosis can be stressful; as such, parent resolution contributes to the wellbeing and development of healthy parent-child relationships. In other significant childhood diagnoses (e.g., cerebral palsy, diabetes), the degree to which parents adjust to (a) their child's diagnosis and (b) their changes in expectations concerning their child's development and capacity (referred to as resolution to diagnosis), has been associated with improved outcomes including facilitating parent-child relationships and improved parental wellbeing. Given potential benefits to parent and child, and the heterogenous nature of autism, examining the unique factors associated with resolution to diagnosis is important. In this systematic review we identified factors that support or inhibit parental resolution to their child receiving a diagnosis of autism.MethodsWe completed a systematic review following PRISMA guidelines of peer-reviewed studies from 2017 to 2022, that investigated parental resolution or acceptance of an autism diagnosis. Papers including “acceptance” needed to encompass both accepting the diagnosis and the implications regarding the child's abilities. We searched six databases (Scopus, Web of Science, MEDLINE, PsycINFO, ProQuest), with additional papers located following review of reference lists.ResultsFourteen papers with 592 participants that investigated parental resolution or acceptance of an autism diagnosis, were included. We identified six common factors that facilitate or inhibit parental resolution and acceptance of an autism diagnosis including: symptom severity; religion, belief, and culture; knowledge and uncertainty; negative emotions (i.e., denial, shame, guilt); positive emotions; and support. Greater resolution was associated with improved “attunement and insightfulness” in the parent-child relationship.LimitationThe review was limited by the small number of studies meeting inclusion criteria. Second, the quality of included studies was mixed, with over half of the studies being qualitative and only one randomized control trial (RCT) identified.ConclusionParental resolution can have an impact on parent's perception of their child's capabilities and impact the parent-child relationship. We identified six categories that aid in inhibiting or promoting resolution to diagnosis. Despite taking a broad approach on the definition of resolution, the low number of studies identified in the review indicates a need for more research in this area.Systematic review registrationhttp://www.crd.york.ac.uk/PROSPERO/, PROSPERO [ID: CRD42022336283].

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“…The topic of neurodiversity is not new. In fact, the Journal of Clinical Nursing has published papers exploring topics such as the experiences of having tics (Lee et al., 2019) or autism (Brown et al., 2021). Consequently, nurses will either interact clinically with persons who are neurodivergent, conduct research with or about them or work professionally with them.…”

mentioning

confidence: 99%

Enhancing the nursing profession's awareness of neurodiversity

Frawley,

Gavin,

Valeur

et al. 2023

Journal of Clinical Nursing

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Experiences of fathers regarding the diagnosis of their child with autism spectrum disorder: A narrative review of the international research

Abstract: This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.

Cited by 5 publications

References 45 publications

Experiences of fathers caring for children with neurodevelopmental disorders: A meta‐synthesis

Experiences of fathers caring for children with neurodevelopmental disorders: A meta‐synthesis

Factors associated with parental resolution of a child's autism diagnosis: A systematic review

Enhancing the nursing profession's awareness of neurodiversity

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