Experience of emotion in frail older people towards the end of life: A secondary data analysis

Findlay, Caitlin; Lloyd, Anna; Finucane, Anne

doi:10.12968/bjcn.2017.22.12.586

Cited by 9 publications

(27 citation statements)

References 17 publications

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“…Social isolation is common among older persons [28,29], and loneliness and isolation can be connected to symptoms of depression among older persons [30]. Hence, social isolation can have a negative impact on older persons' wellbeing [29,30], which emphasizes the signi cance of optimizing older persons' opportunities to nd a social context at the nursing home.…”

Section: Discussionmentioning

confidence: 99%

Older persons’ thoughts about death and dying and their experiences of care in end-of-life: a qualitative study

Tjernberg

Bökberg

2020

Preprint

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Background: Few studies have focused on how older persons living in nursing homes perceive their last period of life. Furthermore, previous research on older persons’ perceptions of death and dying is limited. Hence, there is an urgent need to explore their experiences during their final period in life.Aim: To explore thoughts about death and dying and experiences of care in end-of-life among older persons living in nursing homes.Methods: This study employed a qualitative approach including individual interviews with 36 older persons living in Swedish nursing homes. Questions related to quality of life; physical health; thoughts about death, dying, and the future; and experiences related to the living condition and environment were asked. The interview transcripts were analysed through content analysis. The study was approved by the Regional Ethics Review Board (reference number: 2015/4).Results: The analysis resulted in the identification of three main thematic categories: The unavoidable and unknown end of life, Thoughts on control and Living your last period of life at a nursing home. The older persons did not fear death itself but had some worries about dying. Spending the last stage of life at a nursing home contributed to different thoughts and feelings among the older persons. With a few exceptions, older persons characterized life at the nursing home as boring and felt they were surrounded by people who did not belong there.Conclusions: This study indicates a need for older persons to talk about death, dying and end-life issues. Furthermore, this study highlighted that the co-residence of cognitively healthy persons and persons with dementia in the same ward adversely affected cognitively healthy persons. This situation resulted in there being not enough time to both handle the care needs of persons with dementia and have the conversations that cognitively healthy persons desired, such as conversations about thoughts about existence, that could have improved their quality of life.Trial registration: NCT02708498 Date of registration 16 February 2016.

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Section: Discussionmentioning

confidence: 99%

Older persons’ thoughts about death and dying and their experiences of care in end-of-life: a qualitative study

Tjernberg

Bökberg

2020

Preprint

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“… 31 This is often due to nurses serving patients in isolated areas with poorly developed infrastructures and phone networks, long distances and travel times between patients, and high levels of staff turnover and rotation (especially where long distances need to be shared). 37 , 39 , 40 Within such contexts, patients have to “ take whoever, whether you like them or not ” 33 meaning the building of trusting and therapeutic relationships between patients and nurses might become difficult. 36 , 40 Patients cite that they “ never feel like discussing things with them [district nurses they see less frequently] in the same way ”, 33 which contributes to relations in rural areas, which feel transactional, fleeting, and impersonal, although not necessarily ineffective.…”

Section: Resultsmentioning

confidence: 99%

“…37 , 39 , 40 Within such contexts, patients have to “ take whoever, whether you like them or not ” 33 meaning the building of trusting and therapeutic relationships between patients and nurses might become difficult. 36 , 40 Patients cite that they “ never feel like discussing things with them [district nurses they see less frequently] in the same way ”, 33 which contributes to relations in rural areas, which feel transactional, fleeting, and impersonal, although not necessarily ineffective. 41 …”

Section: Resultsmentioning

confidence: 99%

Rural influences on the social network dynamics of district nursing services: A qualitative meta‐synthesis

