Examining the Utility of the HIV Disability Questionnaire (HDQ) in Clinical Practice: Perspectives of People Living with HIV and Healthcare Providers

Vader, Kyle; Carusone, Soo Chan; Aubry, Rachel; Ahluwalia, Puja; Murray, Carolann; Baxter, Larry; Robinson, Gregory; Ibáñez-Carrasco, Francisco; Stewart, Ann; Solomon, Patricia; O’Brien, Kelly K

doi:10.1177/23259582221079148

Cited by 3 publications

(5 citation statements)

References 44 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…This study builds on our previous work that assessed the utility, sensibility, and implementation considerations of the SF-HDQ and HDQ in clinical HIV care settings. 21,23 While both confirmed the sensibility and utility of SF-HDQ across settings, findings from this study highlight unique implementation considerations for electronic administration of the SF-HDQ among participants in community-based settings. Discomfort with technology and lack of access to web-based platforms and lack of space at community organizations to administer the SF-HDQ on site can limit electronic questionnaire administration.…”

Section: Discussionsupporting

confidence: 60%

“…15,16 Derived from the episodic disability framework, the HDQ possesses sensibility, reliability, and validity among adults living with HIV internationally. [17][18][19][20][21] Using Rasch analysis we established a short-form version of the questionnaire (SF-HDQ) to enhance the feasibility for use in clinical practice. 22 This new 35-item SF-HDQ demonstrated structural validity and sensibility (face and content validity, and ease of use) for use with adults living with HIV in clinical settings in Canada, United Kingdom, and United States.…”

Section: How Does Your Research Contribute To the Field?mentioning

confidence: 99%

See 1 more Smart Citation

Short-Form HIV Disability Questionnaire Sensibility, Utility, and Implementation Considerations in Community-Based Settings: A Mixed Methods Study

O’Brien,

Ibáñez-Carrasco,

Solomon

et al. 2023

J Int Assoc Provid AIDS Care

Self Cite

View full text Add to dashboard Cite

Purpose: We assessed the sensibility, utility, and implementation considerations of the Short-Form HIV Disability Questionnaire (SF-HDQ) in community-based settings. Methods: We conducted a mixed-methods study with adults living with HIV and community providers in seven community sites in Canada. We administered the SF-HDQ, a sensibility questionnaire and conducted semi-structured interviews. The SF-HDQ was sensible if median scores were ≥5/7(adults living with HIV) and ≥4/7(community providers) for ≥80% of the sensibility questionnaire items. Qualitative interview data were analyzed using content analysis. Results: Median sensibility scores were ≥5 for adults living with HIV (n = 44) and ≥4 for community providers (n = 10) for 95% and 100% of items, respectively. The SF-HDQ is comprehensive, represented disability, captured its episodic nature, and was easy to complete. Community utility included: facilitating communication and engagement with community; taking a snapshot of disability and tracking changes over time; guiding referrals; fostering self-reflection; and informing community programs. Considerations for implementation included flexible, person-centered approaches to mode and processes of administration, and communicating scores based on personal preferences among persons living with HIV. Conclusion: The SF-HDQ possesses sensibility and utility for use in community-based settings.

show abstract

Section: Discussionsupporting

confidence: 60%

Section: How Does Your Research Contribute To the Field?mentioning

confidence: 99%

Short-Form HIV Disability Questionnaire Sensibility, Utility, and Implementation Considerations in Community-Based Settings: A Mixed Methods Study

O’Brien,

Ibáñez-Carrasco,

Solomon

et al. 2023

J Int Assoc Provid AIDS Care

Self Cite

View full text Add to dashboard Cite

show abstract

“…The EDQ scales possess internal consistency reliability, and the EDQ severity and presence scales possess construct validity and test–retest reliability with limited precision and when administered electronically among adults living with HIV across eight clinical settings in four countries, Canada, Ireland, United Kingdom and the United States. This work goes beyond past HDQ measurement property assessment that focused on severity scales only [ 12 – 16 ] and SF-HDQ property assessment with the Rasch interval level of measurement that demonstrated structural validity, reliability and sensibility for use among adults living with HIV [ 17 , 18 ].…”

Section: Discussionmentioning

confidence: 99%

“…Our test–retest reliability and construct validity assessment was with the EDQ presence and severity scales only, as we did not expect consistency in a scale that refers to fluctuations in the past week, and the criterion measures did not measure the episodic nature of health challenges. While the episodic scale of the EDQ is an important feature to characterize disability experiences, [ 16 , 18 ], and is unique to other disability measures [ 24 , 48 ], the use of the scale should be descriptive in nature to assist in providing a broader picture of the disability experience at a point in time.…”

Section: Discussionmentioning

confidence: 99%

“…The EDQ is based on a conceptual framework of disability [ 4 , 10 ], and the foundational HDQ, which possessed validity, reliability, and sensibility for use among adults living with HIV in Canada, Ireland, the United States (US), and United Kingdom (UK) [ 11 – 15 ]. However, at 69 items, the HDQ was lengthy posing challenges for clinical use [ 16 ].…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Episodic disability questionnaire (EDQ) measurement properties among adults living with HIV in Canada, Ireland, United Kingdom, and United States

