Abstract:Participatory research methodologies have expanded the opportunities for critical, emancipatory and democratic health and social work research. However, their practical application in research with vulnerable participants has historically been challenging due to ethical, practical and theoretical concerns. Individuals who are homeless are typically seen as 'hard-to-reach', transient, 'hidden' and even chaotic participant populations. Unsurprisingly, examples of the use of innovative participatory research tech… Show more
“…An emerging evidence base suggests that diaries can yield rich, complex layers of understanding, particularly with marginalised groups or where topics may be difficult to discuss face to face [ 24 , 25 , 26 ]. Diaries may also facilitate prolonged engagement with research participants, where people may have difficulty articulating themselves, enhancing rigour, quality and trustworthiness of data collected [ 27 , 28 ].…”
Children and young people risk being ‘disproportionately harmed’ by the COVID-19 pandemic. Whilst an evolving body of literature focuses on the impact of the pandemic on the mental health and wellbeing of children and young people, less attention has been paid to the collection of qualitative, exploratory data. The aim of this study was to examine young people in North East England’s experiences of COVID-19 and associated control measures. Flexible, qualitative diaries were collected with 31 young people aged 13–17 for six weeks between July and October 2020. Diary extracts were curated using Instagram Direct Messaging (DM), email and text messaging. At the end of this study, participants took part in a follow-up interview (conducted by telephone or Zoom), asking them to reflect on their diary entries. Thematic analysis of diaries and interviews yielded three central themes: (1) impacts upon mental health and emotional wellbeing; (2) disruptions and changes to education and school life; and (3) frustration, burden and responsibility. These findings highlight acute mental health impacts (loneliness, isolation, anxiety) as well as longer-term repercussions from disrupted education (missed parts of curriculum, home schooling, cancelled exams, periods of isolation) on young people aged 13–17 as a result of the COVID-19 pandemic.
“…An emerging evidence base suggests that diaries can yield rich, complex layers of understanding, particularly with marginalised groups or where topics may be difficult to discuss face to face [ 24 , 25 , 26 ]. Diaries may also facilitate prolonged engagement with research participants, where people may have difficulty articulating themselves, enhancing rigour, quality and trustworthiness of data collected [ 27 , 28 ].…”
Children and young people risk being ‘disproportionately harmed’ by the COVID-19 pandemic. Whilst an evolving body of literature focuses on the impact of the pandemic on the mental health and wellbeing of children and young people, less attention has been paid to the collection of qualitative, exploratory data. The aim of this study was to examine young people in North East England’s experiences of COVID-19 and associated control measures. Flexible, qualitative diaries were collected with 31 young people aged 13–17 for six weeks between July and October 2020. Diary extracts were curated using Instagram Direct Messaging (DM), email and text messaging. At the end of this study, participants took part in a follow-up interview (conducted by telephone or Zoom), asking them to reflect on their diary entries. Thematic analysis of diaries and interviews yielded three central themes: (1) impacts upon mental health and emotional wellbeing; (2) disruptions and changes to education and school life; and (3) frustration, burden and responsibility. These findings highlight acute mental health impacts (loneliness, isolation, anxiety) as well as longer-term repercussions from disrupted education (missed parts of curriculum, home schooling, cancelled exams, periods of isolation) on young people aged 13–17 as a result of the COVID-19 pandemic.
“…Harnessing the capabilities of mobile phone devices has become the cornerstone of innovative research methodologies for the remote collection of qualitative and quantitative data, including in lowand middle-income countries, during this time [12]. The use of mobile phones for gathering qualitative and quantitative data across a range of geographical settings has been demonstrated to be feasible and effective [13,14]. Mobile phones are flexible, affordable, and naturalistic devices, which makes them a powerful tool for generating rich, highly contextualized insights, including in hard-to-reach or vulnerable populations [15][16][17][18].…”
Section: Utility Of Smartphones For Capturing Critical Information From Hard-to-reach Groupsmentioning
confidence: 99%
“…The use of mobile phones for gathering qualitative and quantitative data across a range of geographical settings has been demonstrated to be feasible and effective [ 13 , 14 ]. Mobile phones are flexible, affordable, and naturalistic devices, which makes them a powerful tool for generating rich, highly contextualized insights, including in hard-to-reach or vulnerable populations [ 15 - 18 ].…”
Section: Introductionmentioning
confidence: 99%
“…Beyond enabling the generation of substantive findings in the health and social sciences, certain mobile methods such as mobile phone diaries and other free-text response formats have shown intrinsic benefits for study participants [ 14 , 19 ]. Examples include increased autonomy, enhanced opportunities for self-expression and reflection, and more acceptable communication of sensitive topics and in high-stress environments [ 12 , 14 ].…”
Background
The advent of COVID-19 abruptly thrust the health and safety of children and families into greater risk around the world. As regional and local governments, nongovernmental organizations, communities, families, and children grapple with the immediate public health impact of COVID-19, the rights and well-being of children, especially those who are already marginalized, have been overlooked. Those working with children have likely encountered unprecedented challenges and responded in innovative ways in efforts to address the needs and rights of all children.
