Evaluation of Qualidem: a dementia‐specific quality of life instrument for persons with dementia in residential settings; scalability and reliability of subscales in four Dutch field surveys

Bouman, A.; Ettema, Teake P.; Wetzels, Roland B; Beek, A.P.A. van; Lange, J. de; Dröes, Rose-Marie

doi:10.1002/gps.2585

Cited by 67 publications

(84 citation statements)

References 19 publications

(23 reference statements)

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“…Due to the pragmatic character of this study, reflecting daily care for persons with dementia in LTCF, only one (contact) nurse of the patient (instead of two nurses) filled the instrument; this is a limitation of the study because the developers of the QUALIDEM advise to use the answers reached by a consensus between two nurses. In the present study only the 18 questions suitable for very severe dementia (GDS 7) were used, because these questions are reliable for use in patients with mild dementia as well as those with very severe dementia [18,32,55]. A short instrument that can be filled out by one person would be more feasible [20,56].…”

Section: Discussionmentioning

confidence: 99%

“…The QUALIDEM is based on the theoretical framework of the adaptation-coping theory. The scale is reliable, easy to administer and provides a QOL profile of persons with dementia in an LTCF setting [18,32,33]. The QUALIDEM consists of 37 items describing observable behavior in nine domains: Care relationship, Positive affect, Negative affect, Restless tense behavior, Positive self-image, Social relations, Social isolation, Feeling at home and Having something to do.…”

Section: Methodsmentioning

confidence: 99%

“…The QUALIDEM consists of 37 items describing observable behavior in nine domains: Care relationship, Positive affect, Negative affect, Restless tense behavior, Positive self-image, Social relations, Social isolation, Feeling at home and Having something to do. The QUALIDEM (of 37 questions) takes about 15 min to fill out and is based on an observation window of 1 week [18]. The response options are: never, rarely, sometimes and frequently.…”

Section: Methodsmentioning

confidence: 99%

“…On the other hand, psychosocial factors such as sadness [14], depression [4,10,15,16] and agitation [10,16,17] have a negative association with QOL, whereas functional characteristics (e.g. ADL impairment and dementia severity) show inconclusive evidence for associations with QOL [10,12,18,19,20]. …”

Section: Introductionmentioning

confidence: 99%

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Characteristics Associated with Quality of Life in Long-Term Care Residents with Dementia: A Cross-Sectional Study

Klapwijk

Caljouw

Pieper

et al. 2016

Dement Geriatr Cogn Disord

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Background: To determine which characteristics are associated with quality of life (QOL) in residents with moderate to very severe dementia in long-term care facilities (LTCFs). Material and Methods: This was a cross-sectional analysis of a cluster randomized controlled study in 12 Dutch LTCFs that enrolled 288 residents, with moderate to severe dementia assessed with the Reisberg Global Deterioration Scale (Reisberg GDS) and QOL with the QUALIDEM. Characteristics that were hypothesized to be associated with the six domains of QOL (applicable to very severe dementia) included demographic variables, activities of daily living (Katz ADL), cognitive performance (Cognitive Performance Scale; CPS), pain (Pain Assessment Checklist for Seniors with Limited Ability to Communicate; PACSLAC-D), neuropsychiatric symptoms (Neuropsychiatric Inventory-Nursing Home Version; NPI-NH) and comorbidities. Results: Multivariate logistic regression modelling showed associations with age in the domain Social isolation [odds ratio, OR, 0.95 (95% confidence interval, CI, 0.91-0.99)], ADL level in the domain Positive affect [OR 0.89 (95% CI 0.83-0.95)] and the domain Social relations [OR 0.87 (95% CI 0.81-0.93)], severity of dementia in the domain Social relations [OR 0.28 (95% CI 0.12-0.62)] and in the domain Social isolation [OR 2.10 (95% CI 1.17-3.78)], psychiatric disorders in the domain Positive affect [OR 0.39 (95% CI 0.17-0.87)] and pulmonary diseases in the domain Negative affect [OR 0.14 (95% CI 0.03-0.61)] of the QUALIDEM. Neuropsychiatric symptoms were independently associated with all six domains of the QUALIDEM [OR 0.93 (95% CI 0.90-0.96) to OR 0.97 (95% CI 0.95-0.99)]. Pain was associated with the domains Care relationship [OR 0.92 (95% CI 0.84-1.00)] and Negative affect [OR 0.92 (95% CI 0.85-1.00)]. Conclusion: QOL in dementia is independently associated with age, ADL, dementia severity, pain, psychiatric disorders, pulmonary diseases and neuropsychiatric symptoms. It is possible to detect persons with dementia at risk for a lower QOL. This information is important for developing personalized interventions to improve QOL in persons with dementia in LTCFs.

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Section: Discussionmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Characteristics Associated with Quality of Life in Long-Term Care Residents with Dementia: A Cross-Sectional Study

Klapwijk

Caljouw

Pieper

et al. 2016

Dement Geriatr Cogn Disord

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“…Overall quality was measured using the Qualidem scale, designed and validated to assess the quality of life of residents who live in nursing homes and who are diagnosed with dementia [18,19]. Qualidem consists of 40 items, 21 of which are applicable to people with advanced or end-stage dementia.…”

Section: Methodsmentioning

confidence: 99%

The Impact of Individualized Interaction on the Quality of Life of Elderly Dependent on Care as a Result of Dementia: A Study with a Pre-Post Design

Vocht

Hoogeboom

Niekerk³

et al. 2015

Dement Geriatr Cogn Disord

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Background: The aim was to assess the impact of a one-to-one 30-min individualized interaction per day on the behavior and quality of life of care-dependent residents with dementia. Methods: In apre-/post-test study, 15 care-dependent residents with dementia (mean age 88.8 years, 86.7% women) were included. Resident behavior was measured using video observation and quality of life using Qualidem. Health care professionals (n = 13) and direct relatives (n = 4) were interviewed about the effect of the intervention. The effect of the intervention was analyzed using the Friedman analysis of variance. Results: The video observation showed that maintaining eye contact, touching, responding to speaking, tracking observable stimuli and asking questions about the activity significantly increased during the intervention. These findings were supported by interviews with nurses who described experiences of making human-to-human contact with the residents. No significant overall changes were found in quality of life. These findings were partially supported by interviews with health care professionals and relatives as some perceived effects beyond the 30-min intervention. Conclusions: Interaction offered on a one-to-one basis tailored to individual preferences significantly improved positive interactive behavior of care-dependent residents with dementia during the intervention. Surveys revealed no significant overall effect of the intervention. The interviews indicated there might be effects beyond the intervention for some residents.

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The impact of antipsychotics and neuropsychiatric symptoms on the quality of life of people with dementia living in nursing homes

Ven-Vakhteeva

Bor

Wetzels

et al. 2012

Int J Geriat Psychiatry

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Evaluation of Qualidem: a dementia‐specific quality of life instrument for persons with dementia in residential settings; scalability and reliability of subscales in four Dutch field surveys

Abstract: Qualidem is an easy to administer and overall moderately sufficient reliable rating scale that provides a quality of life profile of persons with mild to even very severe dementia living in residential settings.

Cited by 67 publications

References 19 publications

Characteristics Associated with Quality of Life in Long-Term Care Residents with Dementia: A Cross-Sectional Study

Characteristics Associated with Quality of Life in Long-Term Care Residents with Dementia: A Cross-Sectional Study

The Impact of Individualized Interaction on the Quality of Life of Elderly Dependent on Care as a Result of Dementia: A Study with a Pre-Post Design

The impact of antipsychotics and neuropsychiatric symptoms on the quality of life of people with dementia living in nursing homes

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