Evaluation of readiness to transfer to adult healthcare: What about the well adolescent?

Beal, Sarah J.; Nye, Abigail; Marraccini, Anne; Biro, Frank M.

doi:10.1016/j.hjdsi.2014.10.001

Cited by 8 publications

(8 citation statements)

References 27 publications

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“…However, transition readiness may be low even among young people who are well [84] in this study, due to lack of preparation, inability to navigate the health system and lack of health knowledge (including names of medication).…”

Section: Do Patients Take Responsibility For Self-managing Their Condmentioning

confidence: 82%

Literature Review: Transition From Paediatric to Adult Services in Haemophilia

Chaplin¹

2015

The Journal of Haemophilia Practice

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The need to prepare children and young people with haemophilia for long-term care in the adult sector has long been accepted and is reflected in many national health care policies. Ideally, transition should be an individualised age- and development-appropriate process, through which each young person is empowered to self-manage, with support from their families and multidisciplinary team (MDT). It is widely recognised that young people who are not engaged in self-management frequently become non-adherent to therapy. For those with haemophilia, this can have a life-long impact on joint health and quality of life. In practice, anecdotal reports from individuals suggest that the transition process is often poorly planned, leaving them feeling lost and unsupported by the healthcare professionals who, until this point, have been core members of their support network. Rarely are the views of young people or their families sought regarding the outcome of their transition process. For those with less severe disease or rarer bleeding disorders, and for girls at the menarche, transition is often not addressed at all. This literature review forms the first part of a project that seeks to identify the outcome measures that can be used to drive a nurse-led initiative improvement in transition for young people with bleeding disorders, through changes in both working practices among health professionals and in the underpinning system, which enables them to put such changes into practice.

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Section: Do Patients Take Responsibility For Self-managing Their Condmentioning

confidence: 82%

Literature Review: Transition From Paediatric to Adult Services in Haemophilia

Chaplin¹

2015

The Journal of Haemophilia Practice

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“…The majority of transition research focuses on those with complex care needs and has shown that transition planning improves patient outcomes (Bloom et al, 2012; Gabriel et al, 2017). Limited research exists on improving the transition process for healthy adolescents and young adults (Beal et al, 2014; Burke et al, 2008; Davidson et al, 2017; Hall et al, 2013; Maddux et al, 2015; Marcer et al, 2008; McManus et al, 2015; Nicoteri & Arnold, 2005; Suris & Akre, 2015). “Healthy” can be defined as patients with no medical conditions or those with chronic medical diagnoses that can be solely managed by the primary care provider (PCP) and have never required hospitalization.…”

Section: Introductionmentioning

confidence: 99%

A Communication Model to Bridge Adolescent Patients, Caregivers, and Physicians in Transitions of Care

et al. 2020

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A transition of care (TOC) process from pediatric to adult medicine ensures that adolescents receive ongoing care into young adulthood, a time of high risk for preventable morbidity and mortality. We explored patient, caregiver, and physician perspectives on ways to improve TOC communication with healthy adolescents. Two researchers conducted key informant interviews with healthy 12- to 18-year-old adolescents, their caregivers, and primary care physicians working in pediatric, internal, and family medicine. Data saturation was reached after interviewing 12 adolescents, 10 caregivers, and 36 physicians. Three themes were identified: perceptions of TOC; effective communication among the triad of adolescents, caregivers, and providers; and early communication about TOC preparation. From these themes, a model of communication was identified and adapted, outlining the communication skills and responsibilities for physicians and patients during TOC. Physicians must understand how to use strong, consistent, adolescent-centered communication to execute effective TOC.

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“…2,5–7 It is at just this time that young adults transition to adult medical care and must learn to independently navigate the health care system while simultaneously managing the routine developmental milestones of early adulthood. 8–11 Moreover, health care professionals face uncertainty regarding how to best facilitate this transition in the general pediatric population. 12–14…”

Section: Introductionmentioning

confidence: 99%