Existential concerns of terminally ill cancer patients receiving specialized palliative care in Japan

Morita, Tatsuya; Kawa, Masako; Honke, Yoshifumi; Kohara, Hiroyuki; Maeyama, Etsuko; Kizawa, Yoshiyuki; Akechi, Tatsuo; Uchitomi, Yosuke

doi:10.1007/s00520-003-0561-6

Cited by 93 publications

(77 citation statements)

References 20 publications

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“…As they sought treatment, they experienced poor healthcare communication or unpleasant hospital stay. In the literature, common sources of suffering are loss of function, image and dignity; burdening of family, social abandonment, pain, uncompleted life tasks and concerns about death and the phase of dying 13 14 18…”

Section: Discussionmentioning

confidence: 99%

“…Existential suffering includes loss of control, loss of body image, loss of continuity of the self, loss of dignity, burdening of others, relationship issues, social isolation, uncompleted life tasks, death and dying 13 14. Experiential suffering, a newly introduced term, consists of the sensory, emotional, cognitive and spiritual experiencing of these existential events 12.…”

Section: Introductionmentioning

confidence: 99%

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Psychological processes of suffering of palliative care patients in Malaysia: a thematic analysis

Beng

Loh

Lam

et al. 2016

BMJ Support Palliat Care

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Although suffering in palliative care has received increasing attention over the past decade, the psychological processes that underpin suffering remain relatively unexplored.ObjectiveTo understand the psychological processes involved in the experiencing of suffering at the end phase of life.MethodsSemistructured interviews were conducted with 20 palliative care inpatients from an academic medical centre in Kuala Lumpur, Malaysia. The transcripts were thematically analysed with NVIVO9.Results5 themes of psychological processes of suffering were generated: (1) perceptions, (2) cognitive appraisals, (3) hope and the struggles with acceptance, (4) emotions and (5) clinging. A model of suffering formation was constructed.ConclusionThe findings may inform the development of mechanism-based interventions in the palliation of suffering.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Psychological processes of suffering of palliative care patients in Malaysia: a thematic analysis

Beng

Loh

Lam

et al. 2016

BMJ Support Palliat Care

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“…dying in a favorite place) but also challenging psycho-existential issues (e.g. hope and pleasure, not being a burden to others and Ôcompletion of lifeÕ) [19,20] as an essential part of quality palliative care.…”

Section: Discussionmentioning

confidence: 99%

Good death in cancer care: a nationwide quantitative study

et al. 2007

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Background: The aims of this study were to (i) conceptualize dimensions of a good death in Japanese cancer care,(ii) clarify the relative importance of each component of a good death and (iii) explore factors related to an individual's perception of the domains of a good death. Methods:The general population was sampled using a stratified random sampling method (n = 2548; response rate, 51%) and bereaved families from 12 certified palliative care units were surveyed as well (n = 513; 70%). We asked the subjects about the relative importance of 57 components of a good death.Results: Explanatory factor analysis demonstrated 18 domains contributing to a good death. Ten domains were classified as Ôconsistently important domainsÕ, including Ôphysical and psychological comfortÕ, Ôdying in a favorite placeÕ, Ôgood relationship with medical staffÕ, Ômaintaining hope and pleasureÕ, Ônot being a burden to othersÕ, Ôgood relationship with familyÕ, Ôphysical and cognitive controlÕ, Ôenvironmental comfortÕ, Ôbeing respected as an individualÕ and Ôlife completionÕ. Conclusions:We quantitatively identified 18 important domains that contribute to a good death in Japanese cancer care. The next step of our work should be to conduct a national survey to identify what is required to achieve a good death.

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“…Such measures provide an opportunity to understand the nature of the underlying anxiety and the derivation of this kind of distress. There is emerging research interest in existential distress among patients with advanced cancer or life-threatening illness 18 , as evidenced by the development of a measure to explore spiritual concerns, such as the System of Belief Inventory. 76 Delirium Delirium is an acute organic brain syndrome that commonly occurs in the palliative care setting.…”

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confidence: 99%

Measurement of psychological distress in palliative care

2006

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Research investigating the psychological distress of palliative care patients has contributed to our understanding of the needs and experiences of individuals approaching death. This paper aims to provide a brief review of such measurement of psychological distress in palliative care, focusing on established psychiatric and psychological research tools, and quantitative research methods. This includes clinical screening and diagnostic assessment instruments used to identify key distress-related symptoms and the presence of common clinical syndromes, such as depression, anxiety, delirium, as well as the broader psychological dimensions of suffering, such as existential concerns, spirituality, hope and demoralisation. There are important considerations in undertaking psychological research in palliative care, such as maintaining a balance between the methods and measurements that will address key research questions, and sensitivity to the range of physical and emotional demands facing individuals at the point of receiving palliative care. The clinical application of psychological and psychiatric research tools and methods can aid the detection of psychological distress, aid the thorough assessment of the psychological dimension of the patients' illness and care, aid the identification of individuals who would benefit from specific psychotherapeutic or pharmacologic interventions, and the evaluation of response to treatments. Palliative Medicine 2006; 20: 779 Á789

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Existential concerns of terminally ill cancer patients receiving specialized palliative care in Japan

Cited by 93 publications

References 20 publications

Psychological processes of suffering of palliative care patients in Malaysia: a thematic analysis

Psychological processes of suffering of palliative care patients in Malaysia: a thematic analysis

Good death in cancer care: a nationwide quantitative study

Measurement of psychological distress in palliative care

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