Experiences and needs of parents of critically injured children during the acute hospital phase: A qualitative investigation

Foster, Kim; Young, Alexandra; Mitchell, Robert J.; Van, Connie; Curtis, Kate

doi:10.1016/j.injury.2016.09.034

Cited by 68 publications

(93 citation statements)

References 34 publications

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“…It has been reported in other studies as well that most parents consider it a responsibility to understand the treatment type received by the child and also to keep tabs on prognosis and subsequent improvement in condition of their child by inquiring the staff [27]. Michelson et.…”

Section: Discussionmentioning

confidence: 98%

Exploring family needs in neonatal and pediatric intensive care units at King Khaled Hospital- Jeddah

Alnajjar¹,

Elarousy²

2017

Clin Med Invest

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Family-centered care (FCC) approach acknowledges that the family has the greatest influence over an infant's / child's health and well-being. Assessing the FMs' needs is an important component to apply and improve family-centered care, and it is essential for pediatric nurses in the intensive care units to identify and understand these needs. Meeting the needs of family having neonate or child in intensive care is part of implementing the philosophy of family-centered care.Aim of the study is to explore nurses', doctors' and parents' perceptions on family needs in pediatric critical care units at King Khaled Hospital in Jeddah.Methodology: Exploratory and descriptive design was used. doctors, nurses and parents from Pediatric Critical Care Units at King Khalid Hospital, Jeddah participated in the study using non-probability convenient sampling technique. Critical Care Family Needs Inventory (CCFNI) a tool developed by Jane Leske was used for assessing nurses', doctors', and parents' perceptions on family needs. The original English version was translated into Arabic by qualified English to Arabic translator. Validity was tested by Arabic faculty staff members and subjected to a pilot test to test for its validity within this context Reliability of the CCFNI was 0.97 by. Gundo. Ethical consideration was ensured by getting IRB approval and all participants signed the informed consent.

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Section: Discussionmentioning

confidence: 98%

Exploring family needs in neonatal and pediatric intensive care units at King Khaled Hospital- Jeddah

Alnajjar¹,

Elarousy²

2017

Clin Med Invest

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“…Parents with severely, injured children in hospital have reported in a recent study how practical support, including access to accommodation, food and affordable parking, was considered essential to the ability to support their children. However, that same study concludes that the emotional well-being needs of parents of children in need of medical care are not fully addressed (Foster et al, 2017).…”

Section: Implications For Nursing Practicementioning

confidence: 99%

Section: Parents Report More Nocturnal Awakenings and Lower Mood But mentioning

confidence: 99%

“…Other studies report that parents might have indecisions about staying overnight in the hospital with their ill child or not (Stremler et al, 2011, Foster et al, 2017. To stay and keep watch over their child and their child's care prevents good parental sleep for some parents (Stremler et al, 2011), while others struggle with meeting the demands of life and family outside the hospital (Foster et al, 2017). When a child is admitted to hospital the pediatric nurse should make an assessment when meeting the parents to see if a self-care and a dependent care system is in progress; otherwise, the care requisites should be met by the nursing staff (Orem, 2001).…”

Section: Parents Report More Nocturnal Awakenings and Lower Mood But mentioning

confidence: 99%

“…It would be desirable for the pediatric nurses in primary child healthcare to acknowledge the importance of parents' sleep when the parents visit with their child, by asking them about their and their child's sleep habits and giving advice on obtaining better sleep quality for both the child and the parents. Foster et al (2017) report how parents defer and ignore their own emotional needs during the acute hospital phase. In this thesis, we suggest that this behavior occurs even when parents care for their child at home.…”

Section: Parents Are Sleep-deprived Before the Child's Admissionmentioning

confidence: 99%

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What about the parents? : Sleep quality, mood, saliva cortisol response and sense of coherence in parents with a child admitted to pediatric care

