Evaluation of the impact of celiac disease and its dietary manipulation on children and their caregivers

Abstract

Noncompliance to gluten-free diet was noted in 24 % of children with celiac disease.

Factors Affecting Compliance to a Gluten-Free Diet in Pediatric Populations with Celiac Disease

“…Two cross-sectional studies and one case-control article were rated as "Poor." This rating was tied to the following assessments: Khurana et al 8 lacked information regarding population details and Roma et al 9 and Ljungman and Myrdal 10 did not discriminate the factors affecting compliance, namely those that were evaluated as a dichotomic variable when more discrimination was possible.…”

“…In our review, eight articles evaluated maternal education. Four articles (two of "Good" quality 11,13 and two of "Medium" 5,17 quality) showed maternal education to be a significant factor for compliance to a GFD while another four (two of "Good" quality 16,18 and two of "Poor" quality 8,9 ) failed to show an effect.…”

“…14,15 Therefore, we were able to estimate an average CD patient age of 10.3 years. The papers report to different geographic areas with five being from Europe, 9,10,12,14 three from India, 8,11,13 another three from Middle East, 5,16,17 and two from Canada. 15,18 Except for two of them, 10,17 all papers were published within the last decade.…”

Coping with celiac disease: how heavy is the burden for caregivers?

“…Several studies demonstrated the importance of caregivers in assisting in the social and psychological drama of a chronic condition and in supporting a faster recovery and higher compliance to treatment. With regard to CD, only a few studies adopted the caregivers' perspective, mainly drawing the attention to their effect on patients' quality of life and treatment adherence (21). In the clinical practice, caregivers' well-being is not routinely assessed (22).…”

The effects of the socioeconomic status of Serbian families children with coeliac disease on gluten-free diet

“…This is so since the poorer population do not attend a doctor very often and even when the diagnosis is established, there is a greater possibility of non-adherence to a gluten-free diet due to their unfavourable financial situation for purchasing gluten-free products (18 (Table 8). Only a trace of gluten in food is sufficient to produce damage to the mucosa of the small intestine and subsequent complications (23)(24)(25). The lack of awareness of the necessity of strict adherence to a gluten-free diet in children and adolescents can cause serious problems in the further course of the disease.…”