Expectations of a Health-Related Mobile Self-Management App Intervention Among Individuals With Spinal Cord Injury

Singh, Gurkaran; Simpson, Ethan; MacGillivray, Megan K.; Sawatzky, Bonita; Adams, Jared

doi:10.46292/sci21-00022

Cited by 3 publications

(1 citation statement)

References 38 publications

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“…This implies that, with guidance from health care professionals and through recording and quality control, patients regain confidence and self-efficacy. This is consistent with the findings by Singh et al [ 35 ] from a semistructured interview with 22 patients with spinal cord injuries, which identified the following 3 characteristics: a desire to attain health, efforts to learn and use apps, and acceptance of social support [ 35 , 36 ].…”

Section: Discussionsupporting

confidence: 89%

Impact of Mobile Apps in Conjunction With Percutaneous Endoscopic Gastrostomy on Patients' Complications, Quality of Life, and Health-Related Self-Care Behaviors: Randomized Clinical Trial

Chen,

Lien,

Yang

et al. 2023

JMIR Mhealth Uhealth

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Background Percutaneous endoscopic gastrostomy (PEG) is commonly chosen for long-term enteral nutrition support. However, common complications of PEG include wound infection, leakage, obstruction, bleeding, dislodgement, pneumonia, peritonitis, and more. The anticipation of these complications by both patients and their family caregivers underscores the essential requirement of ongoing technical guidance for the daily care of PEG and the adoption of preventative strategies. Objective This study aimed to establish and compare a health education program utilizing a tracking system for PEG using a mobile app (PEG app) and instant messaging software versus a paper-based health education program with instant messaging software. Their effectiveness in preventing complications, avoiding hospital readmissions, improving self-care practices, and enhancing quality of life outcomes was assessed. Methods A randomized controlled trial design was used, and the study sample consisted of patients from a medical center in central Taiwan who underwent thoracic surgery or gastroenterology procedures. Inclusion criteria were being a new case undergoing his or her first gastric tube insertion and having the ability to operate a smartphone. Exclusion criteria were cases requiring tube replacement or nasogastric tubes. A total of 74 participants were enrolled, with 37 participants in the experimental group and 37 participants in the control group. Data collection took place from hospitalization until 1 month after discharge. The experimental group received care using the gastric tube tracking system (PEG app) and the Line app that included phone, text, and photo capture capabilities, while the control group received routine nursing care and used the Line app. Results The experimental group demonstrated a significant reduction in the occurrence of complications compared with the control group (χ21=12.087, P=.001). Specifically, the occurrence of leakage events was significantly lower in the experimental group than in the control group (χ21=12.906, P=.001). However, the experimental group exhibited superior self-care ability compared with the control group (t72=2.203, P=.03). There was no significant difference in overall quality of life scores between the experimental and control groups (t72=1.603, P=.11). However, the experimental group showed better social aspects of quality of life than the control group (t72=2.164, P=.03). Conclusions Integration of the PEG app with instant messaging can enhance self-care ability, improve social aspects of quality of life, and reduce complications. The study results suggest that the PEG app could be used as an adjunct tool to promote patients’ self-directed management of their gastric tube at home, particularly for patients who have undergone their first PEG placement and are being discharged from the hospital. Trial Registration Chinese Clinical Trial Registry ChiCTR2300071271; https://tinyurl.com/4vvy584e

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Section: Discussionsupporting

confidence: 89%

Impact of Mobile Apps in Conjunction With Percutaneous Endoscopic Gastrostomy on Patients' Complications, Quality of Life, and Health-Related Self-Care Behaviors: Randomized Clinical Trial

Chen,

Lien,

Yang

et al. 2023

JMIR Mhealth Uhealth

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Commercial mHealth Apps and the Providers’ Responsibility for Hope

Rossmaier,

Saghai,

Brey

2023

DISO

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In this paper, we ask whether the providers of commercial mHealth apps for self-tracking create inflated or false hopes for vulnerable user groups and whether they should be held responsible for this. This question is relevant because hopes created by the providers determine the modalities of the apps’ use. Due to the created hopes, users who may be vulnerable to certain design features of the app can experience bad outcomes in various dimensions of their well-being. This adds to structural injustices sustaining or exacerbating the vulnerable position of such user groups. We define structural injustices as systemic disadvantages for certain social groups that may be sustained or exacerbated by unfair power relations. Inflated hopes can also exclude digitally disadvantaged users. Thus, the hopes created by the providers of commercial mHealth apps for self-tracking press the question of whether the deployment and use of mHealth apps meet the requirements for qualifying as a just public health endeavor.