Gillham

Vassilev

Band

2021

Health Science Reports

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Background and Aims As demands on healthcare services grow, fiscal restrictions place increased emphasis on services outside of traditional healthcare settings. Previous research into long‐term‐conditions suggests that social network members (including weaker ties such as acquaintances, community groups, and healthcare professionals) play a key role in illness management. There is limited knowledge about the engagement of social networks in supporting people who are receiving medical interventions at home. This qualitative metasynthesis explores the work and the interactions between district nurses (DN) and informal network members supporting people who are receiving medical interventions at home and living in rural areas. Methods A search was undertaken on CINAHL, Medline, and PsychINFO for qualitative research articles from 2009 to 2019. Studies that examined DN in rural locations and/or social network support in rural locations were eligible. Fourteen articles were selected. Results Thematic analysis of results and discussion data from the studies resulted in four themes being developed: the development of both transactional and friend‐like nurse‐patient ties in rural localities, engagement of the wider network in the delivery of good care, blurring of professional boundaries in close community relationships, and issues accessing and navigating formal and informal support in the context of diminishing resources in rural areas. These findings suggest that DNs in rural localities work beyond professional specialties and experience to provide emotional support, help with daily tasks, and build links to communities. There was also evidence that nurses embedded within rural localities developed friend‐like relationships with patients, and negotiated with existing support networks and communities to find support for the patient. Conclusions Findings indicated that developing strong links with patients and members of their networks does not automatically translate into positive outcomes for patients, and can be unsustainable, burdensome, and disruptive. DNs developing weak ties with patients and building awareness of the structure of individual networks and local sources of support offers avenues for sustainable and tailored community‐based nursing support.

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“…Social isolation is common among older persons [24,25], and loneliness and isolation can be connected to symptoms of depression among older persons [26]. Hence, social isolation can have a negative impact on older persons' wellbeing [25,26], which emphasizes the signi cance of optimizing older persons' opportunities to nd a social context at the nursing home.…”

Section: Discussionmentioning

confidence: 99%

Older persons’ thoughts about death and dying and their experiences of end-of-life care: a qualitative study

Tjernberg¹,

Bökberg

2020

Preprint

View full text Add to dashboard Cite

Background: Few studies have focused on how older persons living in nursing homes perceive their last period of life. Furthermore, previous research on older persons’ perceptions of death and dying is limited. Hence, there is an urgent need to explore their experiences during their final period in life.Aim: To explore thoughts about death and dying and experiences of end-of-life care among older persons living in nursing homes.Methods: This study employed a qualitative approach including individual interviews with 36 older persons living in Swedish nursing homes. Questions related to quality of life; physical health; thoughts about death, dying, and the future; and experiences related to the living condition and environment were asked. The interview transcripts were analysed through content analysis. The study was approved by the Regional Ethics Review Board (reference number: 2015/4).Results: The analysis resulted in the identification of three main thematic categories: The unavoidable and unknown end of life, Thoughts on control and Living your last period of life at a nursing home. The older persons did not fear death itself but had some worries about dying. Spending the last stage of life at a nursing home contributed to different thoughts and feelings among the older persons. With a few exceptions, older persons characterized life at the nursing home as boring and felt they were surrounded by people who did not belong there.Conclusions: This study indicates a need for older persons to talk about death, dying and end-life issues. Furthermore, this study highlighted that the co-residence of cognitively healthy persons and persons with dementia in the same ward adversely affected cognitively healthy persons. This situation resulted in there being not enough time to both handle the care needs of persons with dementia and have the conversations that cognitively healthy persons desired, such as conversations about thoughts about existence, that could have improved their quality of life.Trial registration: NCT02708498 Date of registration 16 February 2016.

show abstract

Experience of emotion in frail older people towards the end of life: A secondary data analysis

Cited by 9 publications

References 17 publications

Older persons’ thoughts about death and dying and their experiences of care in end-of-life: a qualitative study

Older persons’ thoughts about death and dying and their experiences of care in end-of-life: a qualitative study

Rural influences on the social network dynamics of district nursing services: A qualitative meta‐synthesis

Older persons’ thoughts about death and dying and their experiences of end-of-life care: a qualitative study

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