Evaluation of the implementation of the Meeting Centres Support Program in Italy, Poland, and the UK; exploration of the effects on people with dementia

Brooker, Dawn; Evans, Simon; Evans, Siân; Bray, Jennifer; Saibene, Francesca Lea; Scorolli, Claudia; Szczęśniak, Dorota; d’Arma, Alessia; Urbańska, Katarzyna; Atkinson, Teresa; Farina, Elisabetta; Rymaszewska, Joanna; Chattat, Rabih; Henderson, Catherine; Rehill, Amritpal; Hendriks, Iris; Meiland, Franka; Dröes, Rose-Marie

doi:10.1002/gps.4865

Cited by 35 publications

(62 citation statements)

References 30 publications

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“…Specialist personalized, multicomponent psychological support to family carers, have been shown to reduce the frequency of care home admissions (Livingston et al, 2017). Projects facilitated by INTERDEM have examined cross-national implementation of costeffective interventions such as meeting centers (Brooker et al, 2018).…”

Section: Psychosocial Interventionsmentioning

confidence: 99%

Bridging the divide between biomedical and psychosocial approaches in dementia research: the 2019 INTERDEM manifesto

Vernooij‐Dassen¹,

Moniz-Cook

Verhey³

et al. 2019

Aging & Mental Health

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Objective: To provide a new perspective on integrated biomedical and psychosocial dementia research. Background: Dementia is being recognized as a multifactorial syndrome, but there is little interaction between biomedical and psychosocial approaches. A way to improve scientific knowledge is to seek better understanding of the mechanisms underlying the interaction between biomedical and psychosocial paradigms. One rationale for integrating biomedical and psychosocial research is the discordance between neuropathology and cognitive functioning. The concept of social health might bridge the two paradigms. It relates to how social resources influence the dynamic balance between capacities and limitations. Hypotheses: Social health can act as the driver for accessing cognitive reserve, in people with dementia through active facilitation and utilization of social and environmental resources. Thereby we link lifestyle social and opportunities to the brain reserve hypothesis. Manifesto: We provide a Manifesto on how to significantly move forward the dementia research agenda.

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Section: Psychosocial Interventionsmentioning

confidence: 99%

Bridging the divide between biomedical and psychosocial approaches in dementia research: the 2019 INTERDEM manifesto

Vernooij‐Dassen¹,

Moniz-Cook

Verhey³

et al. 2019

Aging & Mental Health

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“…The concept of MCSP was developed 25 years ago in the Netherlands in collaboration with people living with dementia as well as their carers 15. The basis for MCSP is the theoretical framework of the Adaptation-Coping model according to which people with dementia and their informal caregivers need to cope with adaptive tasks, for example, dealing with disabilities, remaining social relationships, and maintaining an emotional balance and positive self-image 15,16. MCSP operates on the borders of social care, welfare, and health.…”

Section: The Mcspmentioning

confidence: 99%

“…According to the conducted studies on the effectiveness of MCSP, compared to those using traditional day care after 7 months of participation in MCSP, people with dementia showed fewer behavioral and mood problems (less inactivity, unsocial and depressed behavior, and a higher self-esteem) and nursing home admission was delayed 15,18. People with dementia reported noticeable improvements regarding their self-esteem, as well as positive effect and the feeling of belonging after the period of 7 months of attending the MCs.…”

Section: The Mcspmentioning

confidence: 99%

Does the Meeting Centres Support Programme reduce unmet care needs of community-dwelling older people with dementia? A controlled, 6-month follow-up Polish study

Mazurek

Szczęśniak

Lion

et al. 2019

CIA

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IntroductionIn Poland we lack a multidisciplinary and coordinated system of care for people with dementia, which would take the form of an evidence-based pathway and the number of reports on the holistic approach to caring for people living with this diagnosis is very low.Aim of the studyThe aim of the study was to investigate whether the Meeting Centres Support Programme (MCSP) is effective in meeting the needs of older people with dementia.Participants and methodsThis was done by comparing the experiences of people with dementia themselves and that of their carers at baseline and at follow-up, after 6 months of participation in MCSP or Usual Care (UC).ResultsThe study included 47 people diagnosed with mild-to-moderate dementia (n=24, MCSP group; n=23, UC control group) and 42 informal carers (n=22, MCSP group; n=20, UC control group), all living in Wroclaw in Poland and involved in the European JPND-MEETINGDEM project. To assess cognitive functioning and severity of dementia, the Mini-Mental State Examination and Global Deterioration Scale were used. The needs were assessed using the Camberwell Assessment of Need for the Elderly. The most frequently reported unmet needs at baseline both by the persons with dementia and their carers included activities of daily living, psychological distress, and the need for company. Compared to the UC group the unmet needs were reduced considerably in the MCSP group providing convincing evidence that MCSP is effective in reducing unmet needs over a 6-month period.ConclusionMCSP may be regarded as a good example of comprehensive post-diagnostic support for patients with mild-to-moderate dementia as well as their informal carers.

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“…16 A variety of innovative postdiagnostic support projects have been piloted in the UK to address this shortfall, some of which have strong connections with primary care. [17][18][19][20][21] The aim of this UK study was to explore the views and experiences of key professionals, including commissioners and managers of dementia services, on the concept of a task-shifted and task-shared approach.…”

Section: Introductionmentioning

confidence: 99%

Task-shifted approaches to postdiagnostic dementia support: a qualitative study exploring professional views and experiences

et al. 2020

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ObjectivesTo explore the views of commissioners, service development leads, service managers and senior staff in selected dementia services on increasing the role of primary care in postdiagnostic support for people with dementia.DesignQualitative semi-structured telephone interviews and a focus group.SettingParticipants were drawn from National Health Service (NHS) Clinical Commissioning Groups, social care commissioning and a range of dementia services across primary care, secondary mental healthcare, social care and the third sector. All participants were based in England or Wales.Participants61 professionals, comprising 25 commissioners or service development leads; 25 service managers; and 11 team leads or senior staff.ResultsParticipants had varied views on whether a primary care-based approach for postdiagnostic support for people with dementia and their families was appropriate, achievable and/or desirable. Potential benefits of a task-shifted approach were continuity and a more holistic approach to care; familiarity for both patients and staff; and reduction of stigma. Key challenges included the capacity, ability and inclination of primary care to deliver postdiagnostic support for people with dementia and their families. We discovered a number of conceptual challenges to implementing a task-shifted and task-shared approach, including uncertainties around the nature of postdiagnostic support, the definition of primary care and identification of tasks that could be shifted to primary care.ConclusionsOur data highlight the concerns of key professional staff around greater involvement of primary care in postdiagnostic support for dementia. Further research is needed to achieve a shared understanding and consensus over what postdiagnostic support means in the context of dementia. We will be undertaking such research in the next phase of our programme.

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Evaluation of the implementation of the Meeting Centres Support Program in Italy, Poland, and the UK; exploration of the effects on people with dementia

Cited by 35 publications

References 30 publications

Bridging the divide between biomedical and psychosocial approaches in dementia research: the 2019 INTERDEM manifesto

Bridging the divide between biomedical and psychosocial approaches in dementia research: the 2019 INTERDEM manifesto

Does the Meeting Centres Support Programme reduce unmet care needs of community-dwelling older people with dementia? A controlled, 6-month follow-up Polish study

Task-shifted approaches to postdiagnostic dementia support: a qualitative study exploring professional views and experiences

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