Experiences of adults with stroke attending a peer-led peer-support group

May, Carmen; Bieber, Katlyn; Chow, Debbie L.; Schmidt, Julia

doi:10.1017/brimp.2023.3

Cited by 3 publications

(1 citation statement)

References 40 publications

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“…Meanwhile, peer support is crucial. Studies have indicated that peer support may contribute to the prognosis of stroke by facilitating connections between stroke survivors and like-minded individuals in the community [ 62 , 63 ]. Peer support also plays a positive role in hypertension control [ 64 ].…”

Section: Discussionmentioning

confidence: 99%

Stigmatized Stroke? A Qualitative Study of Perception of Stroke Among Community Residents With Hypertension

Wan,

Liu,

Zhang

et al. 2024

Int J Public Health

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Objectives: To understand the perception of stroke in the hypertensive population. Hypertension is the primary risk factor for stroke, and current approaches to stroke prevention are inadequate and often fragmented. Understanding the perception of stroke among individuals with hypertension is crucial for a targeted approach. However, empirical evidence on this perception is limited.Methods: A qualitative design involved thematic analysis of focus groups and interview data from urban China with hypertension. Audio recordings were transcribed and subjected to thematic analysis.Results: Three themes were identified. Hypertensive participants first identified stroke patients by their obvious physical disability, and then identified the disease as a negative thing. Finally, they wanted to stay away from stroke, but paradoxically, there is a contradictory approach to avoidance and prevention, such as being willing to prevent the disease or simply avoiding socializing with stroke patients.Conclusion: Hypertensive patients hold complex and diverse perceptions of stroke, including a certain stigma. Future public health education should prioritize improving media promotion and fostering interaction between patients with hypertension and stroke in the community.

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Section: Discussionmentioning

confidence: 99%

Stigmatized Stroke? A Qualitative Study of Perception of Stroke Among Community Residents With Hypertension

Wan,

Liu,

Zhang

et al. 2024

Int J Public Health

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A Look at Traumatic Brain Injury Community Programs in British Columbia: Barriers and facilitators of implementation

Tsow,

Pollock,

Mehta

et al. 2024

Brain Injury

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Exploring the experiences of adults with stroke in virtual community-based stroke programs: a qualitative descriptive study

Cruickshank,

Brooks,

Sperling

et al. 2024

BMC Health Serv Res

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Background Stroke is among the top contributors to disability and can impact an individual’s cognition, physical functioning, and mental health. Since the COVID-19 pandemic, several community-based organizations have started delivering stroke programs virtually. However, participants’ experiences in these programs remain understudied, and evidence-based guidelines to inform and optimize virtual stroke program development and delivery are lacking. Thus, this study aimed to describe the perspectives and experiences of individuals with stroke who participated in virtual community-based organization stroke programs, including perceived access and participation facilitators and barriers and suggestions for improving these programs. Methods A qualitative descriptive design was used to gather participant experiences through semi-structured interviews. Audio-recorded interviews were conducted on Zoom and transcribed verbatim. Adult participants who had experienced a stroke and attended at least one Canadian virtual community-based organization stroke program were recruited. Data were analyzed using inductive thematic analysis. Results Twelve participants (32–69 years, 2–23 years post-stroke, eight women and four men) participated in this study. Five themes were identified: (1) motives to join virtual community-based organization stroke programs, including gaining peer connections, knowledge and information; (2) perceived barriers to accessing and participating in virtual community-based organization stroke programs, including technology inequities, difficulties navigating technology, and inadequate facilitation; (3) perceived facilitators to accessing and participating in virtual community-based organization stroke programs, including remote access, virtual platform features and program leader characteristics/skills; (4) unmet needs during virtual community-based organization stroke programs, including in-person connection and individualized support; and (5) suggestions and preferences for improving virtual community-based organization stroke programs, including program facilitation, content and format. Conclusions Study findings highlight opportunities to improve virtual community-based organization stroke programs to optimize participant experiences and outcomes. Addressing the barriers and suggestions identified in this study may improve virtual community-based organization stroke programs’ access and quality.

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Experiences of adults with stroke attending a peer-led peer-support group

Cited by 3 publications

References 40 publications

Stigmatized Stroke? A Qualitative Study of Perception of Stroke Among Community Residents With Hypertension

Stigmatized Stroke? A Qualitative Study of Perception of Stroke Among Community Residents With Hypertension

A Look at Traumatic Brain Injury Community Programs in British Columbia: Barriers and facilitators of implementation

Exploring the experiences of adults with stroke in virtual community-based stroke programs: a qualitative descriptive study

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