Experience of the waiting area as perceived by haemodialysis patients and family carers

Kim, Yoonsoo; Kim, Miyoung; Bhandari, Pratibha; Choi, Sung‐Woon

doi:10.1111/jan.13448

Cited by 5 publications

(10 citation statements)

References 23 publications

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“…This finding was consistent with a study conducted in Nigeria [ 18 ] whereas a study conducted in New Zealand [ 24 ] contradicted this result where there is a provision of in-home service and satellite dialysis centers. Also, long procedure times (3-4 hours) were mentioned as a challenge in this study and supported by studies conducted in South Korea [ 25 ], New Zealand [ 24 ], and Australia [ 26 ].…”

Section: Discussionmentioning

confidence: 62%

Lived Experiences of Patients with Chronic Kidney Disease Receiving Hemodialysis in Felege Hiwot Comprehensive Specialized Hospital, Northwest Ethiopia

Tadesse¹,

Gutema

Wasihun

et al. 2021

International Journal of Nephrology

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Purpose. Chronic kidney disease is a challenging disease and global public health problem. The burden of chronic kidney disease and hemodialysis is increasing in Ethiopia, but few studies explored the lived experiences of chronic kidney disease patients receiving hemodialysis. This study explored the lived experiences of chronic kidney disease patients receiving hemodialysis, in the Felege Hiwot Comprehensive Specialized Hospital, Bahir Dar City, Northwest Ethiopia, 2019. Methods. A phenomenological study design was conducted with 12 chronic kidney disease patients receiving hemodialysis between September 1 and October 30, 2019. A purposive sampling technique was used to select participants, and a semistructured in-depth interview guide was used to collect the data. The investigators audio-taped the interviews and then transcribed them verbatim. Finally, the transcribed data were imported to Atlas.ti™-7 software for coding, and then, thematic analysis was done. Transferability, dependability, credibility, and conformability were embedded to ensure data quality. Results. In this study, six major themes were emerged: (1) the seriousness of the disease, (2) challenges to get hemodialysis, (3) financial constraint, (4) restricted life, (5) feeling of dependency, and (6) psychological impacts. Conclusion. The restrictive nature of the disease affects a participant’s financial status which makes it challenging to obtain the service and increases feelings of dependency. These circumstances impact the psychology of the participants. We would recommend that every patient with hemodialysis needs social and psychological support. We would also recommend the need to extend the study to other areas of the country to confirm or disconfirm the findings.

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Section: Discussionmentioning

confidence: 62%

Lived Experiences of Patients with Chronic Kidney Disease Receiving Hemodialysis in Felege Hiwot Comprehensive Specialized Hospital, Northwest Ethiopia

Tadesse¹,

Gutema

Wasihun

et al. 2021

International Journal of Nephrology

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“…K. Hall, Cary et al 2020;R. Hall, Rutledge et al 2020;Kim et al, 2018;Lin et al, 2005). A range of emotions were expressed such as sadness and suffering (R. K. Hall, Cary et al, 2020;R.…”

Section: Spiritual and Existential Needsmentioning

confidence: 99%

“…According to Hashemi et al (2018), poor infection control procedures and a lack of medical attention were perceived to be the cause of their chronic illness and the reason as to why patients viewed their health as poor (Kim et al, 2018). Carers and family members felt obligated to remain with their loved one when receiving HD as they did not feel they were being properly looked after by health professionals (Kim et al, 2018). Interestingly, only one study found the delivery of care was adequate, supportive, and organised and that health professionals were considered motivating and encouraging regarding their health (Jhamb et al, 2016).…”

Section: Service Improvementsmentioning

confidence: 99%

What are the qualitative experiences of people affected by kidney failure receiving haemodialysis?

