Experiences of families and health professionals along the care continuum for low‐birth weight neonates: A constructivist grounded theory study

Schuler, Christina; Waldboth, Veronika; Ntow, George Edward; Agbozo, Faith

doi:10.1111/jan.15566

Cited by 4 publications

(5 citation statements)

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“…The themes were broadly categorized into family-system and health system drivers. The four themes related to family-system drivers are described elsewhere [ 78 ]. In this paper, we focus on the six health systems drivers: strengthening 1) postnatal discharge; 2) review; 3) referral system; 4) efficient dissemination and implementation of guidelines; 5) supportive supervision and staff motivation and lastly; 6) investments into care coordination, training and human resource.…”

Section: Resultsmentioning

confidence: 99%

“…Training health care professionals on family systems care can be an avenue to include families of LBW infants more into the care continuum for LBW infants. With a family systems care approach, the autonomy of mothers can be maintained through careful assessment of the family’s structure and gender’s influence, cultural beliefs and who should be with the mother based on her preferences [ 56 , 78 , 91 ]. This can enhance quality of care, reduce tension within the family as well as the financial burden for families and the health system [ 59 , 84 , 93 ].…”

Section: Discussionmentioning

confidence: 99%

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Health-system drivers influencing the continuum of care linkages for low-birth-weight infants at the different care levels in Ghana

Schuler,

Agbozo,

Ntow

et al. 2023

BMC Pediatr

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Background Low birth weight (LBW) is associated with short and long-term consequences including neonatal mortality and disability. Effective linkages in the continuum of care (CoC) for newborns at the health facility, community (primary care) and home care levels have a high tendency of minimizing adverse events associated with LBW. But it is unclear how these linkages work and what factors influence the CoC process in Ghana as literature is scarce on the views of health professionals and families of LBW infants regarding the CoC. Therefore, this study elicited the drivers influencing the CoC for LBW infants in Ghana and how linkages in the CoC could be strengthened to optimize quality of care. Methods A constructivist grounded theory study design was used. Data was collected between September 2020 to February 2021. A total of 25 interviews were conducted with 11 family members of LBW infants born in a secondary referral hospital in Ghana, 9 healthcare professionals and 7 healthcare managers. Audio recordings were transcribed verbatim, analyzed using initial and focused coding. Constant comparative techniques, theoretical memos, and diagramming were employed until theoretical saturation was determined. Results Emerging from the analysis was a theoretical model describing ten major themes along the care continuum for LBW infants, broadly categorized into health systems and family-systems drivers. In this paper, we focused on the former. Discharge, review, and referral systems were neither well-structured nor properly coordinated. Efficient dissemination and implementation of guidelines and supportive supervision contributed to higher staff motivation while insufficient investments and coordination of care activities limited training opportunities and human resource. A smooth transition between care levels is hampered by procedural, administrative, logistics, infrastructural and socio-economic barriers. Conclusion A coordinated care process established on effective communication across different care levels, referral planning, staff supervision, decreased staff shuffling, routine in-service training, staff motivation and institutional commitment are necessary to achieve an effective care continuum for LBW infants and their families.

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Section: Resultsmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Health-system drivers influencing the continuum of care linkages for low-birth-weight infants at the different care levels in Ghana

Schuler,

Agbozo,

Ntow

et al. 2023

BMC Pediatr

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“…Then, after implementing it for 6 meetings, the patient appeared cooperative, there was eye contact, the patient was willing to socialize and take part in activities with friends, the patient seemed no longer alone. And from the two patients it was found that complaints of hearing whispers were greatly reduced and they felt better every day after receiving guidance on controlling hallucinations from the nurse [9].…”

Section: Discussionmentioning

confidence: 99%

Nursing Care in Tn. B And Tn. S with Disorders of Sensory Perception: Hallucinations

Asmarita,

Mahendra

2023

CHIPROF

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This study aims to explain and evaluate the implementation of nursing care for patients who experience auditory hallucinations. The research method uses a case study approach by collecting data from initial assessments, nursing diagnoses, care plans, nursing interventions, evaluations, and discharge planning. The research results show that an initial assessment is carried out by identifying mental health history, behavior related to hallucinations, and triggering factors that may influence the patient's condition. The nursing diagnosis was determined as sensory perception disorder: auditory hallucinations. The treatment plan involves collaboration with the mental health team, behavioral monitoring, emotional support, and education of the patient and family. Nursing interventions include explanation of the nature of hallucinations, assistance in identifying reality, and use of relaxation and distraction techniques. Evaluations are carried out to assess the patient's response to the interventions provided and monitor changes in the intensity or frequency of hallucinations, discharge planning and provide information regarding warning signs. Conclusion: Nursing care for patients with sensory perception disorders requires a holistic approach and collaboration between nurses and the mental health team. Education for patients and families also has an important role in supporting the management of this condition.

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“…Planning the return of a baby with low birth weight from the hospital is a critical stage in the care of the baby. The mother's self-confidence level strongly influences home care success after hospital discharge (Schuler et al, 2023). The mother's confidence in caring for a low-birth-weight baby is crucial in ensuring that the baby gets the appropriate care for her medical needs.…”

Section: Introductionmentioning

confidence: 99%

Overview of mom's confidence when planning to return low birth weight baby from the hospital

Setyawati,

Wijayanti,

Ratnasari

et al. 2024

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Introduction: Babies with low birth weight are one of the health problems often faced by mothers and families in various countries, including Indonesia. The return of babies with low birth weights from the hospital became a critical stage in their care after a period of intensive hospitalization. Objective: Describe the mother's confidence level when planning to return a baby with a low birth weight to the hospital. Method: quantitative research with a descriptive design involving 29 respondents. This study used non-probability and consecutive sampling techniques to determine subjects who met the inclusion criteria. The measuring instrument uses the Maternal Confidence Questionnaire Instrument, and the analysis results are descriptive data equipped with tables. Results: Most of the self-confidence of mothers planning to return home with high-birth-weight babies from the hospital was high among 16 respondents (55.2%). Factors that influence a mother's confidence include previous experience caring for a child, social support from family and friends, information and education provided by medical personnel, and an adequate financial condition and environment for the care of the baby. Conclusion: The mother's self-confidence plays a crucial role in planning the return of a low-birthweight baby from the hospital. Social support, knowledge of baby care, interaction with health workers, and understanding of the baby's health condition contribute to the mother's confidence. A holistic approach involving adequate social support, information and education, and financial and environmental readiness to increase maternal confidence in caring for a low-birth-weight baby after discharge from the hospital

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Experiences of families and health professionals along the care continuum for low‐birth weight neonates: A constructivist grounded theory study

Abstract: This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.

Cited by 4 publications

References 95 publications

Health-system drivers influencing the continuum of care linkages for low-birth-weight infants at the different care levels in Ghana

Health-system drivers influencing the continuum of care linkages for low-birth-weight infants at the different care levels in Ghana

Nursing Care in Tn. B And Tn. S with Disorders of Sensory Perception: Hallucinations

Overview of mom's confidence when planning to return low birth weight baby from the hospital

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