Expected and received support from the medical personnel in the perception of parents of children treated in hospital

Mazur, Anna; Aftyka, Anna; Sipta, Angelika; Skrobowska, Ewa; Humeniuk, Ewa

doi:10.5114/pson.2016.66290

Cited by 3 publications

(9 citation statements)

References 6 publications

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“…The surveys of parents of hospitalised children have shown that the informational, emotional, valuing and instrumental support of nurses and doctors is comparable. The respondents also indicate that the support they receive is much lower than expected, especially in the area of instrumental support [11]. In addition, according to other surveys, people whose various expectations towards others are not met, can feel many difficult emotions.…”

Section: Discussionmentioning

confidence: 87%

“…It has also been found that parents receive significantly lower support from nurses compared to what they expect. The level of support received from doctors and nurses is comparable [11]. A significant role in the demand for social support, which is associated with positive changes in self-perception, has been demonstrated in studies conducted among parents of children with cancer [12].…”

Section: Introductionmentioning

confidence: 84%

“…Wykazano również, że rodzice otrzymują od pielęgniarek istotnie niższe wsparcie w porównaniu z tym, jakiego oczekują. Poziom wsparcia otrzymywanego od lekarzy i pielęgniarek jest porównywalny [11]. Istotne znaczenie w zapotrzebowaniu na wsparcie społeczne, które wiąże się z pozytywnymi zmianami w zakresie percepcji siebie, wykazano w badaniach przeprowadzonych wśród rodziców dzieci chorych na nowotwory [12].…”

Section: Wstępunclassified

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The need for social support and the health condition of parents of children with cancer

Pietnoczko

Steuden

2020

Palliat Med Pract

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Section: Discussionmentioning

confidence: 87%

Section: Introductionmentioning

confidence: 84%

Section: Wstępunclassified

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The need for social support and the health condition of parents of children with cancer

Pietnoczko

Steuden

2020

Palliat Med Pract

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“…Caring for a sick child causes severe stress, intensity of negative emotions, and even anxiety and depression. In addition, it causes feelings of guilt, isolation, betrayal, and loss [10,13,19]. Caregivers of children with AN show significantly higher levels of distress compared to parents of patients with other mental disorders [19].…”

Section: Discussionmentioning

confidence: 99%

“…It consists of conversation, psychoeducation, family consultation, or family therapy [11,12]. Providing it to parents should begin with learning their resources, evaluating their caregiving options and involvement, because the stress due to their child's disease often causes helplessness and feelings of incompetence [13].…”

Section: Introductionmentioning

confidence: 99%

Reactions of parents of children with anorexia and controlling emotions vs. professional and non-professional support

Wojtas,

Babik,

Oskędra

2023

ppiel

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Introduction: Anorexia increasingly affects younger children, and its treatment is a long-term process in which people suffering from the disease, as well as their caregivers, experience many, often negative emotions. In this context, it is important to support caregivers, especially with information, and to understand their behaviour and emotions. The aim of this study was to study the reactions and emotions experienced by parents of children with anorexia or suspected anorexia, and how they are controlled, as well as their opinions regarding support. Material and methods: The study was conducted on 40 parents using a diagnostic survey method, a questionnaire technique, and a scale technique. The author's survey questionnaire, which included questions about reactions and experienced emotions with regard to the child's disease and its course, support, and socio-demographic data, and the Courtauld Emotional Control Scale (CECS) adapted by Juczyński, were used to collect data. Statistical analysis was carried out using Statistica 13.3. TIBCO by StatSoft and Statistica 13.1 by StatSoft. The Mann-Whitney U test and Pearson's χ 2 test were used. Correlation was determined using Spearman's rank correlation coefficient. The level of statistical significance was adopted as p < 0.05. Results: Based on the CECS scale, the subjects scored an average of 51.4 points, indicating suppression of negative emotions. Parents of children with anorexia most often experienced anxiety, helplessness, fear, uncertainty, and tension. They experienced problems coping with daily responsibilities, fulfilling the role of mother/father, and pain. It was shown that the parents' age and the support obtained from medical personnel and family were not related to the control of negative emotions. Conclusions: Parents of children with anorexia or suspected anorexia experience many negative emotions and daily problems. Considering the expectations of caregivers and the proper provision of support, there is a need for professionals to assess their emotions prior to therapeutic interventions.

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Family-centred care in a paediatric hospital as seen from the perspective of a nurse and a parent

Wojnar,

Sztefko

2023

ppiel

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Introduction:The study evaluated the involvement of parents in the care of hospitalized children from the perspective of nurses and parents. Material and methods: The research was based on an original questionnaire conducted with 289 nurses and 271 parents of hospitalized children. Results: Hospital regulations are available for the parents according to 95.2% of the nurses and 76.7% of the parents. The older the hospitalized child, the more significant observing the hospital regulations was to the parents (p < 0.02). Also, complying with the epidemiological principles was dependent upon the age of the child (p < 0.0001). In total, 97.4% of the parents and 95.2% of the nurses, regardless of education level, specialization, or duration of employment, described the presence of the parents with their children in the hospital as necessary, and 46.4% of the nurses and 70.8% of the parents reported the presence of the parents at night as important. The necessity for a 24-hour stay with their child was greatest for parents with primary education, and the least was for universityeducated parents (p < 0.02). The nurses reported that the constant presence of the parents seldom reduced their responsibilities. The nurses with specialization more often reported an increased workload as compared to nonspecialized nurses (p < 0.02). Also, the assessment of the parent's involvement in caregiving activities was dependent on the nurses' specialization (p < 0.02) and length of employment (p < 0.05). Declared readiness to perform care-associated activities involving their child increased with the increasing age of the parent (p < 0.05) and was also dependent on the profile of the ward (p < 0.005). Conclusions: According to nurses' and parents' opinions, the presence of the parents with their child in hospital during the day is necessary, but not always during the night. Despite the engagement of the parents in care-associated activities, their presence causes an increased workload for the nurses.

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Expected and received support from the medical personnel in the perception of parents of children treated in hospital

Cited by 3 publications

References 6 publications

The need for social support and the health condition of parents of children with cancer

The need for social support and the health condition of parents of children with cancer

Reactions of parents of children with anorexia and controlling emotions vs. professional and non-professional support

Family-centred care in a paediatric hospital as seen from the perspective of a nurse and a parent

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