Objective
This paper presents a protocol for a large-scale, multinational study using a new smartphone app to capture the real-time experiences and perspectives of practitioners and policymakers supporting children and families during the COVID-19 pandemic around the globe in relation to a children’s human rights 4P framework of protection, provision, prevention, and participation.
Methods
This protocol describes a mixed methods survey utilizing a custom-built iOS and Android smartphone app called the COVID 4P Log for Children’s Wellbeing, which was developed in close consultation with 17 international key partner organizations. Practitioners and policymakers working with and for children’s well-being across 29 countries and 5 continents were invited to download the app and respond to questions over the course of 8 weeks. The anticipated large amount of qualitative and quantitative response data will be analyzed using content analysis, descriptive statistics, and word frequencies.
Results
Formal data collection took place from October 2020 until March 2021. Data analysis was completed in July 2021.
Conclusions
The findings will directly inform the understanding of the ways in which COVID-19 has impacted practitioners’, managers’, and policymakers’ efforts to support children’s well-being in their practices, services, and policies, respectively. Innovative and ambitious in its scope and use of smartphone technology, this project also aims to inform and inspire future multinational research using app-based methodologies—the demand for which is likely to continue to dramatically rise in the COVID-19 era. Mitigating the risks of longitudinal remote data collection will help maximize the acceptability of the app, respondents’ sustained engagement, and data quality.
International Registered Report Identifier (IRRID)
DERR1-10.2196/31013
“…Beyond enabling the generation of substantive findings in the health and social sciences, certain mobile methods such as mobile phone diaries and other free-text response formats have shown intrinsic benefits for study participants [14,19]. Examples include increased autonomy, enhanced opportunities for self-expression and reflection, and more acceptable communication of sensitive topics and in high-stress environments [12,14].…”
Section: Utility Of Smartphones For Capturing Critical Information From Hard-to-reach Groupsmentioning
BACKGROUND
The advent of COVID-19 abruptly thrust the health and safety of children and families into greater risk around the world. As regional and local governments, nongovernmental organizations, communities, families, and children grapple with the immediate public health impact of COVID-19, the rights and well-being of children, especially those who are already marginalized, have been overlooked. Those working with children have likely encountered unprecedented challenges and responded in innovative ways in efforts to address the needs and rights of all children.
OBJECTIVE
This paper presents a protocol for a large-scale, multinational study using a new smartphone app to capture the real-time experiences and perspectives of practitioners and policymakers supporting children and families during the COVID-19 pandemic around the globe in relation to a children’s human rights <i>4P</i> framework of protection, provision, prevention, and participation.
METHODS
This protocol describes a mixed methods survey utilizing a custom-built iOS and Android smartphone app called the COVID 4P Log for Children’s Wellbeing, which was developed in close consultation with 17 international key partner organizations. Practitioners and policymakers working with and for children’s well-being across 29 countries and 5 continents were invited to download the app and respond to questions over the course of 8 weeks. The anticipated large amount of qualitative and quantitative response data will be analyzed using content analysis, descriptive statistics, and word frequencies.
RESULTS
Formal data collection took place from October 2020 until March 2021. Data analysis was completed in July 2021.
CONCLUSIONS
The findings will directly inform the understanding of the ways in which COVID-19 has impacted practitioners’, managers’, and policymakers’ efforts to support children’s well-being in their practices, services, and policies, respectively. Innovative and ambitious in its scope and use of smartphone technology, this project also aims to inform and inspire future multinational research using app-based methodologies—the demand for which is likely to continue to dramatically rise in the COVID-19 era. Mitigating the risks of longitudinal remote data collection will help maximize the acceptability of the app, respondents’ sustained engagement, and data quality.
INTERNATIONAL REGISTERED REPORT
DERR1-10.2196/31013
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