Evaluation of the educational needs in Argentine patients with rheumatoid arthritis using the SpENAT questionnaire

Pérez, Silvana; Cruz, María Santa; Sosa, Julia; Kohan, Paula; Medina, María Alejandra; Klajn, Diana; Papasidero, Sílvia; Caracciolo, José Angel; Pendón, Gisela; Giordano, Federico; Pereira, Dora; Alvarez, Damaris; Astudillo, V.; Kerzberg, Eduardo; Dávila, Adriana Pérez; Bohr, Analía; Melo, Fernando; Lloves, Nicolás; Mamani, Marta; Hartvig, Claudia; Sánchez, Guadalupe; Sacnum, Mónica; Chichotky, Yamila; Zamora, José Velazco; Benegas, Mariana; Rosa, Javier; García, María Victoria; Raiti, Laura; Cruzat, Vanesa; Quintana, Rosana; Pons-Éstel, Bernardo A; Kirmayr, Karin; D’Orazio, Andrea; Retamozo, Cinthya; Romano, Olga; Alamino, Rodolfo Pérez; Correa, María de los Ángeles; Citera, Gustavo; Rillo, Oscar; Zalazar, María Luisa; Costi, Ana Carolina; García, Mercedes; Gómez, Graciela; Ficco, Hernán Maldonado

doi:10.1016/j.reumae.2018.09.014

Cited by 5 publications

(5 citation statements)

References 11 publications

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“…We also found that patients with RA desired education about treatments more than patients with other RMDs, and patients with AS desired treatment education more than those with FMS. A high level of need for treatment education has been previously reported in patients with RA (Pérez et al, 2019). Further, this pattern of effects may reflect the severity of disease or pain, or deleterious impact to quality of life, of RA and AS, compared to FMS (Ataoğlu, Ankaralı, Ankaralı, Ataoğlu, & Ölmez, 2018), although conflicting findings exist (e.g., that persons with FMS are more impaired than patients with RA and AS) (Tander et al, 2008).…”

Section: Discussionmentioning

confidence: 91%

Educational needs of patients with rheumatic and musculoskeletal diseases attending a large health facility in Austria

Hirsch

Toussaint

Offenbächer³

et al. 2020

Musculoskeletal Care

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Introduction Patient education is an important part of the management of rheumatic and musculoskeletal diseases. Given that patients with diverse diseases do not have the same needs, it is crucial to assess the educational requirements of targeted groups to provide tailored educational interventions. The aim of our study was to assess educational needs of a large cohort of patients with different rheumatic and musculoskeletal diseases attending a health facility in Austria. Methods We assessed educational needs, via an online survey of patients with fibromyalgia (FMS), rheumatoid arthritis (RA), and ankylosing spondylitis (AS) recruited from an Austrian health‐care facility, using the Austrian version of the Educational Needs Assessment Tool (OENAT). Results For our sample of 603 patients, AS (62%), RA (15%), and FMS (24%), there were no educational need differences for the domains of movements, disease process, and self‐help measures. Patients with FMS had less need for pain management education and greater need for education about feelings, than other disease groups. Patients with RA had a greater need for education related to treatments than other groups, and patients with AS had a greater need for treatment education than patients with FMS. Patients with AS reported greater need for support system education than other patient groups. Conclusion Educational needs vary by disease groups, suggesting that health‐care professionals should assess disease‐specific needs for education to provide optimal assistance in disease management for patients.

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Section: Discussionmentioning

confidence: 91%

Educational needs of patients with rheumatic and musculoskeletal diseases attending a large health facility in Austria

Hirsch

Toussaint

Offenbächer³

et al. 2020

Musculoskeletal Care

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show abstract

“…In this study, the patients' primary disease knowledge source came from physicians, physiotherapists, or nurses. Another study by Pérez S et al (9) showed that RA patients were very interested in knowing about RA, and high functional impairment increased this educational need. The rheumatologist is the primary source of information for the patients.…”

Section: Discussionmentioning

confidence: 99%

Disease knowledge and preferences for disclosure of information in patients with rheumatoid arthritis

Gonçalves¹,

Simões²,

Saba³

et al. 2021

Lat. Americ. J. of Develop.

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Objectives: To verify the level of knowledge about rheumatoid arthritis (RA) and the patient’s preferences for disclosure of information by the physician in patients with RA, we compared with a control group of patients without RA. Methods: We evaluated 30 patients diagnosed with RA, according to the ACR criteria, and 30 patients with other diseases pared for age, gender, level of education, and disease duration followed in an Out-Patient Service. Clinical-demographic data as age, gender, level of education, and disease duration were obtained from both groups. We applied questionnaires to evaluate the level of knowledge about RA (10 questions) with answers yes or no, and the patient’s preference for disclosure of information by the physician (4 questions) in a Likert scale from a) strongly agree to e) strongly disagree to both groups. The questionnaires were validated for Portuguese by the method of translation and re-translation. The Ethical Committee at the Pontifical Catholic University approved the study, and we obtained informed consent from all patients. When appropriat-ed, statistical analysis of the data included the chi-square test and student’s t-test. The significance level was 0.05. Results: Over 30 patients with RA, 27 patients (90%) were women, the mean age was 50.8 years old, with a mean of 3.03 years on school, and mean disease duration of 10.6 years. The knowledge about RA as a mean reached 5.36 points in 10 as a correct answer in RA patients and 5.13 in controls. Concerning the patient’s preference for disclosure of information by the physician, the results varied between 23.3% and 90% in the answers strongly agree or agree in the group of RA patients and 6.6% to 90% in controls. In a specific question about "patients with RA should not play a role in managing their disease because the physician is the one in charge," 56.6% of RA patients agreed, and 46,6% of controls too. Only one question about patient’s preference for disclosure of information by the physician “When there is more than one way to treat a problem, I should be told about each one” there was a trend to differ between the controls and the RA patients (p=0.06). The analysis of the results showed no statistical difference in answers to the questionnaires between RA patients and controls. Conclusion: Our results showed that RA patients, compared to control patients with other non-rheumatic diseases, do not show differences to the level of knowledge about rheumatoid arthritis (RA) and the patient’s preferences for disclosure of information by the physician.

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“…Studies in RA patients have indicated that younger individuals often use the Internet as a source of medical information (Khoury et al., 2015; Pérez et al., 2020). It is anticipated that surveyed SLE patients, who are typically younger and more educated, may have increased access to the Internet.…”

Section: Discussionmentioning

confidence: 99%

Survey on help‐seeking process in patients with systemic lupus erythematosus

Eguez Del Pozo,

Cañizares Calderón,

Ávila

et al. 2024

Musculoskeletal Care

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Evaluation of the educational needs in Argentine patients with rheumatoid arthritis using the SpENAT questionnaire

Cited by 5 publications

References 11 publications

Educational needs of patients with rheumatic and musculoskeletal diseases attending a large health facility in Austria

Educational needs of patients with rheumatic and musculoskeletal diseases attending a large health facility in Austria

Disease knowledge and preferences for disclosure of information in patients with rheumatoid arthritis

Survey on help‐seeking process in patients with systemic lupus erythematosus

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