Executive function and quality of life in individuals with Marfan syndrome

Ratiu, Ileana; Virden, Thomas B.; Baylow, Hope E.; Flint, Melissa; Esfandiarei, Mitra

doi:10.1007/s11136-018-1859-7

Cited by 25 publications

(46 citation statements)

References 24 publications

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“…Three studies recruited although both clinic and the Marfan Foundation, one study recruited by the GenTac register,one announced for volunteers on a web‐site and one study did not describe the recruiting process. Six studies had more than 200 participants but the respondents probably represent only a small percentage of the estimated national Marfan population. In most studies, the response rate was low.…”

Section: Resultsmentioning

confidence: 99%

“…In the largest study (n = 389), recruiting from GenTac database the response rate was not described. In the study of Ratiue et al (n = 318), the link to the survey was sent to 13 280 persons of these 281 completed the survey, indicating a response rate of 0.2% of the study population, the rest of the respondents were recruited through the Marfan symposium (Table ).…”

Section: Resultsmentioning

confidence: 99%

“…Short Form Medical Survey (SF‐36) was used in 10 of the 17 papers dealing with adults and two studies used Short Form Medical survey (SF‐12). Three studies used the Satisfaction with Life Scale (SWLS), one the Ferrans and Power Quality of life Index, cardiac version (QLI, cardiac III), and one used the Ferrans QLI . Two of the studies with children with MFS used the Pediatric Quality of Life Inventory (PedsQL) and one study used KINDL‐R Questionnaire .…”

Section: Resultsmentioning

confidence: 99%

“…Most studies had thoroughly described factors (eg, confounders) that may negatively impact the credibility of their study, but in seven studies the limitations of the study were not mentioned. Omitting information about the study's potential limitations may decrease the credibility of the study.…”

Section: Resultsmentioning

confidence: 99%

“…Twelve studies found decreased QoL in MFS compared to general population (GP), but the results were divergent and conflicting. Figure shows a comparison of the results from the 12 papers using SF‐36 or SF‐12 of the 17 papers of adults with MFS.…”

Section: Resultsmentioning

confidence: 99%

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Systematic review of quality of life in persons with hereditary thoracic aortic aneurysm and dissection diagnoses

et al. 2019

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The purpose of this study was to explore the literature on quality of life (QoL) in patients with hereditary thoracic aortic aneurysm and dissection (HTAAD); including Marfan syndrome (MFS), Loeys‐Dietz syndrome (LDS), vascular Ehlers‐Danlos syndrome (vEDS) and other HTAAD diagnoses, critically appraising and synthesizing the relevant literature. A systematic review was performed by searching the published literature using available medical, physical, psychological, social databases and other sources. Studies addressing QoL in persons with an HTAAD diagnosis, published in peer‐reviewed journals were assessed. Of 227 search results, 20 articles satisfied the eligibility criteria. No studies of QoL in LDS, vEDS, or other HTAAD were found, only on MFS. Most studies had been published in the last 3 years. All were cross‐sectional quantitative studies besides one pilot intervention study. Most studies were of small sample size, had low response rate or participants without verified diagnosis. Despite these limitations, most studies indicate that having an HTAAD diagnosis as MFS may negatively impact QoL, but few studies found any associations between the biomedical symptoms and decreased QoL. More research is needed on QoL in samples with verified HTAAD diagnosis to develop evidence‐based knowledge and appropriate guidelines for these diagnoses.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

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Systematic review of quality of life in persons with hereditary thoracic aortic aneurysm and dissection diagnoses

et al. 2019

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Cognitive and emotional predictors of quality of life and functioning after COVID‐19

Ariza,

Cano,

Segura

et al. 2023

Ann Clin Transl Neurol

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ObjectiveA long‐term decline in health‐related quality of life (HRQoL) has been reported after coronavirus disease 2019 (COVID‐19). Studies with people with persistent symptoms showed inconsistent outcomes. Cognition and emotion are important determinants in HRQoL, but few studies have examined their prognostic significance for HRQoL and functionality in post‐COVID patients with persisting symptoms. We aimed to describe QoL, HRQoL, and functioning in individuals post‐COVID with varying COVID‐19 severities and to investigate the predictive value of cognitive and emotional variables for QoL, HRQoL, and functioning.MethodsIn total, 492 participants (398 post‐COVID and 124 healthy controls) underwent a neurobehavioral examination that included assessments of cognition, mood, QoL/HRQoL (WHOQOL‐BREF, EQ‐5D), and functioning (WHODAS‐II). Analysis of covariance and linear regression models were used to study intergroup differences and the relationship between cognitive and emotional variables and QoL and functioning.ResultsThe Physical and Psychological dimensions of WHOQoL, EQ‐5D, and WHODAS Cognition, Mobility, Life Activities, and Participation dimensions were significantly lower in post‐COVID groups compared with a control group. Regression models explaining 23.9%–53.9% of variance were obtained for the WHOQoL‐BREF dimensions and EQ‐5D, with depressive symptoms, post‐COVID symptoms, employment status, income, and mental speed processing as main predictors. For the WHODAS, models explaining 17%–60.2% of the variance were obtained. Fatigue, depressive symptoms, mental speed processing, and post‐COVID symptoms were the main predictors.InterpretationQoL/HRQoL and functioning after COVID‐19 in individuals with persistent symptoms were lower than in non‐affected persons. Depressive symptoms, fatigue, and slower mental processing speed were predictors of lower QoL/HRQoL and functioning.

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An update on tests used for intraoperative monitoring of cognition during awake craniotomy

de Zwart,

Ruis

2024

Acta Neurochir

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Purpose Mapping higher-order cognitive functions during awake brain surgery is important for cognitive preservation which is related to postoperative quality of life. A systematic review from 2018 about neuropsychological tests used during awake craniotomy made clear that until 2017 language was most often monitored and that the other cognitive domains were underexposed (Ruis, J Clin Exp Neuropsychol 40(10):1081–1104, 218). The field of awake craniotomy and cognitive monitoring is however developing rapidly. The aim of the current review is therefore, to investigate whether there is a change in the field towards incorporation of new tests and more complete mapping of (higher-order) cognitive functions. Methods We replicated the systematic search of the study from 2018 in PubMed and Embase from February 2017 to November 2023, yielding 5130 potentially relevant articles. We used the artificial machine learning tool ASReview for screening and included 272 papers that gave a detailed description of the neuropsychological tests used during awake craniotomy. Results Comparable to the previous study of 2018, the majority of studies (90.4%) reported tests for assessing language functions (Ruis, J Clin Exp Neuropsychol 40(10):1081–1104, 218). Nevertheless, an increasing number of studies now also describe tests for monitoring visuospatial functions, social cognition, and executive functions. Conclusions Language remains the most extensively tested cognitive domain. However, a broader range of tests are now implemented during awake craniotomy and there are (new developed) tests which received more attention. The rapid development in the field is reflected in the included studies in this review. Nevertheless, for some cognitive domains (e.g., executive functions and memory), there is still a need for developing tests that can be used during awake surgery.

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Executive function and quality of life in individuals with Marfan syndrome

Abstract: The findings of the current study suggest that individuals with MFS may experience specific executive function difficulties which impact QoL. These findings also have implications for clinicians who work with individuals with MFS.

Cited by 25 publications

References 24 publications

Systematic review of quality of life in persons with hereditary thoracic aortic aneurysm and dissection diagnoses

Systematic review of quality of life in persons with hereditary thoracic aortic aneurysm and dissection diagnoses

Cognitive and emotional predictors of quality of life and functioning after COVID‐19

An update on tests used for intraoperative monitoring of cognition during awake craniotomy

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