Experience participating in the American College of Cardiology Quality Network<sup>TM</sup>: paediatric and adult congenital cardiology collaborative quality improvement

Hartwell, Lauren P.; Baker, Annette L.; Jenkins, Kathy J.; Ferranti, Sarah D. de; Saleeb, Susan F.

doi:10.1017/s104795111800183x

Cited by 3 publications

(4 citation statements)

References 21 publications

(28 reference statements)

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“…In a description of BMI metric quality improvement at a single, large‐volume site, Hartwell et al noted the need to engage physician and nurse champions, dieticians, quality improvement specialists, parent focus groups, and information technologists, among others. This resource demand, though potentially well rewarded by improved quality, will prove a challenge at many centers . A comprehensive listing of the challenges to implementation of each of the endorsed ambulatory metrics is provided on the publicly available website…”

Section: Discussionmentioning

confidence: 99%

“…To avoid resource‐intense exhaustive chart review, some centers have adopted small‐sample audit approaches with success. Alternatives utilizing automatic electronic data capture from large volumes of records may be feasible at some centers with sufficient IT support …”

Section: Methodsmentioning

confidence: 99%

“…Alternatives utilizing automatic electronic data capture from large volumes of records may be feasible at some centers with sufficient IT support. 12 We initially experienced difficulty in locating data on the sedated pediatric echocardiography metric. Comments on clinical events were not routinely included in the cardiology documentation, or in the echocardiogram reports.…”

Section: Iteration and Pivotsmentioning

confidence: 99%

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Alternative approach to pediatric cardiac quality assessment for low‐volume centers

Delaney

Dadlez

Marshall

2019

Congenital Heart Disease

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Background In pediatric cardiac care, many centers participate in multiple, national, domain‐specific registries, as a major component of their quality assessment and improvement efforts. Small cardiac programs, whose clinical activities and scale may not be well‐suited to this approach, need alternative methods to assess and track quality. Methods We conceived of and piloted a rapid‐approach cardiac quality assessment, intended to encompass multiple aspects of the service line, in a low‐volume program. The assessment incorporated previously identified measures, drawn from multiple sources, and ultimately relied on retrospective chart review. Results A collaborative, multidisciplinary team formed and came to consensus on quality metrics pertaining to 3 chosen areas of clinical activity in the program. Despite the use of multiple different data sources and the need for manual chart review in data collection, a rich assessment of these program components was completed for presentation in 6 weeks. Conclusions While small programs may not participate in the spectrum of cardiac care registries available, these same centers can benefit from them by adapting some of their validated metrics for use in internal, self‐maintained quality reports. Our pilot of this alternative approach revealed opportunities for improved quality assessment practices; the product can serve as a baseline for future prospective assessment and reporting, as well as longitudinal internal benchmarking.

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Section: Discussionmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Iteration and Pivotsmentioning

confidence: 99%

See 1 more Smart Citation

Alternative approach to pediatric cardiac quality assessment for low‐volume centers

Delaney

Dadlez

Marshall

2019

Congenital Heart Disease

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“…Once outcomes are well understood, disparities between groups can be identified, and further examination of contributors can be analyzed, with the goal of setting benchmarks and initiatives, using quality improvement projects that rely upon standard and innovative quality improvement methodology. 62 , 63 , 64 One goal of a national ACHD database is to build an infrastructure that eventually supports quality improvement projects that span geographic borders, including diverse patients and investigators, and one that can be managed seamlessly through a common unbiased sound government. Initial research priorities include understanding epidemiology, natural history, definition of prevalence, and comorbid disease, 65 , 66 in addition to identifying new quality‐based and research priorities.…”

Section: Achd Data Sets: the Clinician Perspectivementioning

confidence: 99%

Operational and Ethical Considerations for a National Adult Congenital Heart Disease Database

Bradley

Khan

McNeal

et al. 2022

JAHA

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As more adults survive with congenital heart disease, the need to better understand the long‐term complications, and comorbid disease will become increasingly important. Improved care and survival into the early and late adult years for all patients equitably requires accurate, timely, and comprehensive data to support research and quality‐based initiatives. National data collection in adult congenital heart disease will require a sound foundation emphasizing core ethical principles that acknowledge patient and clinician perspectives and promote national collaboration. In this document we examine these foundational principles and offer suggestions for developing an ethically responsible and inclusive framework for national ACHD data collection.

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Analysis of cardiovascular morbidity in the pediatric population of the city of Voronezh

Колягина

Бережнова

Клепиков

et al. 2020

SMJ

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Aim: To perform a territorial comparison of the incidence rates of certain cardiovascular diseases (CVD) in the pediatric population of the city ofVoronezh.Material and Methods. The morbidity rates in the pediatric population over certain inner-city zones were assessed using a differentiated approach. This tactic was chosen taking into account historical background as a high percentage of the population (75.8% of the total population in the city district of Voronezh) was registered at particular clinics based on a territorial logic. Of these, 11 pediatric clinics in Voronezh provided care for over 160,000 children under the age of 14 years (about 79% of children residing in the city district of Voronezh) on a territorial basis. The ranking of indicators was performed using a specially designed software developed at the Voronezh State Medical University named after N.N. Burdenko. The territories at risk were identified based on the results of this analysis by the level and dynamics of morbidity in the pediatric population. Results. Cardiovascular diseases were below the top five leading disease classes and were ranked 8–9 in children in the context of overall morbidity structure in the city ofVoronezh. The study showed that the incidence of cardiovascular diseases increased in the adult population of Voronezh relative to the value for the same period analyzed last year: the growth rate in the number of medical care encounters was 14.65% with 14.05% of diagnoses established for the first time in life. The average long-term level of cardiovascular mortality in theVoronezh city district was 24.79 ± 1.40 cases per 1,000 children under 14 years of age.Conclusion. The differences, found in the morbidity rates from the individual intra-city territories provided with pediatric polyclinics, can be explained by the various factors such as the age structure of the population residing in a particular region and human resources of a medical organization including the availability of a pediatric cardiologist. Knowledge of information regarding pediatric disease incidence in certain inner-city territories allowed us to rationally optimize the resources of the urban health system to improve the availability and quality of medical care to the population, particularly the young segments, suffering from cardiovascular diseases at the pre-hospital stage.

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Experience participating in the American College of Cardiology Quality Network^TM: paediatric and adult congenital cardiology collaborative quality improvement

Cited by 3 publications

References 21 publications

Alternative approach to pediatric cardiac quality assessment for low‐volume centers

Alternative approach to pediatric cardiac quality assessment for low‐volume centers

Operational and Ethical Considerations for a National Adult Congenital Heart Disease Database

Analysis of cardiovascular morbidity in the pediatric population of the city of Voronezh

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Experience participating in the American College of Cardiology Quality NetworkTM: paediatric and adult congenital cardiology collaborative quality improvement

Cited by 3 publications

References 21 publications

Alternative approach to pediatric cardiac quality assessment for low‐volume centers

Alternative approach to pediatric cardiac quality assessment for low‐volume centers

Operational and Ethical Considerations for a National Adult Congenital Heart Disease Database

Analysis of cardiovascular morbidity in the pediatric population of the city of Voronezh

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Product

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Experience participating in the American College of Cardiology Quality Network^TM: paediatric and adult congenital cardiology collaborative quality improvement