Abstract
Background Consistent evidence suggests that children’s palliative care is not equitable and managed clinical networks have been recommended as a solution. This study explored the development of a managed clinical network for children’s palliative care in England, with an aim to identify barriers and enablers of successful implementation. Methods Thematic analysis of semi-structured interviews and focus groups with 45 healthcare staff with a role in developing the Network or in the delivery of children’s palliative care (September 2019-March 2020). Results The study identified Network features that helped to formalise governance processes, establish training and networking opportunities, standardise practice, and improve collaboration between organisations. These include the funded Network co-ordinator, committed individuals who lead the Network, and a governance structure that fosters collaboration. However, the Network’s development was impeded by cross-cutting barriers including limited funding for the Network and children’s palliative care more generally, no shared technology, lack of standards and evidence-base for children’s palliative care, and shortage of palliative care staff. These barriers impacted on the Network’s ability to improve and evaluate palliative care provision and affected member engagement. Competing organisational priorities and differences between NHS and non-NHS members also impeded progress. Training provision was well received, although barriers to access were identified. Conclusions Key features of children’s palliative care can act as barriers to developing a managed clinical network. Managing expectations and raising awareness, providing accessible and relevant training, and sharing early achievements through ongoing evaluation can help to sustain member engagement, which is crucial to a network’s success.