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Impact of Mobile Apps in Conjunction With Percutaneous Endoscopic Gastrostomy on Patients' Complications, Quality of Life, and Health-Related Self-Care Behaviors: Randomized Clinical Trial (Preprint)

Chen,

Lien,

Yang

et al. 2023

Preprint

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BACKGROUND Percutaneous endoscopic gastrostomy (PEG) is commonly chosen for long-term enteral nutrition support. However, common complications of PEG include wound infection, leakage, obstruction, bleeding, dislodgement, pneumonia, peritonitis, and more. The anticipation of these complications by both patients and their family caregivers underscores the essential requirement of ongoing technical guidance for the daily care of PEG and the adoption of preventative strategies. OBJECTIVE This study aimed to establish and compare a health education program utilizing a tracking system for PEG using a mobile app (PEG app) and instant messaging software versus a paper-based health education program with instant messaging software. Their effectiveness in preventing complications, avoiding hospital readmissions, improving self-care practices, and enhancing quality of life outcomes was assessed. METHODS A randomized controlled trial design was used, and the study sample consisted of patients from a medical center in central Taiwan who underwent thoracic surgery or gastroenterology procedures. Inclusion criteria were being a new case undergoing his or her first gastric tube insertion and having the ability to operate a smartphone. Exclusion criteria were cases requiring tube replacement or nasogastric tubes. A total of 74 participants were enrolled, with 37 participants in the experimental group and 37 participants in the control group. Data collection took place from hospitalization until 1 month after discharge. The experimental group received care using the gastric tube tracking system (PEG app) and the Line app that included phone, text, and photo capture capabilities, while the control group received routine nursing care and used the Line app. RESULTS The experimental group demonstrated a significant reduction in the occurrence of complications compared with the control group (χ21=12.087, P=.001). Specifically, the occurrence of leakage events was significantly lower in the experimental group than in the control group (χ21=12.906, P=.001). However, the experimental group exhibited superior self-care ability compared with the control group (t72=2.203, P=.03). There was no significant difference in overall quality of life scores between the experimental and control groups (t72=1.603, P=.11). However, the experimental group showed better social aspects of quality of life than the control group (t72=2.164, P=.03). CONCLUSIONS Integration of the PEG app with instant messaging can enhance self-care ability, improve social aspects of quality of life, and reduce complications. The study results suggest that the PEG app could be used as an adjunct tool to promote patients’ self-directed management of their gastric tube at home, particularly for patients who have undergone their first PEG placement and are being discharged from the hospital. CLINICALTRIAL Chinese Clinical Trial Registry ChiCTR2300071271; https://tinyurl.com/4vvy584e

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Expectations of a Health-Related Mobile Self-Management App Intervention Among Individuals With Spinal Cord Injury

Cited by 3 publications

References 38 publications

Impact of Mobile Apps in Conjunction With Percutaneous Endoscopic Gastrostomy on Patients' Complications, Quality of Life, and Health-Related Self-Care Behaviors: Randomized Clinical Trial

Impact of Mobile Apps in Conjunction With Percutaneous Endoscopic Gastrostomy on Patients' Complications, Quality of Life, and Health-Related Self-Care Behaviors: Randomized Clinical Trial

Commercial mHealth Apps and the Providers’ Responsibility for Hope

Impact of Mobile Apps in Conjunction With Percutaneous Endoscopic Gastrostomy on Patients' Complications, Quality of Life, and Health-Related Self-Care Behaviors: Randomized Clinical Trial (Preprint)

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