Evaluation of the LIGHT Curriculum: An African American Church-Based Curriculum for Training Lay Health Workers to Support Advance Care Planning, End-of-Life Decision Making, and Care

Johnson, Jerry; Hayden, Tara; Taylor, Lynne

doi:10.1089/jpm.2021.0235

Cited by 4 publications

(4 citation statements)

References 19 publications

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“…Involvement of peers in direct facilitation of ACP conversations has been well documented [ [14] , [15] , [16] , [17] , [18] , [19] , [20] , [21] , [22] ], and group medical visits have shown efficacy in promoting ACP engagement [ [23] , [24] , [25] ]. Research into peer-facilitated group ACP activities is limited but promising.…”

Section: Introductionmentioning

confidence: 99%

Community-led, peer-facilitated Advance Care Planning workshops prompt increased Advance Care Planning behaviors among public attendees

Carter,

Siden,

Husband

et al. 2023

PEC Innovation

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Section: Introductionmentioning

confidence: 99%

Community-led, peer-facilitated Advance Care Planning workshops prompt increased Advance Care Planning behaviors among public attendees

Carter,

Siden,

Husband

et al. 2023

PEC Innovation

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“…For instance, church-based models have been described as effective in community-led ACP education initiatives. 9 , 22 – 25 A notable example of a successful community-based initiative partnered with churches to train African American ‘lay health workers’. 9 , 25 Exploring a broader range of organizations to implement community-led ACP initiatives and investigating any differences in implementation experiences between organization types would be worthwhile future research.…”

Section: Discussionmentioning

confidence: 99%

“…That has led to increasing recognition of the role of non-clinicians, such as community members, in ACP facilitation. [7][8][9][10] These community-led ACP initiatives hold great potential in increasing public awareness and engagement, leading to a much-needed culture shift that makes ACP engagement the norm for everyone. 10 In the Canadian province, British Columbia (BC), two community-based organizations, Comox Valley Hospice Society (CVHS) and the Community Engagement Advisory Network (CEAN) within Vancouver Coastal Health Authority, have emerged as leaders in community-led ACP education.…”

Section: Introductionmentioning

confidence: 99%

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A model for community-led peer-facilitated advance care planning workshops for the public

Carter,

Hassan,

Porterfield

et al. 2023

Palliat�Care

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Background: The core to successful advance care planning (ACP) facilitation is helping people determine their values, beliefs and wishes, and understand substitute decision-making. Recognizing the potential for community members to support public awareness and education we developed a model of ACP education, whereby peer facilitators associated with community organizations host workshops that educate and assist members of the public with ACP. Objectives: Describe the development and evaluation of the model for community-led peer-facilitated ACP workshops for the public. Design: Descriptive mixed methods. Methods: A training curriculum and program model were co-developed with two community organizations that had been successful in delivering ACP workshops independently in their communities. Herein we describe a mixed-methods evaluation of three cycles of implementation and improvement of the model. Results: The model centers on three key concepts; the right content (based around three steps Think, Talk, Plan), the right facilitator, and the right approach. A suite of tools was designed to support the three groups involved in the delivery of the ACP workshops: the public participants, the peer facilitators, and the community-based organizations. The peer-facilitator training addresses the facilitator’s learning needs of ACP content knowledge, facilitation skills, and understanding change behavior. Training evaluation data from 106 facilitators confirmed that the curriculum prepared them to facilitate the workshops. Qualitative data revealed that support from organizations with established reputations in their community is critical, with mentoring from more experienced facilitators beneficial. Conclusion: Our model demonstrates the potential of community-led, peer-facilitated ACP initiatives to enhance the capacity of community to upstream ACP conversations. Reaching a broader audience and creating a supportive, inclusive environment for individuals to comfortably learn about ACP can drive the much-needed culture shift to normalize ACP. Meaningful community engagement, empowerment, and partnerships are essential for the successful development and widespread impact of these initiatives.

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Education About Specialty Palliative Care Among Nonhealthcare Workers: A Systematic Review

Smith,

Singh,

Hui

et al. 2024

Journal of Pain and Symptom Management

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Evaluation of the LIGHT Curriculum: An African American Church-Based Curriculum for Training Lay Health Workers to Support Advance Care Planning, End-of-Life Decision Making, and Care

Cited by 4 publications

References 19 publications

Community-led, peer-facilitated Advance Care Planning workshops prompt increased Advance Care Planning behaviors among public attendees

Community-led, peer-facilitated Advance Care Planning workshops prompt increased Advance Care Planning behaviors among public attendees

A model for community-led peer-facilitated advance care planning workshops for the public

Education About Specialty Palliative Care Among Nonhealthcare Workers: A Systematic Review

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