Mckie

Turner

Paterson

2022

Journal of Renal Care

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Background: People affected by kidney failure receiving haemodialysis experience complexity within their health condition unlike any other chronic illness or condition.Kidney failure impacts the individual in all areas of their life including relationships and activities of daily living.Objective: To conduct a meta-aggregation of studies about the lived experiences of people with kidney failure receiving haemodialysis.Design: Using PRISMA Guidelines, six databases (CINAHL, ClinicalTrials.gov, Cochrane Library, MEDLINE, PsycINFO, and Scopus) were comprehensively searched using keywords and subject headings from January 1990 to October 2021. Articles were assessed according to prespecified eligibility criteria. Data extraction and quality appraisal was conducted. A meta-aggregation of qualitative findings was conducted using the Joanna Briggs Institute methodology for meta-aggregation.Results: Of the 9409 articles screened, 55 studies were included. This represented a total of 188 findings across 45 categories representing a range of unmet supportive care needs. The meta-aggregation identified 11 synthesised findings broadly related to psychological/emotional needs, physical needs, social needs, interpersonal/ intimacy needs, patient-clinician communication needs, family related needs, health system/information needs, spiritual needs, daily living needs, practical needs and daily living needs.Conclusions: This meta-aggregation has identified that people affected by kidney failure can experience a range of unmet supportive care needs. It was evident that living with kidney failure and receiving haemodialysis impacted a person's sense of self, introduced practical needs and other complex needs which were not being addressed in existing services. This review has highlighted important implications for clinical practice and future research directions.

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“…Because of this compulsory togetherness, it stands to reason that patients receiving in-center HD may form relationships with one another, and prior research has in fact documented that this does happen. [1][2][3] It also stands to reason that when a patient falls ill during a session or is absent from the center-either temporarily or permanently-it could affect fellow patients. Data describing how often a patient becomes sick enough during HD to require transport from the center to the hospital are unavailable, but the most serious event that could complicate HD, a cardiac arrest, is estimated to occur at a rate of 1 per 142 patient-years in the United States (US).…”

Section: Introductionmentioning

confidence: 99%

“…Because of this compulsory togetherness, it stands to reason that patients receiving in‐center HD may form relationships with one another, and prior research has in fact documented that this does happen 1‐3 . It also stands to reason that when a patient falls ill during a session or is absent from the center—either temporarily or permanently—it could affect fellow patients.…”

Section: Introductionmentioning

confidence: 99%

Patient reactions to witnessed medical events in the dialysis center or to the sudden absence of other patients from the center: A qualitative study

Ramer

Reid

Unruh

2020

Hemodialysis International

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Introduction: Patients receiving in-center maintenance hemodialysis (HD) spend a significant amount of time together. To date, little or no research has examined how these patients perceive and process other patients' medical events in and absences from their centers. We therefore undertook this qualitative study using semi-structured interviews to explore these phenomena from the patient perspective. Methods: Patients at a suburban Pittsburgh HD center participated in semi-structured interviews in April to May 2011, reporting on their impressions of their relationships with other patients in the center; their experiences of witnessing clinical decompensations in the center; and their reactions to absences of fellow patients from the center. Trained coders developed a codebook and applied it to interview transcripts. Findings: There were 17 participants, 47% women, 29% black, with median age 63 years. Almost every participant had witnessed other patients' medical events during HD. Three main themes emerged in analysis of interviews: (1) incomplete knowledge of many aspects of witnessed events and patient absences in the HD center; (2) a process of "filling in the blanks": Participants used their own past events and absences to help process other patients' events and absences and used other patients' events and absences to help process their own future events and absences; and (3) participants' broad support for HD center staff being able to share with other patients basic information about their whereabouts if they themselves are absent from the center. Discussion: Witnessed medical events in and patients' absences from the HD center are not only common but are also important to patients, who struggle to process these events and absences due to limited information about what actually happened. Interventions, such as providing patients with more information, could improve patients' experience of witnessed events and fellow patients' absences and potentially impact other patient-centered outcomes.

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Experience of the waiting area as perceived by haemodialysis patients and family carers

Cited by 5 publications

References 23 publications

Lived Experiences of Patients with Chronic Kidney Disease Receiving Hemodialysis in Felege Hiwot Comprehensive Specialized Hospital, Northwest Ethiopia

Lived Experiences of Patients with Chronic Kidney Disease Receiving Hemodialysis in Felege Hiwot Comprehensive Specialized Hospital, Northwest Ethiopia

What are the qualitative experiences of people affected by kidney failure receiving haemodialysis?

Patient reactions to witnessed medical events in the dialysis center or to the sudden absence of other patients from the center: A qualitative study

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