Examining Stigma and Disclosure Among Women With HIV in the Southern United States: Qualitative Study Guided by the Adaptive Leadership Framework for Chronic Illness

McMillian-Bohler, Jacquelyn; Holt, Lauren; Adimora, Adaora A.; Bailey, Donald “Chip” E.; Johnson, Ragan; Koch, Amie; McGee, Kara; Ramirez, Catalina; Randolph, Schenita D.; Ritchwood, Tiarney D.; Relf, Michael V.

doi:10.1097/jnc.0000000000000354

Cited by 4 publications

(10 citation statements)

References 42 publications

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“…Internalization of demeaning stereotypes resulted in feelings of shame and self-loathing (10,24,38,40). In efforts to shield themselves from HIV-related stigma and discrimination, women frequently experienced loneliness and isolation as a result of their self-exile (15,16,22,30,39). Studies discussed the anxiety experienced over the fear of transmission to partners (28) and fetuses (41) as well as avoidance of dating and intimacy out of fear of transmission (13).…”

Section: Mental Healthmentioning

confidence: 99%

“…Disclosure was a frequent source of anxiety and stress for many women. Several studies discussed the psychological distress that resulted from anxiety and fear surrounding disclosure (11,15,16,22,35,36,38,45). discussed the paradox of trying to live a life of honesty while concealing their diagnosis and the extreme stress that resulted from this inner con ict.…”

Section: Paradox Of Disclosurementioning

confidence: 99%

“…Similarly, Fernandez et al (47) found this stigma challenging for women in the context of sharing living spaces with others who did not know their HIV status. Beyond the psychological effects, disclosure impeded engagement in care (20,22,27,47), impacted the quality of care (18), and in uenced women's ability to cope with their illness (11).…”

Section: Paradox Of Disclosurementioning

confidence: 99%

“…Social support systems were integral to many women from the time of their initial diagnosis and throughout their life course, with women often drawing on multiple sources of support from communities, institutions, and individuals (6, 10,12,15,22,27,34,37,38,39,41,42,48). Seeking and building trusting relationships with supportive providers was critical for women in their disease management (6,20,37,42,48).…”

Section: Social Supportmentioning

confidence: 99%

“…Although prefacing results by noting that several women in the study had positive, supportive experiences with providers,Rice et al (18) provided a detailed evaluation of HIV-related stigma in HIV care and other healthcare settings. McMillian-Bohler et al(22) did not focus on speci c instances of provider discrimination but identi ed several…”

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confidence: 99%

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A Qualitative Metasynthesis of Stigma in Women Living with HIV in the United States

Sommer

Barroso

2023

Preprint

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Our goal was to synthesize qualitative studies on HIV-related stigma as experienced by women living with HIV (WLWH) in the U.S. Qualitative metasynthesis techniques as developed by ANON were used to integrate and update findings on stigma in WLWH in the U.S. in 43 reports of qualitative studies conducted between 2004–2023 with 1118 participants. Developed themes explored a collective narrative of women first surviving the intersectionality of multiple sources of stigma, discovering non-linear pathways to transcend their stigma, and finally experiencing resilience through their transcendence of stigma. While this metasynthesis revealed similarities to an earlier metasynthesis in the ubiquity and persistence of stigma, they differ primarily in women’s abilities to find agency in managing and opposing their stigma. This cognitive reframing of their stigma helped women to redefine stigma as ignorance and move towards a more positive assessment of the self. In doing so, they separated themselves from their stigma and the damaging effects of it. Findings from this metasynthesis may serve as a useful tool for the development of stigma reduction interventions specific to the needs and experiences of WLWH in the U.S.

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Section: Mental Healthmentioning

confidence: 99%

Section: Paradox Of Disclosurementioning

confidence: 99%

Section: Paradox Of Disclosurementioning

confidence: 99%

Section: Social Supportmentioning

confidence: 99%

mentioning

confidence: 99%

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A Qualitative Metasynthesis of Stigma in Women Living with HIV in the United States

Sommer

Barroso

2023

Preprint

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Black Women’s Experiences Along the HIV Care Continuum in the United States: A Scoping Review

Thomas,

Ballew,

Kwong

2024

Health Equity

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A qualitative metasynthesis of stigma in women living with HIV in the United States

Sommer,

Barroso

2023

Int J Equity Health

View full text Add to dashboard Cite

Our goal was to synthesize qualitative studies on HIV-related stigma as experienced by women living with HIV (WLWH) in the U.S. Qualitative metasynthesis techniques as developed by Sandelowski et al. (Res Nurs Health 30(1):99–111, 2007) were used to integrate and update findings on stigma in WLWH in the U.S. in 43 reports of qualitative studies conducted between 2004 and 2023 with 1118 participants. Developed themes explored a collective narrative of women first surviving the intersectionality of multiple sources of stigma, discovering non-linear pathways to transcend their stigma, and finally experiencing resilience through their transcendence of stigma. While this metasynthesis revealed similarities to an earlier metasynthesis in the ubiquity and persistence of stigma, they differ primarily in women’s abilities to find agency in managing and opposing their stigma. This cognitive reframing of their stigma helped women to redefine stigma as ignorance and move towards a more positive assessment of the self. In doing so, they separated themselves from their stigma and the damaging effects of it. Findings from this metasynthesis may serve as a useful tool for the development of stigma reduction interventions specific to the needs and experiences of WLWH in the U.S.

show abstract

Examining Stigma and Disclosure Among Women With HIV in the Southern United States: Qualitative Study Guided by the Adaptive Leadership Framework for Chronic Illness

Cited by 4 publications

References 42 publications

A Qualitative Metasynthesis of Stigma in Women Living with HIV in the United States

A Qualitative Metasynthesis of Stigma in Women Living with HIV in the United States

Black Women’s Experiences Along the HIV Care Continuum in the United States: A Scoping Review

A qualitative metasynthesis of stigma in women living with HIV in the United States

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