2021
DOI: 10.3389/fpubh.2021.668386
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Evolution or Revolution? Recommendations to Improve the Swiss Health Data Framework

Abstract: Background: Facilitating access to health data for public health and research purposes is an important element in the health policy agenda of many countries. Improvements in this sense can only be achieved with the development of an appropriate data infrastructure and the implementations of policies that also respect societal preferences. Switzerland is a revealing example of a country that has been struggling to achieve this aim. The objective of the study is to reflect on stakeholders' recommendations on how… Show more

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Cited by 9 publications
(4 citation statements)
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“…This was quite similar to the main barriers for information technology use reported among Swiss ambulatory care physicians in 2008 by Rosemann and colleagues [4]. Key recommendations for improving and promoting the Swiss eHealth system include fostering the development of an explicit health data strategy to help create the "right" mindset and attitudes, improving the healthcare information technologies infrastructure, harmonising data access procedures, clarifying privacy and consent issues, and aligning incentives with aims and goals [32].…”
Section: Findings Context Of Existing Evidencesupporting
confidence: 76%
“…This was quite similar to the main barriers for information technology use reported among Swiss ambulatory care physicians in 2008 by Rosemann and colleagues [4]. Key recommendations for improving and promoting the Swiss eHealth system include fostering the development of an explicit health data strategy to help create the "right" mindset and attitudes, improving the healthcare information technologies infrastructure, harmonising data access procedures, clarifying privacy and consent issues, and aligning incentives with aims and goals [32].…”
Section: Findings Context Of Existing Evidencesupporting
confidence: 76%
“…Breast cancer is a leading cause of women's amenable mortality in Switzerland, where both geographic and socioeconomic inequalities in breast cancer care and stage at diagnosis were documented ( 43 ). Switzerland's healthcare system weakness in tackling health inequalities, implementing health prevention and producing nationwide health data and quality of care indicators was linked to its high decentralization (due to the cantons' autonomy to manage healthcare) ( 44 , 45 ). Regional mammography programs may thus risk reproducing socioeconomic and geographic inequalities in breast cancer outcomes.…”
Section: Discussionmentioning
confidence: 99%
“…As part of this larger project, several activities were conducted, including: a systematic review to identify the main barriers and facilitators to health data processing and harmonisation; 16 analyses of the interplay between data protection law and data sharing; 17 , 18 analyses of how ethics bears on the exchange of health data; 19 , 20 and interviews with more than 60 stakeholders practically involved in the health data infrastructure from both Switzerland and Denmark. 13 , 21 , 22 As a result of these activities, we gathered many insights on the state of the Swiss health data landscape, on the key challenges at the important crossroad where it stands, and on potential ways how to tackle them. To further contribute to the policy debate in our context, as well as to inform the policymaking of other countries who face similar issues in the field of digital health, we aimed at specifying and narrowing down the scope of proposals how to concretely facilitate the secondary use of data for research.…”
Section: Methodsmentioning
confidence: 99%