O’Brien,

Erlandson,

Brown

et al. 2024

BMC Infect Dis

Self Cite

View full text Add to dashboard Cite

Background The Episodic Disability Questionnaire (EDQ) is a generic 35-item patient-reported outcome measure of presence, severity and episodic nature of disability. We assessed the measurement properties of the Episodic Disability Questionnaire (EDQ) with adults living with HIV. Methods We conducted a measurement study with adults living with HIV in eight clinical settings in Canada, Ireland, United Kingdom, and United States. We electronically administered the EDQ followed by three reference measures (World Health Organization Disability Assessment Schedule; Patient Health Questionnaire; Social Support Scale) and a demographic questionnaire. We administered the EDQ only 1 week later. We assessed the internal consistency reliability (Cronbach’s alpha; > 0.7 acceptable), and test–retest reliability (Intra Class Correlation Coefficient; > 0.7 acceptable). We estimated required change in EDQ domain scores to be 95% certain that a change was not due to measurement error (Minimum Detectable Change (MDC95%)). We evaluated construct validity by assessing 36 primary hypotheses of relationships between EDQ scores and scores on the reference measures (> 75% hypotheses confirmed indicated validity). Results Three hundred fifty nine participants completed the questionnaires at time point 1, of which 321 (89%) completed the EDQ approximately 1 week later. Cronbach’s alpha for internal consistency ranged from 0.84 (social domain) to 0.91 (day domain) for the EDQ severity scale, and 0.72 (uncertainty domain) to 0.88 (day domain) for the EDQ presence scale, and 0.87 (physical, cognitive, mental-emotional domains) to 0.89 (uncertainty domain) for the EDQ episodic scale. ICCs for test–retest reliability ranged from 0.79 (physical domain) to 0.88 (day domain) for the EDQ severity scale and from 0.71 (uncertainty domain) to 0.85 (day domain) for the EDQ presence scale. Highest precision was demonstrated in the severity scale for each domain (MDC95% range: 19–25 out of 100), followed by the presence (MDC95% range: 37–54) and episodic scales (MDC95% range:44–76). Twenty-nine of 36 (81%) construct validity hypotheses were confirmed. Conclusions The EDQ possesses internal consistency reliability, construct validity, and test–retest reliability, with limited precision when administered electronically with adults living with HIV across in clinical settings in four countries. Given the measurement properties, the EDQ can be used for group level comparisons for research and program evaluation in adults living with HIV.

show abstract

Episodic Disability Questionnaire (EDQ) measurement properties among adults living with HIV in Canada, Ireland, United Kingdom, and United States

O’Brien

Erlandson

Brown

et al. 2023

Preprint

Self Cite

View full text Add to dashboard Cite

Background The Episodic Disability Questionnaire (EDQ) is a generic 35-item patient-reported outcome measure of presence, severity and episodic nature of disability. We assessed the measurement properties of the Episodic Disability Questionnaire (EDQ) with adults living with HIV. Methods We conducted a measurement study with adults living with HIV in eight clinical settings in Canada, Ireland, United Kingdom, and United States. We electronically administered the EDQ followed by three reference measures (World Health Organization Disability Assessment Schedule; Patient Health Questionnaire; Social Support Scale) and a demographic questionnaire. We administered the EDQ only 1 week later. We assessed the internal consistency reliability (Cronbach’s alpha; >0.7 acceptable), and test-retest reliability (Intra Class Correlation Coefficient; >0.7 acceptable). We estimated required change in EDQ domain scores to be 95% certain that a change was not due to measurement error (Minimum Detectable Change (MDC95%)). We evaluated construct validity by assessing 36 primary hypotheses of relationships between EDQ scores and scores on the reference measures (> 75% hypotheses confirmed indicated validity). Results 359 participants completed the questionnaires at time point 1, of which 321 (89%) completed the EDQ approximately 1 week later. Cronbach’s alpha for internal consistency ranged from 0.84 (social domain) to 0.91 (day domain) for the EDQ severity scale, and 0.72 (uncertainty domain) to 0.88 (day domain) for the EDQ presence scale, and 0.87 (physical, cognitive, mental-emotional domains) to 0.89 (uncertainty domain) for the EDQ episodic scale. ICCs for test-retest reliability ranged from 0.79 (physical domain) to 0.88 (day domain) for the EDQ severity scale and from 0.71 (uncertainty domain) to 0.85 (day domain) for the EDQ presence scale. Highest precision was demonstrated in the severity scale for each domain (MDC95% range: 19–25 out of 100), followed by the presence (MDC95% range: 37–54) and episodic scales (MDC95% range:44–76). Twenty-nine of 36 (81%) construct validity hypotheses were confirmed. Conclusions The EDQ possesses internal consistency reliability, construct validity, and test-retest reliability, with limited precision when administered electronically with adults living with HIV across in clinical settings in four countries. Given the measurement properties, the EDQ can be used for group level comparisons for research and program evaluation in adults living with HIV.

show abstract

Examining the Utility of the HIV Disability Questionnaire (HDQ) in Clinical Practice: Perspectives of People Living with HIV and Healthcare Providers

Cited by 3 publications

References 44 publications

Short-Form HIV Disability Questionnaire Sensibility, Utility, and Implementation Considerations in Community-Based Settings: A Mixed Methods Study

Short-Form HIV Disability Questionnaire Sensibility, Utility, and Implementation Considerations in Community-Based Settings: A Mixed Methods Study

Episodic disability questionnaire (EDQ) measurement properties among adults living with HIV in Canada, Ireland, United Kingdom, and United States

Episodic Disability Questionnaire (EDQ) measurement properties among adults living with HIV in Canada, Ireland, United Kingdom, and United States

Contact Info

Product

Resources

About