Expanded Prostate Cancer Index Composite for Clinical Practice: Development and Validation of a Practical Health Related Quality of Life Instrument for Use in the Routine Clinical Care of Patients With Prostate Cancer

Chang, Peter; Szymański, Konrad M.; Dunn, Rodney L.; Chipman, Jonathan; Litwin, Mark S.; Nguyen, Paul L.; Sweeney, Christopher J.; Cook, Robert L.; Wagner, Andrew A.; DeWolf, William C.; Bubley, Glenn J.; Funches, Renee; Aronovitz, Joseph A.; Wei, John T.; Sanda, Martin G.

doi:10.1016/j.juro.2011.04.085

Cited by 160 publications

(150 citation statements)

References 27 publications

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“…For instance, Burns and colleagues found 0.5-95 % of items missing on the MMSE [2]. Other studies found 13 and 41 % missing items on the SF-36 [11,19], 11 % missing items on the Expanded Prostate Cancer Index Composite-26 [4], 24 % on the MSKCC Bowel Function instrument [29], and 10 % on the SF-12 [21].…”

Section: Discussionmentioning

confidence: 99%

Factors Associated with Incomplete DASH Questionnaires

Bot

Ferree

Neuhaus

et al. 2012

Hand (New York, N,Y.)

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Background Missing data are unavoidable in clinical research. Older age, female gender, and fewer years of education are risk factors for missing items in a questionnaire. This study assessed the differences between patients with complete and incomplete Disabilities of the Arms, Shoulder and Hand (DASH) questionnaires in terms of demographics and psychological factors. Methods We analyzed a convenience sample of 1,204 patients enrolled in eight prospective studies. The DASH and the Pain Catastrophizing Scale were completed by all patients. The Center for Epidemiologic Studies Depression scale, Patient Health Questionnaire, Pain Anxiety Symptoms Scale, and an ordinal pain scale were completed by 745, 493, 545, and 391 patients, respectively. Bivariate analysis and binary logistic regression were used to determine risk factors for incomplete (one or more unanswered question) or invalid (more than three unanswered questions) DASH questionnaires. Results Thirty-one percent of patients did not complete all questions on the DASH. Patients with an incomplete DASH were older, had fewer years of education, and had higher levels of catastrophic thinking, depression, and pain anxiety. Age and catastrophic thinking were retained in the best logistic regression models of predictors of both incomplete and invalid DASH questionnaires. ConclusionsThe observation that patients who complete disability questionnaires are different from patients who do not may affect the interpretation of clinical research. Computer adaptive testing may be preferable to avoid incomplete questionnaires. Level of Evidence: Prognostic Level II.

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Section: Discussionmentioning

confidence: 99%

Factors Associated with Incomplete DASH Questionnaires

Bot

Ferree

Neuhaus

et al. 2012

Hand (New York, N,Y.)

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“…It was derived from the UCLA-Prostate Cancer Index, and the initial EPIC instrument included a total of 50 questions assessing four domains: urinary, bowel, sexual, and hormonal [20]. Subsequently, shorter versions -EPIC-26 [21] and EPIC-CP (clinical practice) [22] -were developed which measure the same domains.…”

Section: Prostate Cancermentioning

confidence: 99%

Patient-reported outcomes in cancer survivorship

Gordon

Chen

2017

Acta Oncologica

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Background: There are currently 33 million cancer survivors worldwide. With improvements in early cancer detection and treatments, patients are living longer -and it is well-recognized that many survivors develop short-and long-term physical, psychosocial and spiritual effects as a result of their diagnoses and treatments. There is increasing awareness of the importance of using patient-reported outcomes (PROs) to accurately assess these effects in cancer survivors. Validated patient-reported outcome instruments: Traditionally, physicians have assessed the acute and late side effects of cancer treatments with standardized scales such as the CTCAE. However, multiple studies have demonstrated that PROs more accurately capture patient symptoms than physician assessment. In this article we describe frequently used, validated, general and cancer-specific PRO instruments that assess symptoms. We describe additional PRO instruments that assess unmet needs, interpersonal relationship issues, and psychosocial and financial problems. Published studies using these instruments have identified issues commonly faced by cancer survivors worldwide. Discussion and summary: While PROs are increasingly used in research, further efforts are needed to integrate PRO assessment into routine clinical care, so that timely and accurate assessments can translate into better management of issues -ultimately improving the lives of cancer survivors.

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“…10 Unfortunately, adoption of these tools in the clinical setting remains poor, especially outside of large academic centers. 11 One proposed explanation for poor adoption is the time and effort required for patients and office staff to complete the PAPI questionnaires, calculate results, present these results to the clinician, and transfer all of the obtained data to the patient record.…”

Section: á9mentioning

confidence: 99%