Evaluation of ICU end-of-life and bereavement care by relatives of deceased ICU patients

Brekelmans, A.C.M.; Ramnarain, Dharmanand; Haas, M. de; Ruitinga, R.; Pouwels, Sjaak

doi:10.1016/j.rmed.2022.106972

Cited by 2 publications

(3 citation statements)

References 26 publications

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“…This resulted in 34 papers selected for review. Among them, 19 papers were included for data integration after excluding 15 papers [8,9,[13][14][15][16][17][18][19][20][21][22][23][24][25] in which data extraction or acquisition was not possible (Figure 1).…”

Section: Resultsmentioning

confidence: 99%

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Family Members’ Feedback on the “Quality of Death” of Adult Patients Who Died in Intensive Care Units and the Factors Affecting the Death Quality: A Systematic Review and Meta-Analysis

Naya,

Sakuramoto,

Aikawa

et al. 2024

Cureus

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Intensive care units (ICUs) are designed for critically ill patients who often experience high mortality rates owing to the severity of their conditions. Although the primary goal is patient recovery, it is crucial to understand the quality of death in the ICU setting. Nevertheless, there is a notable lack of systematic reviews on measured death quality and its associated factors. This study aims to conduct a quantitative synthesis of evidence regarding the quality of death in the ICU and offers a comprehensive overview of the factors influencing this quality, including its relationship with the post-intensive care syndrome-family (PICS-F). A thorough search without any language restrictions across MEDLINE, CINAHL, PsycINFO, and Igaku Chuo Zasshi databases identified relevant studies published until September 2023. We aggregated the results regarding the quality of death care for patients who died in the ICU across each measurement tool and calculated the point estimates and 95% confidence intervals. The quantitative synthesis encompassed 19 studies, wherein the Quality of Dying and Death-single item (QODD-1) was reported in 13 instances (Point estimate: 7.0, 95% CI: 6.93-7.06). Patient demographic data, including age and gender, as well as the presence or absence of invasive procedures, such as life support devices and cardiopulmonary resuscitation, along with the management of pain and physical symptoms, were found to be associated with a high quality of death. Only one study reported an association between quality of death and PICS-F scores; however, no significant association was identified. The QODD-1 scale emerged as a frequently referenced and valuable metric for evaluating the quality of death in the ICU, and factors associated with the quality of ICU death were identified. However, research gaps persist, particularly regarding the variations in the quality of ICU deaths based on cultural backgrounds and healthcare systems. This review contributes to a better understanding of the quality of death in the ICU and emphasises the need for comprehensive research in this critical healthcare domain.

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Section: Resultsmentioning

confidence: 99%

“…Concerning EuroQ2, the overall rating of care [ 30 , 31 ] and the total score [ 23 ] were reported. However, as only one study reported the total score, the average score was integrated into the overall rating of care.…”

Section: Reviewmentioning

confidence: 99%

Family Members’ Feedback on the “Quality of Death” of Adult Patients Who Died in Intensive Care Units and the Factors Affecting the Death Quality: A Systematic Review and Meta-Analysis

Naya,

Sakuramoto,

Aikawa

et al. 2024

Cureus

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“…Recently, we performed a study to evaluate the quality of ICU care and our bereavement care assessed by relatives of deceased ICU patients (Brekelmans et al, n.d.). Of the 219 eligible relatives, 139 were willing to fill in the questionnaires and 95 of them actually returned the questionnaire, which raises the question whether there are differences between the 95 relatives who did fill in the questionnaires and the 44 relatives who did not.…”

Section: Introductionmentioning

confidence: 99%

Differences between responders and nonresponders in intensive care unit (ICU) related survey studies

Brekelmans

Ramnarain

Pouwels

2023

Journal of Clinical Nursing

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BackgroundIn survey research studies, there are often a proportion of non‐responders, that is patients or relatives of patients who do not want to fill in a survey. Especially in intensive care medicine, these proportions of non‐responders can be relatively high. However, with the increasing incidence of post‐intensive care syndrome (PICS), it can be beneficial to know what the predisposing factors are.MethodsWe performed a sub analysis of a recent survey study we have conducted on relatives of deceased ICU patients. Of the 219 eligible relatives, 139 were willing to fill in the questionnaires and 95 of them actually returned the questionnaire, which raises the question whether there are differences between the 95 relatives who did fill in the questionnaires and the 44 relatives who did not. We collected information from the medical records of deceased patients whose relatives did and did not fill in the questionnaires, that is responders and non‐responders.ResultsPatient's whose relatives did not fill in the questionnaire had a significantly lower median age compared with patients whose relatives returned the questionnaires (64 [56–75] vs. 71 [65–76] years, respectively, p = .039). The non‐responders were two relatives of a deceased patient below 60 years in 34.1% of the cases, whereas this percentage was 14.7% in the responders. The distribution of men and women was comparable between the groups (p = .54) as well as the length of ICU stay (p = .48).ConclusionOur findings suggest that ICU‐related variables did not influence response rate, but the age of the deceased ICU patient does: The non‐responders are related to deceased ICU patients with a significantly lower age.

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Evaluation of ICU end-of-life and bereavement care by relatives of deceased ICU patients

Cited by 2 publications

References 26 publications

Family Members’ Feedback on the “Quality of Death” of Adult Patients Who Died in Intensive Care Units and the Factors Affecting the Death Quality: A Systematic Review and Meta-Analysis

Family Members’ Feedback on the “Quality of Death” of Adult Patients Who Died in Intensive Care Units and the Factors Affecting the Death Quality: A Systematic Review and Meta-Analysis

Differences between responders and nonresponders in intensive care unit (ICU) related survey studies

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