Angelhoff¹

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Parents experience many stressful situations when their child is ill and needs medical care, irrespective of the child’s age, diagnosis or the severity of the illness. Poor sleep quality and negative mood decrease the parents’ ability to sustain attention and focus, to care for their ill child, and to cope with the challenges they face. The overall aim of this thesis was to evaluate sleep, mood, cortisol response, and sense of coherence (SOC) in parents caring for children in need of medical care, and to identify factors that may influence parents’ sleep. This thesis includes four original studies; two of these are quantitative, prospective, descriptive and comparative studies including parents (n=82) accommodated in six pediatric wards with their ill child, using questionnaires and sleep logs to measure sleep, mood and SOC, and saliva cortisol to measure cortisol response. A follow-up was performed four weeks later at home, after hospital discharge. The other two studies are qualitative, inductive and explorative interview studies, including parents (n=12) staying overnight with their preterm and/or ill infant in three neonatal intensive care units, and parents (n=15) with a child receiving hospital-based home care in two pediatric outpatient clinics. The interviews were analyzed with a phenomenographic method. Being together with one’s family seems beneficial for sleep and may decrease stress. The ability to stay with the child, in the hospital or at home, was highly appreciated by the parents. When caring for a child with illness, parents’ sleep quality was sufficient in the hospital; however, sleep quality improved further (p<0.05) at home after discharge. The parents reported frequent nocturnal awakenings in the hospital caused by the child, medical treatment and hospital staff. Concern and anxiety about the child’s health, and uncertainty about the future were stressors affecting the parents’ sleep and mood negatively. The parents had lower (p=0.01) morning awakening cortisol levels in the pediatric ward compared to at home, and parents accommodated for more than one night had lower (p<0.05) post-awakening cortisol levels compared to parents staying their first night. The findings of this thesis conclude that being together as a family is important for the parents’ sleep. The ability to be accommodated in the hospital and gather the family around the child may have given the parents time for relaxation and recovery, that in turn may lead to a less stressful hospital stay. When it is beneficial for the child, the whole family should be included in the pediatric care. Moreover, pediatric nurses must acknowledge parents’ sleep, in hospital and at home. Medical treatment and care at night should be scheduled and sleep promoted for the parents in order to maintain health and well-being in the family.

The electronic version of the thesis is a corrected version of the printed thesis.

This thesis has also been funded by Barnklinikens 60-årsfond, Filip SchelinsStiftelse, Riksföreningen för barnsjuk...

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Psychological trajectories of mothers and fathers following their child's diagnosis of a life‐threatening illness or injury: A longitudinal investigation
Darling
¹
,
Hearps
²
,
Muscara
³

et al. 2019
J Clin Psychol
8
1
9
0
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Objective Explore the mental health trajectories of parents following their child's life‐threatening illness/injury. Methods Participants were 217 parents (mean age: 34.9–40.0; 66 fathers) of 165 children who presented to a tertiary hospital with a life‐threatening illness/injury. Parents completed questionnaires about their mental health and psychosocial stressors within 4 weeks of the child's illness/injury (T1), and 4 months (T2), 7 months (T3), and 19 months (T4) postdiagnosis. Results For both mothers and fathers, mental health symptoms were elevated at diagnosis declining to normal levels by T3, with a pattern of increase at T4. Fathers demonstrated a faster decline in symptoms between T1 and T2, and fathers, but not mothers, experienced a relapse in depressive symptoms at T4. Fathers reported higher rates of work changes. Conclusions These findings have important implications for the design and timing of parental interventions to support families of children with life‐threatening disease/injury.

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Experiences and needs of parents of critically injured children during the acute hospital phase: A qualitative investigation

Cited by 68 publications

References 34 publications

Exploring family needs in neonatal and pediatric intensive care units at King Khaled Hospital- Jeddah

Exploring family needs in neonatal and pediatric intensive care units at King Khaled Hospital- Jeddah

What about the parents? : Sleep quality, mood, saliva cortisol response and sense of coherence in parents with a child admitted to pediatric care

Psychological trajectories of mothers and fathers following their child's diagnosis of a life‐threatening illness or injury: A longitudinal investigation

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