Experiences of encounters with healthcare professionals through the lenses of families living with chronic illness

Årestedt, Liselott; Persson, Carina; Rämgård, Margareta; Benzein, Eva

doi:10.1111/jocn.14126

Cited by 15 publications

(30 citation statements)

References 50 publications

(69 reference statements)

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“…They take over and make decisions about the older person's needs to increase the feeling of being safe, but the results show that this gives the older person a feeling of being deprived of autonomy. In line with the results of this study, previous studies (Årestedt et al, 2018;Mazer et al, 2014) have found that family members base the conversations with healthcare providers on their own beliefs and consider it as their mission and duty to speak for and to see to the older person's interests. The families explained their actions and stated how illness in older persons was not taken seriously by healthcare providers.…”

Section: Discussionsupporting

confidence: 89%

“It is like living in a diminishing world”: older persons’ experiences of living with long-term health problems – prior to the STRENGTH intervention

Åberg

Gillsjö

Hällgren

et al. 2020

International Journal of Qualitative Studies on Health and Well

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Introduction: Ageing is often associated with multiple long-term health problems influencing older persons' well-being in daily living. It is not unusual that the point of interest in research is often on the management of the actual health problem instead of being holistic and person-centred. Purpose: To describe the phenomenon of living with long-term health problems that influence daily living, from the older persons' perspective. Methods: Qualitative individual interviews were conducted with 34 older persons living with long-term health problems. The data were analysed using a Reflected Lifeworld Research (RLR) approach, grounded in phenomenology. Results: Life with long-term health problems entails living in a diminishing world. It entails living in uncertainty, not being able to trust one's own ability. The freedom to make decisions of your own is deprived by relatives and health-care providers. Living with long-term health problems entails being dependent on support in daily life and a strive to maintain meaningfulness in daily living. Conclusions: The results address a need for extended individual and holistic guidance and support in living with long-term health problems to increase the older person's sense of wellbeing and meaning in life.

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Section: Discussionsupporting

confidence: 89%

“It is like living in a diminishing world”: older persons’ experiences of living with long-term health problems – prior to the STRENGTH intervention

Åberg

Gillsjö

Hällgren

et al. 2020

International Journal of Qualitative Studies on Health and Well

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“…Concretely, caregiver’s resilience refers to how caregivers use effective coping strategies, transforming the burden of caregiving into strengths [ 56 ]. Dialogue and communication are presented as a fundamental element for the correct coping of the living, with processes both between couples [ 36 , 50 ] and between the different members of the family [ 7 , 37 , 40 , 43 ]. These was also identified by Helgeson et al (2018), Dekawaty et al [ 33 ], Bertschi et al [ 54 ], Gibbons et al, [ 55 ] and Riffin et al [ 52 ] who describe how dyadic or communal coping may favor adaptation to LTCs [ 33 , 50 , 52 , 54 , 55 ].…”

Section: Resultsmentioning

confidence: 99%

“…As disability becomes an increasingly important component of the disease burden and a larger component of healthcare expenditure, new strategies are needed to improve care for people with LTCs and their family caregivers [ 1 , 4 , 5 , 6 ]. Patients and family members live with one or more LTCs for many years because living with an LTC is not only an individual concern, but also a family affair [ 7 , 8 , 9 , 10 ].…”

Section: Introductionmentioning

confidence: 99%

Living with Long Term Conditions from the Perspective of Family Caregivers. A Scoping Review and Narrative Synthesis

Marín-Maicas

Corchon

Ambrosio

et al. 2021

IJERPH

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(1) Background: When living with one or more long term conditions (LTCs), both the patient and the family experience the impact of the condition at different levels. The family’s needs and perceptions should be considered in the process of caring for people with LTCs. The aim of this review is to understand “the process of living with LTCs” from a family perspective. (2) Methods: A scoping review and narrative synthesis were conducted using a systematic methodology in MEDLINE, CINAHL, Web of Science and PsycINFO, in English and Spanish, including evidence from 2018. (3) Results: A total of 28 articles were included in the review. Acceptance, coping, self-management, integration, and adjustment were key attributes in the process of living with LTCs from the perspective of family caregivers that interrelated in a dynamic way through different mechanisms: being aware of the changing situation, personal networks, information and education, personal conditions, attitude to life and communication. (4) Conclusions: The five attributes that comprise living with LTCs from the perspective of the family caregiver are closely connected of to those of patients living with LTCs; however, self-management and integration have a different meaning and application.

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“…'s study on the experience of family health conversations among families coping with chronic health problems also identified the nurse's curiosity, interest, openness, neutrality and involvement as essential elements of their experience . These attitudes, combined with nurses’ skills, allowed for meaningful encounters in which family members felt they were really working with the nurse to find their own solutions to the challenges they faced and were in a respectful, egalitarian, nonhierarchical relationship . These significant meetings were also made possible because of the characteristics of the interventions at the heart of FSS family conversations.…”

Section: Discussionmentioning

confidence: 99%

“…This article presents the families’ experience of family conversations, obtained through a qualitative study based on semi‐structured interviews. This study was based on the family system nursing (FSN) approach, which involves adopting a paradigm shift towards a focus on the family rather than on individuals and simultaneously considering individuals, the relationships that unite them, and the family system they comprise .…”

Section: Methodsmentioning

confidence: 99%

Creating a space to talk about one's experience of suffering: families’ experience of a family nursing intervention

Gervais

Verdon

deMontigny

et al. 2019

Scandinavian Caring Sciences

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Study rationale The impacts of health problems on individual and family functioning, as well as the influence of family on health, are well documented. However, health care and services in the West are mostly oriented towards individuals, and the needs of families often receive little consideration. The Family Support Service (FSS) was developed to address this situation. Its aim is to improve the education of nursing students and contribute to the health of the community by offering family conversations to families whose members have a health problem or who have difficulty adjusting to certain transitions. Aims and objectives The objective of this study was to explore families’ experience of the family conversations in which they participated and their satisfaction with the FSS. Methodological design and justification This study used a descriptive qualitative design based on semi‐structured interviews and thematic analysis. The study followed ethical codes of conduct and conformed to the Canadian Tri‐Council Policy Statement (TCPS). Research methods Qualitative interviews were conducted with 22 participants who had participated in family conversations as interventions, to evaluate their experience of those family conversations and their satisfaction with the FSS. Results The families reported a very positive experience of the family conversations. Three themes emerged from their statements and explained this satisfaction: (i) the nurse's attitudes and skills as the foundation for meaningful encounters; (ii) a family systems intervention where families feel recognised; and (iii) a structure adapted to the needs of families. Conclusions This study adds to the existing body of knowledge on families’ experience of family system nursing and invites nurses to develop attitudes that are conducive to meaningful encounters with families.

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Experiences of encounters with healthcare professionals through the lenses of families living with chronic illness

Cited by 15 publications

References 50 publications

“It is like living in a diminishing world”: older persons’ experiences of living with long-term health problems – prior to the STRENGTH intervention

“It is like living in a diminishing world”: older persons’ experiences of living with long-term health problems – prior to the STRENGTH intervention

Living with Long Term Conditions from the Perspective of Family Caregivers. A Scoping Review and Narrative Synthesis

Creating a space to talk about one's experience of suffering: families’ experience of a family nursing intervention

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